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The National Cancer Patient Experience Survey aims to understand the experiences of cancer care across England to help to improve the quality of cancer services across the NHS. It may be useful reading to understand local feedback.

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National Cancer Patient Experience Survey

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Tell us about your experience of cancer care - National Cancer Patient Experience Survey

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Your chance to tell us about your experience of cancer care in the NHS and help us understand how NHS cancer services can be improved.

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John B has pulled together some helpful cancer fact-sheets for carers of people with learning disabilities.

Please note there are 5 fact-sheets.

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A flyer and script to encourage and support people to contact their GP surgery if they're worried about a symptom that may be cancer.

Please note there are two documents linked.

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Bowel Cancer UK offer free online or face-to-face awareness talks and information stands, which are open to anyone to sign up for.

When booking you can specify whether you would like to join an online awareness talk or whether you would like them to deliver an in-person awareness talk.

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Find out about the free bowel cancer awareness talks to workplaces and community groups in all four nations of the UK.

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An important update on Prostate Cancer screening

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An important update on Prostate Cancer screening

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On 2nd June 2026 it was announced that the government has accepted the recommendation from the UK National Screening Committee to introduce England’s first targeted prostate cancer screening programme. Implementation of this will be led by NHS England, with close input from the National Cancer Programme - from 2027.

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CRUK update on prostate cancer screening

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CRUK update on prostate cancer screening

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Prostate cancer screening is recommended for men aged 45 to 61 with a BRCA2 gene change and a family history of some cancer types. This is a new recommendation and roll out in England starts in 2027.

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There isn’t a national screening programme for prostate cancer. This is because there isn’t a reliable test that can pick up prostate cancer that needs treatment at an early stage.

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Prostate cancer screening trial gets ministerial approval

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Prostate cancer screening trial gets ministerial approval

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Tens of thousands more black men aged 45-74 are to be invited for prostate cancer checks as part of an ongoing trial in the UK to find better ways of testing for the disease.

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More black men to benefit from prostate cancer screening trial

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Experts are trying to find the best way to screen for prostate cancer, since blood tests alone are not accurate enough for most men.

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The Government has announced an investment of over £20 million to improve prostate cancer research and treatment, including improving access to a major trial for eligible Black men.

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Major expansion of research and treatment for prostate cancer

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Government announces over £20 million to improve prostate cancer research and treatment, including improving access to a major trial for Black men.

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Quick reference guide for urgent referrals for suspected lower GI cancer.

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Quick Reference Guide for Suspected Lower GI Cancer

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A useful CMCA leaflet on what a FIT test is and how to do it.

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An interesting report on motivations for and against cervical screening in 20-24 year olds

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Cervical Screening Insight Project May-26

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An updated version of the booklet received as part of the Talk Cancer workshop

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Interesting article about the pros and cons of prostate cancer screening - it can save lives but ‘absolute benefit is small'

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Prostate cancer screening can save lives but ‘absolute benefit is small’, study says

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Although blood test reduces deaths by two for every 1,000 men screened, many could face unnecessary treatment

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A really great leaflet that can be adapted to include local information for wherever you are (Please note the leaflet is 2 pages).

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Breast cancer videos for ethnic minority communities

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Breast cancer videos for ethnic minority communities

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A new series of mini films – designed to help dispel fears about breast cancer and breast cancer screening – has been launched to support Black and South Asian women.

The videos – co-produced with ethnic minority women – aim to improve breast health awareness and encourage health seeking behaviours.

Currently women from ethnic minorities are less likely to attend breast cancer screening and take longer to go to their GP with symptoms of breast cancer.
Greater Manchester Cancer Alliance worked with The University of Manchester, the Caribbean and African Health Network, and the Fatima Women’s Association to produce the series.

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Breast cancer - videos aimed at ethnic minority audiences

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These videos were funded by Greater Manchester Cancer Alliance and Prevent Breast Cancer. Greater Manchester Cancer Alliance worked with researchers from The…

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Pancreatic cancer UK easy to read booklets

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Pancreatic cancer UK easy to read booklets

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Pancreatic cancer easy to read booklets free to order

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Easy Read information uses pictures and simple words. Read more about our Easy Read information on what pancreatic cancer is and how it is treated.

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CRUK information on a prostate screening programme

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CRUK information on a prostate screening programme

# data[].attributes.body
This article was in response to the recent Nov 2025 review which gave a draft recommendation to not have a prostate screening programme, it gives a rationale for this recommendation and further information on signs and symptoms

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There isn’t a national screening programme for prostate cancer. This is because there isn’t a reliable test that can pick up prostate cancer that needs treatment at an early stage.

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A how-to guide for ordering screening leaflets 

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A how-to guide for ordering screening leaflets 

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Easy to read and non-easy to read bowel/breast/cervical screening leaflets available to order for free

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NHS population screening: how to order printed leaflets

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Guidance for local NHS screening services on how to order printed population screening leaflets.

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A helpful poster outlining the symptoms of bowel cancer.

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Resources and information to support awareness and understanding of trauma informed care

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Resources and information to support awareness and understanding of trauma informed care

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Healthcare Resources for Survivors - The Survivors Trust

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A helpful, downloadable information booklet on penile cancer. The booklet is from Orchid who provide lots of information on male specific cancers: Orchid Fighting Male Cancer

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Cervical Screening Podcast - Between 2 Ovaries

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Cervical Screening Podcast - Between 2 Ovaries

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A new women's health podcast series launched by Dr Nicola Tempest of the University of Liverpool. This episode - The Cervix Is In – Why Screening Saves Lives covers “everything you didn’t know you needed to know about cervical screening”

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Menopausal symptoms and cancer treatment - Macmillan

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Menopausal symptoms and cancer treatment - Macmillan

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Managing menopausal symptoms after cancer treatment

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Get support with managing menopausal symptoms during and after cancer treatment. Hormone replacement therapy (HRT) and complementary therapies may help.

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Menopause Awareness Month 2025: information and support

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October is Menopause Awareness Month. Explore the links between menopause and cancer and get trusted information and resources from Macmillan.

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Menopausal symptoms and cancer treatment - CRUK

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Menopausal symptoms and cancer treatment - CRUK

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Menopausal symptoms and cancer treatment

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Some types of cancer treatment can affect your sex life and sexuality because they can cause an early menopause.

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Information from CRUK on cancer treatments that cause early menopause.

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Some cancer treatments cause low levels of sex hormones that lead to early menopause or menopausal symptoms.

Breast cancer treatments that cause an early menopause include:

drugs that block or lower the amount of hormones in the body (hormone therapy)

chemotherapy

Your menopause might be temporary or permanent. It is more likely to be permanent if you are closer to the natural age of menopause. Your doctor might be able to suggest what will happen in your situation. But this will be difficult to know for sure.

Some women have already been through the menopause. But their treatment can cause symptoms similar to the menopause.

Common menopausal symptoms

Symptoms you may have that are related to low sex hormone levels include:

hot flushes and sweats

night sweats

anxiety, low mood and mood change

feeling very tired (fatigue) and poor sleep

loss of interest in sex

problems with thinking, concentration and memory - sometimes called brain fog

joint pains and muscle aches and you may have thinning and weakening of the bones (osteoporosis) over time

headaches and worsening migraines

itching, irritation or dryness of your vulva or vagina

vaginal pain or discomfort during sex

vaginal bleeding after sex

urinary problems such as needing to wee urgently, infection or incontinence

Your fertility

Your fertility might also be affected and you may no longer be able to have children naturally. This loss of fertility can be upsetting even if you have a family or did not intend to have children. Whether this happens to you depends on different factors. For example, your age and the cancer treatment you have had. Speak to your doctor if this is a concern for you. They can explain how likely this is in your situation.

Some women who have experienced an early menopause can still get pregnant. So you may still need to use contraception.

Who can I talk to about my menopausal symptoms?

It can be hard to know whether your symptoms are due to your cancer and its treatment. Or whether they relate to the menopause. It might help to keep a diary or make a list of your symptoms. You can discuss these with your cancer doctor, clinical nurse specialist GP or general practice nurse.

You can ask your GP surgery if there is a GP that specialises in the menopause. In some situations, your GP may refer you to a specialist menopause clinic or a gynaecologist.

Hormone Replacement Therapy (HRT) after breast cancer

Many women in the UK take hormone replacement therapy (HRT) to reduce menopausal symptoms. But doctors don't routinely recommend taking HRT after breast cancer.

The concern is that HRT could increase the risk of your breast cancer coming back (recurrence). The risk for women who have had breast cancer is uncertain because research so far has not drawn any firm conclusions. This might depend on the type of HRT and how long you have it.

The risk is thought to be greater in women:

whose breast cancer has receptors for the female hormones - hormone receptor positive breast cancer

who take HRT that contains oestrogen and progestogen (combined HRT)

It's important that you talk to a health professional if you are finding menopausal symptoms difficult to cope with. Ideally you should speak to your cancer doctor as well as a doctor that specialises in the menopause.

Your doctor might suggest that you try other things first, such as non hormonal medicines. But they may offer HRT if your symptoms are severe. For example, if hot flushes or low mood, or a combination of symptoms are affecting your quality of life. Your doctor should discuss the risks and benefits of HRT with you.

Things that might help

For some women, HRT is the only way to completely get rid of menopausal symptoms. But there are other ways of reducing symptoms if you can't take HRT, or choose not to take HRT.

There are a range of other treatments and things you can do to help cope with the effects of menopause. You may need to try different things before you find something that works for you. And you might find that a combination of things is better than one.

We have information about ways to cope with symptoms such as:

hot flushes and sweats

vaginal dryness and loss of interest in sex

problems sleeping

bone loss

Talking, time for yourself and getting support

It can be hard to come to terms with your diagnosis at the same time as having menopausal symptoms. It might help to talk to family and friends and share how your symptoms are making you feel with your family and friends.

Try to make some time for yourself. Some people practice breathing or relaxation techniques, or mindfulness. And some people find counselling and support groups helpful.

Work and menopausal symptoms

It might help to let someone in your workplace know if you are finding menopausal symptoms difficult. It makes sense to talk to your manager first, it might be useful if some of your colleagues know as well. This all depends on how comfortable you feel about sharing what you are going through. If possible, small adaptions to your work could help. For example, flexibility of your hours, positioning your desk near a window or nearer to the toilet.

Information is available about menopause in the workplace. You can find resources on government, union and charity websites.

Sharon's breast cancer story

Sharon was diagnosed with breast cancer in 2016.
'I'm still on medication... this causes early menopause that's not been fun but coping well now.'

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There are some breast cancer treatments cause low levels of sex hormones that lead to an early menopause or menopausal symptoms. Find out how to manage the effects.

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Macmillan information for Sarcoma Awareness month

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July is Sarcoma awareness month. Sarcomas are rare cancers that develop in different parts of the body, including the bones and soft tissues.

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This toolkit and FAQs can be used to support conversations with women and people with a cervix about attending their cervical screening appointments.

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The Department of Health and Social Care have announced that from January 2026 HPV self-sampling tests will be offered to women and people with a cervix who haven’t attended, or rarely attend, their cervical screening appointment.

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You searched for Self sampling - The Eve Appeal

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This is primarily aimed at health professionals but may be helpful to reference for any work you're doing with LD groups.

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NHSE NW Learning Disability Toolkit Cancer Screening 2025-26

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Some helpful tips and images for doing your FIT (bowel screening) test

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Images from the current NWCR Ovarian Cancer campaign

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CRUK info on HPV Vaccination & Screening

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HPV primary screening

99.8% of all cervical cancer cases in the UK are caused by HPV infection

. Most sexually active people come into contact with HPV during their lifetime. Usually the virus causes no harm and the infection clears on its own. However, in some cases, HPV infection can lead to cell changes that can progress into cervical cancer.

HPV primary screening is now embedded in primary care across the UK as it identifies people at a higher risk of developing cervical cancer and it's a more accurate test than the previous approach of cytology. This means that cervical cell samples are tested for HPV and only samples that are HPV positive will be examined in the lab for any changes in the cells. People who are HPV positive and cytology negative are invited for yearly surveillance.

It has been estimated that HPV primary screening in England may reduce the number of cervical cancers in women aged 25-64 by 23.9%, saving even more lives and helping to avoid unnecessary procedures for women

.

The diagram below shows that for every 100 people screened, 87 would be HPV negative. Following cytology of the HPV positive samples, only 4 people would have abnormal cell changes identified and would be referred for colposcopy.

Read more about HPV and the HPV vaccination.

HPV vaccination

The HPV vaccination reduces the chance of someone being infected with HPV. The Gardasil 9 vaccine is currently supplied for those eligible for the HPV vaccine and protects against 9 strains of the virus

. The HPV vaccine is expected to prevent up to 90% of cervical cancers. There is great potential for HPV vaccination to lead to the elimination of cervical cancer as a public health problem. In addition, HPV is linked to non-cervical cancers such as head and neck cancer and therefore has wider positive impacts for cancer control.

People who've been vaccinated against HPV should still participate in cervical screening as there is still a small chance that vaccinated people can get cervical cancer

. Primary care have a role to play in raising awareness of the fact that cervical screening is still important as the vaccine does not protect against all strains of the virus and doesn't provide 100% immunity.

Who's eligible for the HPV vaccine?

All children aged 12 to 13 are offered the HPV vaccination in schools. The programme started in 2008 for girls, and in 2019 it was expanded to boys to further prevent the potential spread of the virus, as well as to protect against male HPV related cancers.

In 2018, a HPV vaccination programme for men who have sex with men was implemented to ensure this group are offered protection against male HPV related cancers too.

These recent changes mean that there are people eligible for the vaccine who may not have received it. In your practice, make sure you check the HPV vaccination record and offer the vaccine to all girls under 25 and boys born from September 2006 up until their 25 th birthday. Men who have sex with men under 45 can access HPV vaccination through sexual health clinics.

If an eligible child misses getting their HPV vaccine at school, they can be vaccinated at a catch-up clinic. If you are unsure when or where these clinics are in your area contact your local immunisation team or health board.

For more information about changes to HPV vaccination, including doses for different groups, go to the GOV.UK HPV vaccination guidance

Screening coverage in the UK

There has been a decline over the past 10 years in the number of people taking up their offer of cervical screening.

Cervical screening coverage is the percentage of eligible people invited for screening who have had a test with a recorded result within a specified period.  Coverage across the UK ranges from 66.7% to 69.9% (data from 2021/22)

.

Lower attendance is particularly evident in the youngest as well as the oldest age groups

, and in underserved groups such as those from lower socio-economic and ethnic minority backgrounds.

Our primary care good practice guide (PDF, 1.78 MB)details how you can encourage informed participation and reduce access barriers to ensure the cervical screening programme is effective.

Find statistics for your nation:

Incentivised schemes

In England, Wales and Northern Ireland, cervical screening uptake is incentivised through the Quality and Outcomes Framework (QOF), where practices need to ensure a high proportion of the target cohort undergo screening regularly to receive payment.

In England, the QOF Quality Improvement module on the early diagnosis of cancer(PDF) provides an opportunity for GP practices to develop quality improvement plans for all screening programmes.

In England, the Primary Care Network (PCN) GP Contract Requirements for the Early Diagnosis service specification asks PCNs to contribute to improving local uptake of screening by working with local system partners. For more information read our GP contract hub.

There are currently no national incentive schemes operating in Scotland, but this may change in the future. In Scotland, each health board has a Screening Inequalities plan covering quality improvement activity. Training for NHS staff is available on TURAS. The Scottish Equity in Screening Strategy 2023-2026 provides an overview of current national projects to support the reduction of screening inequalities, which may be of interest to health professionals in Scotland.

Even without incentive schemes in place, it's important to remember the valuable role that primary care can play in helping to support informed uptake of screening, removing any barriers and working collaboratively with local partners to reach out to communities.

Read more about cervical screening

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Cervical cancer prevention: HPV vaccination and screening

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Read information about human papillomavirus (HPV) vaccinations, the cervical screening test and coverage across the UK nations.

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NHSE NW A guidance and resource pack for care providers of learning disability services (March 2025)

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E-version of the leaflet distributed at the May 2025 SAL catch-up, describes each role within primary care

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NHS England » NHS rolls out lifesaving home testing for bowel cancer to over 50s

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Hundreds of thousands more people will be sent a home-testing kit that can help to detect signs of bowel cancer, as the NHS expands its lifesaving screening programme to those aged 50 in England. People aged 50 and 52 are now starting to automatically receive a home test kit every two years by post when […]

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Developed by NWCR

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Developed by NWCR

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Developed by NWCR

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Developed by NWCR

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Developed by NWCR

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Macmillan offer free physical easy to read booklets to order about multiple cancer topics - link to the order here:

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Macmillan offer free physical easy to read booklets to order about multiple cancer topics - link to the order here:

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Link shows only one booklet in particular, but there are many more found elsewhere on the Macmillan website, get in touch with Sam if you have any issues

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Please only order a maximum of 20 copies of this resource at a time. This is to help us ensure that we can manage the availability of this resource as effectively as possible. If you require a greater number of copies of this resource please e-mail informationproductionteam@macmillan.org.uk before placing your order.

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Advice for Cancer Alliances to not promote Prostate Cancer UK Risk Checker tool

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Advice for Cancer Alliances to not promote Prostate Cancer UK Risk Checker tool

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The tool does not align with NICE guidance and shouldn't be referenced - Please contact Suzanne or Nancy if unsure

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Including:

- New 'Ping and Book' service for breast screening through the NHS app

- Cervical screening invites through the NHS app

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NHS England is transforming the digital services that underpin NHS screening programmes.

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Guide on how to check your breasts for cancer

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Guide on how to check your breasts for cancer

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Find out how to check your breasts or chest (also known as a self-examination), what symptoms to look for, and what to do if you notice a change that is not normal for you.

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Pancreatic Cancer UK - Pancreatic cancer risk checker tool/ comms

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Pancreatic Cancer UK - Pancreatic cancer risk checker tool/ comms

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Useful Communications toolkit for Breast Cancer Awareness Month 

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Useful Communications toolkit for Breast Cancer Awareness Month 

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Cervical screening leaflets in other languages

NHS England — North West » Cervical Screening Programme

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NHS England — North West » Cervical Screening Programme

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Female Female lifetime screening pathway (English) - YouTube

Male Male lifetime screening pathway (English) (youtube.com)

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Female lifetime screening pathway (English)

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Information in languages other than English

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Information in languages other than English

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Refer to these websites:

Macmillan Cancer Support has information and help in other languages

Cancer Research UK has resources in other languages

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Spot bowel cancer early | Publications (cancerresearchuk.org)

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Updated for 2022, this leaflet contains information on how to spot the symptoms of bowel cancer early and reduce your risk.

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Early Diagnosis animations | Publications (cancerresearchuk.org)

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Download early prevention messaging animations for use on social media, websites, and waiting area screens.

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Easy read leaflet - How to try to not get cancer (CRUK)  Please download from https://publications.cancerresearchuk.org/publication/easy-read-leaflet-how-try-not-get-cancer

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Easy read leaflet - How to try to not get cancer (CRUK)  Please download from https://publications.cancerresearchuk.org/publication/easy-read-leaflet-how-try-not-get-cancer

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Easy read leaflet - How to try to not get cancer

# data[].attributes.attachment_link.description
Easy read leaflet providing information on how to reduce your cancer risk, using simple language and pictures.

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CRUK  Bowel screening card (free resource)

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CRUK  Bowel screening card (free resource)

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Bowel cancer screening info card - England | Publications (cancerresearchuk.org)

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Bowel cancer screening info card - England

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Handy wallet-sized cards giving information on the bowel cancer screening programme in England - updated for 2022.

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Aintree and Everton Health Equity Project

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Aintree and Everton Health Equity Project

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https://youtu.be/IN4zlb678UA

https://youtu.be/jn3U22ezCho

https://youtu.be/ckalKYQMXH0

#bebreastsavvyliverpool

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Your browser is currently set to block cookies. You need to allow cookies to use this service.

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How to use the bowel cancer screening FIT kit | NHS (youtube.com)

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Information for the bowel screening kits

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Information for the bowel screening kits

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This is the link to the leaflet that comes with the bowel screening kit. It comes in a BSL format and other languages.

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Applies to England

A short animation that explains how to use the FIT kit is available in English, British Sign Language and subtitled versions in English and 10 other languages.

Writing the date on the bottle

Write the date on the sample bottle in biro.

Use a container or layers of toilet paper to catch your poo.

Do not let your poo touch the toilet water.

Collecting the sample

Twist the cap to open the sample bottle.

Collect a sample by scraping the stick along the poo until all grooves are covered.

We only need a little poo to test. Please do not add extra.

Clicking the sample bottle shut

Put the stick back in the bottle and 'click' the cap to close it.

Do not reopen the bottle after use.

Please wash your hands after use.

Preparing to post the completed kit

Make sure you have written the date on the sample bottle.

Put the sample bottle in the return envelope supplied.

Peel off the tape, and seal the envelope and post.

Please post your completed kit as soon as possible.

Thank you for your feedback

Report a problem with this page

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NHS bowel cancer screening: FIT kit instructions (English)

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We use some essential cookies to make this website work. We'd like to set additional cookies to understand how you use GOV.UK, remember your settings and improve government services. We also use cookies set by other sites to help us deliver content from their services. You have accepted additional cookies.

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An easy read breast screening booklet.   Please check at the link to ensure that you are using the right resource.

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An easy read breast screening booklet.   Please check at the link to ensure that you are using the right resource.

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Rationale for not having a prostate cancer screening programme

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Rationale for not having a prostate cancer screening programme

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Link to resource is: 780_‘PSA screening in men without symptoms’ update (cancerresearchuk.org)