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Young Lives - Practical hands on support

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Young Lives - Practical hands on support

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Hearing the word cancer can change you and your family's life. But we're here to support you. Whether you have questions about your own diagnosis, cancer in children and young adults or want to support a friend or sibling with cancer.

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Your go-to place for everything you might need when you’re a young person diagnosed with cancer, or if your child has cancer.

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Access more money to help with the costs of cancer. Search for grants from other organisations and charities using the Turn2us Grants Search tool.

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Access more money to help with the costs of cancer. Search for grants from other organisations and charities using our Grants Search tool.

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We’re here to give every young person facing cancer the best care and support.

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We're the only UK cancer charity here to give every young person facing cancer the best care and support.

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I want to think about life beyond my cancer treatment

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I want to think about life beyond my cancer treatment

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Trekstock tips for supporting your child through cancer treatment 

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Trekstock tips for supporting your child through cancer treatment 

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How to support your young person through a cancer diagnosis

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Supporting your adult child through cancer

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If you’re the parent of someone in our community with cancer, we know there’s not a lot of information out there to support you. Here we explore how you might be feeling, how you can help and how to take care of yourself in amongst it all.

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Having a child, sister, brother or partner diagnosed with cancer is a traumatic and frightening experience as routines, relationships and daily life are turned upside down and fear, anxiety, financial and relationship worries can set in.

Feel Connected, Feel Understood, Feel Purpose, Feel Heard

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How we can help you?

We know that the family focus switches to looking after the person with cancer and we know what a scary place this can be for parents, carers and siblings.

We provide a wide range of support services for mums, dads, siblings, partners and carers.

Through Our Programmes you can receive:

1-2-1 sessions with our counsellor online, or in-person (Huddersfield based).

Life Notes Mindfulness & Productivity Journal

Online or In-person Yoga (Northern Based)

Online Recipes

Wellbeing Days & Breaks Away

register online
or contact tasha@elladawsonfoundation.org.uk to register for support.

Reg. Charity 1197112.

Ella Dawson Foundation

© The Ella Dawson Foundation Copyright 2022, All Rights Reserved.

The Ella Dawson Foundation is a registered charity: 1197112 (England and Wales).

The Art Studio, 3 Delves Moor, Huddersfield, HD7 5TY

Tel: 07733 104198

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We know that the family focus switches to looking after the person with cancer and we know what a scary place this can be for parents, carers and siblings. We provide a wide range of support services for mums, dads, siblings, partners and carers.

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Spread a Smile is a registered charity that supports the wellbeing of seriously ill and hospitalised children during extended hospital stays and treatment.  Our services are available, free of charge, to all children up to the age of 18 under the care of our NHS hospital partners.

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Receive the Spread a Smile monthly family newsletter detailing all our latest services, events and activities.

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To download the resources mentioned in the Sibling Toolkit, visit Sibling toolkit (PDF viewer and download) - Tom's Trust

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Barretstown run residential camps for teenagers and young adults affected by serious illnesses

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Teen’s Camp - Barretstown Children’s Charity

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Barretstown Teen’s Camp is a residential camp for children and their families affected by serious illness. We offer a range of adventurous free of charge

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Shine London is one of our largest networks, with regular meet ups around the city.

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Cancer support charity for young people - Shine

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london - Cancer support charity for young people - Shine

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Join a first time trip then come back and stay supported. All our trips, for 8-17 and 18-24 year-olds, are free to anyone who has been treated for cancer.

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Only after treatment ends can a young person start rebuilding their life from the devastation of cancer. Our trips inspire young people to believe in a brighter future as they start to re-establish their place in the world.

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A calender of regular events from the Teens Unite Charity

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Our upcoming teen events are for young people registered with Teens Unite. These are free of charge to attend and take place face-to-face and digitally, with different activities to look forward to each week. Here's what's coming up.

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teens :) unite fighting cancer | nobody likes the ‘c’ word’

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Teens :) Unite Fighting Cancer | Nobody likes the 'C' word'

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Our upcoming teen events are for young people registered with Teens Unite. These are free of charge to attend and take place face-to-face and digitally, with different activities to look forward to each week. Here's what's coming up.

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Flynn's Barns residential (18-25 year olds)

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Flynn's Barns residential (18-25 year olds)

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We support young people who have a cancer diagnosis, are receiving ongoing medical treatment or who are in recovery.

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Residentials will be running throughout 2023. Here are the dates for the first two weekends: Friday 28th April–Monday 1st May (fully booked) Friday 12th May–Monday 15th May (spaces available) These spring dates are available for 18–25-year-olds with a cancer diagnosis. We welcome young people with o…

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Youth Cancer Trust provides free holidays for young people aged 14-30 living with or beyond cancer

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Free holidays for young people with cancer - wellbeing & therapeutic holidays for teenagers & young adults (14 to 30) living with & beyond cancer

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The Black Women Rising cancer support project was set up in 2019 by award-winning community champion Leanne Pero after she struggled with the aftermath of her own battle with breast cancer at just 30 years old.

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Discover the range of projects we offer at Black Women Rising to support women of color affected by breast cancer. From our monthly coffee mornings and nurse support line to our peer-to-peer support groups and empowering podcast we provide a range of services to help women connect, share their stories, and find the support they need.

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Mummy’s Star is the only charity in the UK and Ireland dedicated to women diagnosed with cancer during pregnancy or within 12 months of giving birth, and their families.

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Mummy’s Star is the only charity in the UK and Ireland specifically dedicated to supporting cancer in or around pregnancy.

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Camp Simcha exists to make a difference to all Jewish children and their families across the spectrum of Jewish observance

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Camp Simcha

Supporting Families Across the Community

Our vision is that no Jewish family, anywhere in the UK, with a child affected by serious illness should have to suffer without our support. Our mission is to provide bespoke, unconditional, practical and emotional support to Jewish families where there is serious childhood illness. We bring hope and joy by providing powerful, positive experiences.

Family members receive our support each year

Annually we need to raise c£3million to provide all our essential services

The number of different conditions we support

Hours of family liaison officer support

Get Involved

Get the latest news about how we're making a difference for seriously ill children and their families

Sign up to our email newsletter

How we use your information

From time to time, we may contact you by email, phone and post to keep you updated on our work and ways you can support us. You can change the way you hear from us at any time by emailing us at office@campsimcha.org.uk or calling us on 020 8202 9297. To help us to work more efficiently, we may analyse your information to make sure you receive the most relevant communications. This may include using publicly available information. You can ask us to stop this at any time, by contacting us using the above details. You can read more about how we use your information in our privacy policy.

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Camp Simcha's practical, therapeutic and emotional support is a lifeline to families with a seriously ill child.

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OUTpatients is the UK’s only LGBTIQ+ cancer charity.

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OUTpatients is the UK's Only LGBTIQ+ Cancer Charity. Proudly Led by and for LGBTIQ+ People Affected by Cancer. We Work Hard to Support & Advocate for our Community.

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Hosted by Tatum de Roeck, our podcast covers the hot topics and issues that we know get talked about A LOT.

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Cancer support charity for young people - Shine

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Podcast - Cancer support charity for young people - Shine

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This series of podcasts has been created by a group of young people with cancer sharing their lived experiences. We will hear powerful, authentic and detailed descriptions of how cancer has impacted their education, employment, friendships and wider relationships.

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Cancer can completely disrupt a young person’s life both during and beyond treatment. This series of podcasts has been created by a group of young people with cancer sharing their lived experiences. We will hear powerful, authentic and detailed description…

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Support specifically for Leukaemia patients

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Yasmin, who was diagnosed with Hodgkin lymphoma at the age of 25

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Cost of Living With Leukaemia Fund - Leukaemia UK

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Leukaemia UK is collaborating with Leukaemia Care to provide financial support to people affected by leukaemia and related blood cancers.

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Find out what support you can get if you're finding it hard to make ends meet.

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Turn2us is a national charity offering information and practical support to people facing financial insecurity. We help people gain access to welfare benefits, charitable grants and other support - online, by phone and face to face through our work in communities and the organisations we partner with.

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Do you have a Disability? Are you a parent or carer of a Disabled child or adult?
If so, use this website to save time finding Disability Grants.

Charities and Trusts provide funding towards the high cost of disability equipment, holidays, housing, days out.........in fact anything above and beyond the normal costs of everyday living.
Searching for extra funds takes time - in between work, hospital appointments, caring, therapies........
And the hundred and one other things we all have to juggle every day!

That's why Disability Grants is here to help YOU, your family or anyone you're supporting with a disability.
Discover what's available nationally and in your local area by searching the individual sections.
Here are some tips to get you started...

If you still can't find what you are looking for use the Site Search Box below or in the top right hand corner of every page in "Full Site" view.
This will search every page on the website for your keywords.
Popular Pages

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Disability Grants - Charitable Funding for the Disabled

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Do you have a Disability? Are you a parent or carer of a Disabled child or adult? If so, use this website to save time finding Disability Grants. Charities and Trusts provide funding towards the high cost of disability equipment, holidays, housing, days out.........in fact anything above and beyond the normal costs of everyday living.

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Family Fund believes that families raising disabled or seriously ill children and young people should have the same choices, quality of life, opportunities and aspirations as wider families.

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Family Fund deliver grants for families raising a disabled or seriously ill child or young people on a low income across the UK

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Personal Independence Payment (PIP) can help with extra living costs

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Personal Independence Payment ( PIP) can help with extra living costs if you have both:

You can get PIP even if you're working, have savings or are getting most other benefits.

You can also read about PIP in Welsh (Cymraeg).

How PIP works

There are 2 parts to PIP:

a daily living part - if you need help with everyday tasks

a mobility part - if you need help with getting around

Whether you get one or both parts and how much you get depends on how difficult you find everyday tasks and getting around.

Daily living part

You might get the daily living part of PIP if you need help with:

preparing food

eating and drinking

managing your medicines or treatments

washing and bathing

using the toilet

dressing and undressing

reading

managing your money

socialising and being around other people

talking, listening and understanding

Mobility part

You might get the mobility part of PIP if you need help with:

working out a route and following it

physically moving around

leaving your home

You do not have to have a physical disability to get the mobility part. You might also be eligible if you have difficulty getting around because of a cognitive or mental health condition, like anxiety.

How difficulty with tasks is assessed

The Department for Work and Pensions ( DWP) will assess how difficult you find daily living and mobility tasks. For each task they'll look at:

whether you can do it safely

how long it takes you

how often your condition affects this activity

whether you need help to do it, from a person or using extra equipment

Help with PIP

If you need help understanding or applying for PIP you can:

If you live in Scotland

You need to apply for Adult Disability Payment (ADP) instead of PIP.

If you currently get PIP, you'll be automatically moved to ADP by summer 2024.

When the move begins, you'll get letters from DWP and Social Security Scotland. Read more about the moving process.

If you move from Scotland to England or Wales

If you get ADP and move from Scotland to England or Wales, you must make a new claim for PIP instead.

Your ADP will stop 13 weeks after you move - apply for PIP as soon as possible after moving or your payments could be affected.

If you get Disability Living Allowance (DLA)

Disability Living Allowance (DLA) is being replaced by PIP for most adults. You'll keep getting DLA if:

you're under 16

you were born on or before 8 April 1948

If you were born after 8 April 1948, DWP will invite you to apply for PIP. You do not need to do anything until DWP writes to you about your DLA unless your circumstances change.

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Personal Independence Payment (PIP) replaces Disability Living Allowance (DLA) - how and when to claim, rates, eligibility.

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The Tom Bowdidge Youth Cancer Foundation give financial grants to teenagers and young people who are living with cancer.

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The Tom Bowdidge Youth Cancer Foundation give financial grants to teenagers and young people who are living with cancer. It is difficult enough for a young person to cope with the news they have cancer without the situation being made worse with additional money worries. In many cases parents often must give up their jobs in order to care for their sick son or daughter; this coincides with higher outgoings and increased expenditure.

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From Special Treats, our little boxes of joy, to Special Days at Home for all the family. From fun-packed Special Days Out to quiet Special Breaks away from it all; we offer the chance to meet heroes and legends or the opportunity to fulfil a lifelong dream.

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Willow supports young adults, aged 16 to 40, who are living with a life-threatening illness or life-limiting condition. We aim to support 1,200 seriously ill young adults in 2024, but the need is much greater.

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We're here to help you do things that you love, are meaningful to you, make you smile and make special memories!

Through our Live Well Programme you can receive:

Living Well Programme, Wellbeing Days & Breaks Away and Northern Events,

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Our Living Well Programme is designed to help make the things that matter to you accessible during and after cancer.

We value you as an individual and we are here to help you carry on doing the things you love! We know how important it is to have choice, and feel supported when going through cancer, our living well programme is designed to empower you be in control of your wellbeing and holistic needs. The Living Well Programme provides up to £100 of funded access to activities or equipment of you choice within one of the four categories listed below.

Wellbeing Days & Breaks Away

Getting away from day-to-day routines can help to boost energy levels, support physical and mental wellbeing and provide an opportunity to have lots of fun with family and friends.

We are working with some wonderfully supportive businesses in the leisure and holiday industry offering day trips and weekend get-aways for you to recharge, recuperate and regroup.

We work closely with TYA units and oncology wards in local hospitals keeping them updated with our latest breaks to help and support young people and their families.

The support of others who 'get it' can be invaluable.

Having a cancer diagnosis or supporting a young person with cancer can be isolating and can have a huge impact on relationships.

We recognise the need to connect with people who are going through, or have been through the same thing. We organise regular social meet-up days across Yorkshire and the North of England where you can take time out from daily life and hang out with like-minded friends, have fun and a good chat.

Ella Dawson Foundation

© The Ella Dawson Foundation Copyright 2022, All Rights Reserved.

The Ella Dawson Foundation is a registered charity: 1204154 (England and Wales).

Tel: 07418 613885

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living well with and beyond cancer, wellbeing breaks, wellbeing grant, Helping you do the things you love!

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At the Emily Ash Trust we are aware of the strain that a cancer diagnosis can put on the entire family. We are here to help you and your family during this time.

It’s really important to use that your whole family is supporting – parents and siblings are just as important as your child undergoing treatment.

We have a range of activities suited to families and that cater to all ages.

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At the Emily Ash Trust we are aware of the strain that a cancer diagnosis can put on the entire family. We are here to help you and your family during this time.

It's really important to use that your whole family is supporting - parents and siblings are just as important as your child undergoing treatment.

We have a range of activities suited to families and that cater to all ages.

Once you register with us, you become part of the extended Emily Ash family and will be invited along to our calendar of activities that might be of interest.

These activities are a great way to meet families who have similar experiences, but most importantly they are a great way to bring some happy memories and smiles during what can be a difficult time.

Here's some examples of the activities we run for families of EAT:

Holidays and short trips

The day-to-day strain of caring for a child with cancer can be overwhelming at times and we understand how important a little break can be.

We can organise special days out for the whole family - from theme park trips, theatre days out to sight-seeing tours. If it's a longer break you need, that's possible too.

We provide long weekend and short holiday breaks to the beautiful Crowhurst Park in Battle, near Hastings. Located deep in the heart of the East Sussex countryside, Crowhurst Park is the perfect place for families to relax and revive. The park has it's own leisure centre with indoor pool, jacuzzi, steam room, gym and exercise classes.

We also consider requests for other holiday parks and resorts.

If you'd like more information about our activities, family events or short breaks please fill in our contact form.
Get In Touch!

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At the Emily Ash Trust we are aware of the strain that a cancer diagnosis can put on the entire family. We are here to help you and your family during this time. It's really important to use that your whole family is supporting - parents and siblings are just as important as your child [...]

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Art is important in every child’s development. It encourages children to express their creativity, develop motor skills and heightens their ability to communicate and problem solve. For children in hospital art related projects and activities also provide a welcome distraction from treatment and the hospital environment.

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The Dream Factory aims to brighten the lives and encourage hope for children and young adults aged between three  and twenty five  years who have life-limiting or life-threatening conditions and / or severe disabilities by way of granting wishes and dreams.

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A's Dream

The Dream Factory received a Dream Request from a nine-year old boy who was diagnosed with Leukaemia, who wanted to stay overnight at the amazing Legoland Windsor Resort.

The Dream Factory organised a fabulous one night break at the Legoland Knights Castle including two day park tickets, spending money, mini golf and other special surprises.

The family had a fabulous little break creating magical memories that will last forever.

NB Due to no publicity we are unable to share any personal details or images of the Dream Recipient

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Granting wishes and dreams to children and young people with life limiting or life-threatening conditions or severe disabilities.

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Each year deserving children aged 8 to 14 with a wide range of illnesses and disabilities are nominated for Dreamflight. If selected, it’s the start of a magical once-in-a-lifetime experience.

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We run a series of group workshops covering Skincare & Makeup, Hand & Nail Care and Men’s Grooming all led by trained experts and lasting up to two hours.

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Would you like to have some fun and meet others going through the same as you? Look Good Feel Better is here to help you! We run a series of group workshops covering Skincare & Makeup, Hand & Nail Care and Men’s Grooming all led by trained experts and lasting up to two hours. Every... View Article

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Dealing with cancer at a young age is a tough gig. That’s why we’re determined to help you Get Heard. Your voice matters. Your story matters. And sharing can help shape the future of people like you

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By clicking "Accept All Cookies", you agree to the storing of cookies on your device to enhance site navigation, analyze site usage, and assist in our marketing efforts. View our Privacy Policy for more information.

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Dealing with cancer at a young age is a tough gig. That's why we're determined to help you Get Heard. Your voice matters. Your story matters. And sharing can help shape the future of people like you

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Teenage Cancer Trust Creative and Campaigns Group

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Teenage Cancer Trust Creative and Campaigns Group

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If you’re young and have been through cancer, your voice is vital to Teenage Cancer Trust.

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Join our Creative & Campaigns Group | Teenage Cancer Trust

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Join our Creative & Campaigns Group for the chance to have your voice heard, learn new skills and help us make the biggest impact with our work.

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Providing advice and support, including offer skin camouflage services

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Services For People With Disfigurements | Changing Faces

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Learn about Skin Camouflage and our other specialist wellbeing services, including our support line, Online Community and one-to-one sessions.

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Steel Bones supports amputee families to live life to the full, overcoming the trauma of amputation

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Steel Bones - Dedicated to civilian amputees

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The NHS does a fantastic job of managing people's health, treating the serious conditions leading to amputation and in the recovery afterwards. On leaving hospital amputees and their families may face many challenges:

Loss of employment

Finance and housing issues

Amputees or their families not accepting the change

A loss of self-purpose

Bullying for children

Everyone is different and this is where the Steel Bone's community can help amputees and their families adapt to the changes in their lives from before the amputation takes place to many years afterwards. We provide a range of services to support your patients.

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The NHS does a fantastic job of managing people's health, treating the serious conditions leading to amputation and in the recovery afterwards.

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If you or someone you care about has been diagnosed with cancer, we're here to help. Use our search to find support and information about cancer.

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If you or someone you care about has been diagnosed with cancer, Macmillan Cancer Support are here to help. Get information and support about cancer.

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From topics such as navigating friendships through cancer, to sexual health information, Trekstock Resource Bank holds lots of information for young people living with and beyond cancer

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We’ve put together the ultimate resource bank for you. So you can find answers to the questions keeping you up at night.

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We’ve got programmes to get you connected, active, informed and heard - to support your physical and mental wellbeing. We’re here for you, from diagnosis to treatment and beyond.

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Whatever type of cancer, whatever stage you’ve been diagnosed at, find people just like you in our thriving community.

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Get help from our Social Care team today. Speak to us using Live Chat on the website (Monday – Friday 10am – 4pm), chat over the phone or drop us an email and we'll get back to you.

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Skip to content

Get help from our Social Care team today. Speak to us using Live Chat on the website (Monday - Friday 10am - 4pm), chat over the phone or drop us an email and we'll get back to you.

If you need urgent help out of hours, please contact one of the services in the Urgent help section below.

If you're under 25 and going through cancer or know someone who is, our team are here for you. They'll answer any queries and offer support, whether it's money problems, benefits, emotional support or living with cancer in general.

You can either message us on Live Chat, call our team on 0300 303 5220 or email us at getsupport@younglivesvscancer.org.uk

Our team is on hand from 10am to 4pm Monday to Friday or if you have a social worker you can also speak to them.

Urgent help

We are unable to offer a 24/7 support service. If you need help urgently there are a number of organisations you can contact. If someone's life is at risk and/or you do not feel you can keep yourself or someone else safe call 999 or go to your nearest A&E immediately.

Samaritans

Whatever you are going through, you can contact the Samaritans for support 24/7. Email jo@samaritans.org or call 116 123.

Young Minds Textline

They provide free, 24/7 text support for young people across the UK experiencing a mental health crisis. Text YM to 85258. Find our more about Young Minds Textline

The Mix - Crisis Messenger

The Mix's crisis messenger text service provides free 24/7 crisis support across the UK to those 25 and under. Text THEMIX to 85258

Mental Health Support in England

Find your nearest urgent mental health support service in England

Mental health support in Wales, Scotland and Northern Ireland

For Wales: The Mental Health Helpline offers a confidential listening and support service - open 24/7. Call 0800 132 737 or text HELP to 81066. Visit the Mental Health Helpline website.

For Scotland: https://www.nhsinform.scot/illnesses-and-conditions/mental-health/mental-health-support/mental-health-services-at-nhs-24

For Northern Ireland: https://www.mindingyourhead.info/services

Support with debt

StepChange's online debt advice service is available 24 hours a day, seven days a week. You can also call them on 0800 138 1111 from 8am to 8pm Monday to Friday, or 8am to 4pm on Saturdays.
Visit StepChange's website
How to find Live Chat

To talk to someone on Live Chat just click on the pink 'chat to us' button at the bottom right of this page and have a chat to our team.

Live Chat is available from 10am to 4pm Monday to Friday. You can still send us a message outside of these hours and we'll get back to you as soon as we can when we're live again.

You might also like...

Join one of our Facebook groups

Join one of Young Lives vs Cancer's Facebook groups to meet others with similar experiences, share your views and have your voice heard.

Find out more

Meet our social workers

Our social workers are experts in helping families handle the day-to-day challenges that come with a child's cancer diagnosis.

Read More

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If you're under 25 and going through cancer or know someone who is, our expert social care team is here for you.

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This piece of art has been created by a young person who has experienced cancer treatment at UCLH.

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We've produced a series of guides and podcasts for parents and carers about emotional support for children and young people with vision impairment.

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We've produced a series of guides and podcasts for parents and carers about emotional support for children and young people with vision impairment.

Children and young people with vision impairment experience the same everyday experiences, feelings and reactions as their sighted peers. There may also be some particular issues relating to having a vision impairment, where it is helpful for parents, siblings, friends, family and other people to give support.

Parents tell us that one of the most difficult parts of finding out that their child has a vision impairment is knowing how to talk about it with their child. We've produced this guidance to support parents and carers as they think about this issue.

Emotional Support Podcasts

We understand that children and young people with vision impairment can face hurdles and challenges as they grow, live and learn.

We've recently added to our series of podcasts for parents and carers about emotional support for children and young people with vision impairment.

Members of our CYPF & Education support team speak to NHS Clinical Psychologist, Ian McCubbin. Ian is part of a team working in hospitals across the UK to provide specialist services to children and young people with VI which are funded by Fight Against Blindness.

We discuss advice, strategies and suggestions on a range of issues that young people and parents frequently ask us about. For each podcast, there is follow-on information.

If you would like advice and support from our Family Support Officers about any of the issues covered in the podcast series, please contact us via the Helpline 0303 123 9999 or email [email protected] .

Podcasts Series 1

Listen now
In this podcast, we explore why confidence, self-esteem and resilience are important when considering child development and ways to encourage all three attributes.

Further information

Listen now
Parents tell us that knowing how to talk about it with their child is one of the most difficult and distressing parts of finding out their child has a vision impairment. We look at the importance of having a conversation with a child and how to prepare.

Further information

Listen now
For children and young people with a vision impairment and their parents and carers, talking to other people about an eye condition can cause concern. We look at preparing for a conversation and some factors to consider.

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In light of the COVID-19 pandemic and available support, this podcast looks at the challenges of isolation and anxiety.

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Managing a child's behaviour can sometimes be difficult for parents and families, but lockdown and other restrictions have presented new challenges to cope with. In this podcast, we look at behaviour specific to a child with a vision impairment and the strategies you can use if you need to manage behaviour in difficult circumstances.

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Finding out a child has a vision impairment can lead to varying emotional responses. We look at these and explore some practical advice in how to support the whole family.

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Podcasts Series 2

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Emotional support for children and young people with vision impairment

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We've produced a series of guides and podcasts for parents and carers about emotional support for children and young people with vision impairment.

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Search for support by your postcode, tumour group, or age group to find local groups

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04 August 2023 - Roland Monger

Navigating Cancer | Guest Blog

Navigating cancer is different for every cancer journey. Our latest guest post is from Roland Monger author of My Big Toe is Killing Me. His book follows the four-and-a-half-year cancer journey of a dad, husband, stepdad, colleague, friend, brother, son and blogger.

19 July 2023 - Dotplot

Dotplot Participant Request for Upcoming Workshop | Guest Post

Dotplot is holding workshops to build their mobile app experience so that it meets the needs of people who have had a breast cancer incidence. The aim is to discover, brainstorm and co-create various features that should be offered via their app.

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04 August 2023 - Roland Monger Navigating cancer is different for every cancer journey. Our latest guest post is from Roland Monger author of My Big Toe is Killing Me. His book follows the four-and-a-half-year cancer journey of a dad, husband, stepdad, colleague, friend, brother, son and blogger.

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Maggie’s is a charity that provides free expert care and support in centres across the UK and onl

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Maggie's | Everyone's home of cancer care

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Maggie's is a charity that provides free expert care and support in centres across the UK and online.

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This is the North London, Essex and Herts Network website for young people with cancer.

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Cancer - Teenage and Young Adult - North Thames Paediatric Network

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Home Networks & Workstreams Cancer – Teenage and Young Adult Cancer – Teenage and Young Adult The North Thames TYA Cancer Network aims to support young patients, aged between 13-24 with a cancer diagnosis. The Network extends across North London, Essex and Hertfordshire and sees more referrals than any other region. The Network is supported […]

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For young adults with leukaemia, lymphoma or any type of blood cancer:

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For young adults with leukaemia, lymphoma or any type of blood cancer: your guide to treatment, side effects, coping with emotions, friends and work or studying. Watch young people share their experiences and tips on how to get through it. And find out what you need to know about being young and having blood cancer.

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Blood Cancer UK | Blood cancer and young adults

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For young adults with leukaemia, lymphoma or any type of blood cancer: your guide to treatment, side effects, coping with emotions, friends and work or studying. Watch young people share their experiences and tips on how to get through it. And find out what you need to know about being young and having blood cancer.

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After a blood cancer diagnosis, we know how important information is to help you understand what you are about to go through. Whether you are a patient or a carer, we are dedicated to ensuring that anyone affected by blood cancer receives the right information, advice and support.

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Support and information - Leukaemia Care

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After a blood cancer diagnosis, we know how important information is to help you understand what you are about to go through.

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Whether you’ve recently been diagnosed or are living with lymphoma, you can count on us to support you and your
family from diagnosis, through treatment and beyond

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Thank you for your support.

Time to dust off your Christmas accessories and show you support for people affected by lymphoma.

The Blood Cancer Alliance (BCA) hosted a roundtable on unmet needs of ethnic minority patients in blood cancer.

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We are the UK's only charity dedicated to lymphoma, the fifth most common cancer. We've been providing expert information and support for over 30 years, helping thousands of people. We are here for you, however you are affected by lymphoma.

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Leukaemia doesn’t discriminate. It affects people of all ages – from children to grandparents. Every day in the UK, 27 people – 10,000 a year – are told the news that they have leukaemia.

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Leukaemia UK funds research into all blood cancers including lymphoma and myeloma, and essential care and facilities for blood cancer patients and their families.

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If you have experience of a brain tumour diagnosis made before the age of 25, then we are your voice, and your support. Lifelong.

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We provide personalised brain tumour support, to help you live life with a brain tumour.

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The number or rate (per head of population) of new cases of a disease diagnosed in a given population during a specified time period (usually a calendar year). The crude rate is the total number of cases divided by the mid-year population, usually expressed per 100,000 population.
Malignant
Malignant tumours which grow by invasion into surrounding tissues and have the ability to metastasise to distant sites
Mortality
The number or rate (per head of population) of deaths in a given population during a specified time period (usually a calendar year). The crude rate is the total number of deaths divided by the mid-year population, usually expressed per 100,000 population.
Non-malignant
Not cancerous. Non-malignant tumours may grow larger but do not spread to other parts of the body.
Survival
The length of time from the date of diagnosis for a disease, such as cancer, that patients diagnosed with the disease are still alive. In a clinical trial, measuring the survival is one way to see how well a new treatment works. Also called 'overall survival' or 'OS'.
Routes to Diagnosis
Under the 'Routes to Diagnosis' tab in the Brain Tumour Data Dashboard, you can explore the ways patients have been diagnosed with brain tumours. There are many ways, or routes, for cancers to be diagnosed in the NHS. A 'route to diagnosis' is the series of events between a patient and the healthcare system that leads to a diagnosis of cancer. The routes include:

Patients are urgently referred by their GP for suspected cancer via the Two Week Wait system and are seen by a specialist within 2 weeks where they are diagnosed.

Diagnosis via a GP referral includes routine and urgent referrals where the patient was not referred under the Two Week Wait system.

Cancers can be diagnosed via emergency situations such as via A&E, emergency GP referral, emergency transfer or emergency admission.

Outpatient cancer diagnoses include diagnoses via an elective route which started with an outpatient appointment that is either a self-referral or consultant to consultant referral. (It does not include those under the Two Week Wait referral system).

Diagnosis via an inpatient elective route is where diagnosis occurs after the patient has been admitted into secondary care from a waiting list, or where the admission is booked or planned.

Diagnoses made by Death Certificate Only are made where there is no more information about the cancer diagnosis other than the cancer related death notifications. The date of diagnosis is the same as that of the date of death.

For some patients with a cancer diagnosis, there is no relevant data available to understand the route to diagnosis.
More information
If any of the statistical terms in this section of the brainstrust website are hard to understand, we recommend looking them up here:

Cancer Research UK's Cancer Statistics Explained
http://www.cancerresearchuk.org/health-professional/cancer-statistics/cancer-stats-explained/statistics-terminology-explained#heading-Seven
If you are looking for help understanding terms relating specifically to brain tumours, and treatment, then the brainstrust glossary is available here:
https://www.brainstrust.org.uk/advice-glossary.php

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Home - Brainstrust, brain tumour charity

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The number or rate (per head of population) of new cases of a disease diagnosed in a given population during a specified time period (usually a calendar year). The crude rate is the total number of cases divided by the mid-year population, usually expressed per 100,000 population.

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We are the leading charity dedicated to fighting primary bone cancer and are uniquely placed to make a difference through research, information, awareness and support.

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The work of the Bone Cancer Research Trust is so valuable, especially to me. If I had not gone to get my lump checked after reading their website then there is a high chance that I wouldn't be here today
Lauren, who was diagnosed with Spindle Cell Sarcoma of the Bone aged 29.

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Sarcoma UK is a national charity that funds vital research, offers support for anyone affected by sarcoma cancer and campaigns for better treatments. It is the only cancer charity in the UK focusing on all types of sarcoma.

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We provide support and information for all types of sarcoma cancer; bone cancer, soft tissue cancer and GIST. Call our Support Line for help and advice 0808 801 0401.

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Sharing experiences of cancer creatively

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Videos for cancer patients made by cancer patients. Views and experiences that the doctors can't tell you.

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The Robin Cancer Trust | Germ Cell Cancer Charity | Raising Awareness for Young People

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Raising awareness - The Robin Cancer Trust educate young people on the signs & symptoms of testicular cancer and ovarian cancer through our award-winning digital campaigns and life-saving events.

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Support awareness research

Everyone needs help after a breast cancer diagnosis. Future Dreams Breast Cancer Charity offers practical and emotional support as well as funding vital research and promoting breast awareness.

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WHAT WE DO

Future Dreams funds research into secondary breast cancer provides practical and emotional support for those touched by the disease and saves lives by early detection.

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Over 50,000 people are diagnosed with breast cancer in the UK every year, the equivalent of one person every 10 minutes according to Breast Cancer Care.

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Everyone needs help after a breast cancer diagnosis. Future Dreams Breast Cancer Charity offers practical and emotional support as well as funding vital research and promoting breast awareness. No one should have to face breast cancer alone.

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We're here to make sure that by 2050 everyone diagnosed with breast cancer lives, and is supported to live well.

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About the event

You might feel like you're the only younger woman with breast cancer. But you're not alone.

If you're aged 20 to 45, Younger Women Together is for you. You'll have the chance to meet other women your age who understand the challenges you're facing. And you'll get tailored information and talks on topics like relationships, exercise and fertility.

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If you're a younger woman with breast cancer, you're not alone. Young Women Together is a space to meet women who understand and get tailored support.

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We offer a range of information and support you might find useful

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Our campaign is giving younger patients a voice and changing clinical practice and policy to stop younger people dying of bowel cancer.

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At Melanoma UK, we believe it is vital to proactively use evidence in our advocacy work.

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Melanoma UK is a patient support and advocacy group. If you are a melanoma patient or carer and need help or support, please get in touch.

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Cancer treatment myths: Any truth to these common beliefs?

Misconceptions about cancer treatment might make you feel confused or unsure when choosing a treatment. Learn the truth so that you can feel more comfortable with your cancer treatment.
By Mayo Clinic Staff
Research advances have improved cancer treatment to make it more effective and to reduce side effects. Yet some misleading ideas about cancer treatment still persist. Here's a look at common misconceptions about cancer treatment and explanations to help you understand the truth.

Myth: A positive attitude is all you need to beat cancer

Truth: There's no scientific proof that a positive attitude gives you an advantage in cancer treatment or improves your chance of being cured.

What a positive attitude can do is improve the quality of your life during cancer treatment and beyond. You may be more likely to stay active, maintain ties to family and friends, and continue social activities. In turn, this may enhance your feeling of well-being and help you find the strength to deal with your cancer.

Myth: If we can put a man on the moon, we should have cured cancer by now

Truth: Finding the cure for cancer is proving to be more complex than mastering the engineering and physics required for spaceflight.

Cancer actually includes a large group of diseases. Each person's cancer may have many different causes. Despite advances in diagnosis and treatment, doctors still have much to learn about what triggers a cell to become cancerous and why some people who have cancer do better than others.

In addition, cancer is a moving target. Cancer cells may continue to mutate and change during the course of the disease. This may lead to the cancer cells no longer responding to the chemotherapy drugs or radiation treatments that were given initially.

Myth: Drug companies and the U.S. Food and Drug Administration (FDA) are blocking or withholding new cancer treatments

Truth: Your doctor and the FDA, which must approve new drugs before they can be given to people who aren't enrolled in clinical trials, are your allies. As such, they make your safety a high priority.

Unfortunately, scientific studies to determine the safety and effectiveness of new cancer treatments take time. That may create the appearance or lead to reports that effective new treatments are being blocked.

Doctors often go into cancer research because they have a family member or friend affected by the disease. They are as interested in finding a cure as anyone else, for the same reason - it affects them personally. They hate to see a loved one in pain and don't wish to lose this person. They also want to spare others what they have gone through.

Myth: Regular checkups and today's medical technology can detect all cancer early

Truth: Although regular medical care can indeed increase the ability to detect cancer early, it can't guarantee it. Cancer is a complicated disease, and there's no sure way to always spot it.

Routine screening has been linked to a decrease in deaths from cancers of the prostate, cervix, breast, lung, colon and rectum.

Myth: Undergoing cancer treatment means you can't live at home, work or go about your usual activities

Truth: Most people who have cancer are treated on an outpatient basis in their home communities.

At times it may be helpful to travel to a specialty medical center for treatment. But often, doctors at such a medical center can work with doctors in your hometown so that you can be with your family and friends.

Sometimes, people may desire to take time away from work to focus on health. Many times it is possible to resume or continue to work.

A lot of research has gone into making it easier for people to live more-normal lives during their cancer treatment. For example, drugs are now available to help better control nausea and exercise programs are encouraged. The result is that you're often able to work and stay active during your treatment.

Myth: Cancer is always painful

Truth: Some cancers never cause pain.

For people who do experience cancer pain, especially people who have advanced cancer, doctors have become more aware of the need to control such pain and have learned better ways to manage it. Although all pain may not be eliminated, the goal is to control the pain so that it has little impact on your daily routine.

Myth: A needle biopsy can disturb cancer cells, causing them to travel to other parts of the body

Truth: For most types of cancer, there's no conclusive evidence that a needle biopsy - a procedure used to diagnose many types of cancer - causes cancer cells to spread.

There are exceptions, though, of which doctors and surgeons are aware. For instance, a needle biopsy usually isn't used in diagnosing testicular cancer. Instead, if a doctor suspects testicular cancer, the testicle is removed.

Myth: Surgery causes cancer to spread

Truth: There is no evidence that indicates surgery can cause cancer to spread. Don't delay or refuse treatment because of this myth. Surgically removing cancer is often the first and most important treatment.

Some people may believe this myth because they feel worse during recovery than they did before surgery.

Myth: Everyone who has the same kind of cancer gets the same kind of treatment

Truth: Your doctor tailors your treatment to you. What treatment you receive depends on where your cancer is, whether or how much it has spread, how it's affecting your body functions, your general health, and other factors.

More and more, cancer treatment is being tailored based on genetic testing on your cancer cells. Specific changes or mutations in your cancer cells may help guide your treatment. Also, cancer treatments may depend on the genes that you're born with. Certain genes may show that your body processes certain chemotherapy treatments and drugs differently than someone else's body.

Myth: Everyone who has cancer has to have treatment

Truth: It's up to you whether you want to treat your cancer. You can decide this after consulting with your doctor and learning about your options.

A person who has cancer might choose to forgo treatment if he or she has:

A slow-growing cancer. Some people who have cancer might not have any signs or symptoms. Lab tests might reveal that the cancer is growing very slowly. These people might choose to wait and watch the cancer. If it suddenly begins growing more quickly, treatment is always an option.

Other medical conditions. If you have other significant illnesses, you may choose not to treat your cancer, as the cancer may not be the biggest threat to your health. This may be especially true in the case of a slow-growing cancer.

A late-stage cancer. If the burden of treatment side effects outweighs the benefit that treatment can bring, you might choose not to be treated. But that doesn't mean your doctor will abandon you. Your doctor can still provide comfort measures, such as pain relief.

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Show references

1. Attitudes and cancer. American Cancer Society. http://www.cancer.org/cancer/cancer-basics/attitudes-and-cancer.html. Accessed Feb. 3, 2020.

2. Cheng CT, et al. Cancer-coping profile predicts long-term psychological functions and quality of life in cancer survivors. Supportive Care in Cancer. 2019; doi:10.1007/s00520-018-4382-z.

3. Stubblefield MD. Cancer Rehabilitation: Principles and Practice. 2nd ed. Demos Medical; 2018.

4. Giridhar K (expert opinion). Mayo Clinic. Feb. 4, 2020.

5. Siegel RL, et al. An assessment of progress in cancer control. CA: A Cancer Journal for Clinicians. 2018; doi:10.3322/caac.21460.

6. Van Everdingen MHJ, et al. Update on prevalence of pain in patients with cancer: Systematic review and meta-analysis. Journal of Pain and Symptom Management. 2016; doi:10.1016/j.jpainsymman.2015.12.340.

7. Common cancer myths and misconceptions. National Cancer Institute. https://www.cancer.gov/about-cancer/causes-prevention/risk/myths. Accessed Feb. 3, 2020.

8. Steele GS, et al. Clinical manifestations, diagnosis and staging of testicular germ cell tumors. https://www.uptodate.com/contents/search. Accessed Feb. 3, 2020.

9. Lissoni P, et al. The personalization of cancer cure: Reality or illusion. Journal of Medical Oncology. 2018;1:9.

10. Van Hemelrijck M, et al. Quantifying the transition from active surveillance to watchful waiting among men with very low-risk prostate cancer. European Urology. 2016; doi:10.1016/j.eururo.2016.10.031.

See more In-depth

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Cancer treatment myths: Any truth to these common beliefs?

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Misconceptions about cancer treatment might make you feel confused or unsure when choosing a treatment. Learn the truth so that you can feel more comfortable with your cancer treatment. By Mayo Clinic Staff Research advances have improved cancer treatment to make it more effective and to reduce side effects.

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Let’s get to the bottom of it – 7 common cancer myths, unpicked - Cancer Research UK - Cancer News

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There are cancer myths and misconceptions about bras, deodorant, 5G, mobile phones, diet and more. Here’s what the evidence actually shows.

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Certain popular ideas about how cancer starts and spreads-though scientifically wrong-can seem to make sense, especially when those ideas are rooted in old theories. But wrong ideas about cancer can lead to needless worry and even hinder good prevention and treatment decisions. This page provides the latest science-based information about some common cancer myths and misconceptions.

Is cancer a death sentence?

In the United States, the likelihood of dying from cancer has dropped steadily since the 1990s. Five-year survival rates for some cancers, such as breast, prostate, and thyroid cancers, now are 90 percent or better. The 5-year survival rate for all cancers combined is currently about 68 percent. For more information, see the Annual Report to the Nation on the Status of Cancer.

It is important to note, however, that these rates are based on data from large numbers of people. How long an individual cancer patient will live and whether he or she will die from the disease depend on many factors, including whether the cancer is slow or fast growing, how much the cancer has spread in the body, whether effective treatments are available, the person's overall health, and more.

Is cancer contagious?

In general, no. Cancer is not a contagious disease that easily spreads from person to person. The only situation in which cancer can spread from one person to another is in the case of organ or tissue transplantation. A person who receives an organ or tissue from a donor who had cancer in the past may be at increased risk of developing a transplant-related cancer in the future. However, that risk is extremely low-about two cases of cancer per 10,000 organ transplants. Doctors avoid the use of organs or tissue from donors who have a history of cancer.

In some people, cancers may be caused by certain viruses (some types of human papillomavirus, or HPV, for example) and bacteria (such as Helicobacter pylori). While a virus or bacterium can spread from person to person, the cancers they sometimes cause cannot spread from person to person. For more information about cancer-causing viruses and bacteria, see the NCI fact sheet on Helicobacter pylori and Cancer and our pages on HPV and Cancer and Infectious Agents.

Will cancer get worse if exposed to air?

No. Exposure to air will not make tumors grow faster or cause cancer to spread to other parts of the body. For information about how cancer spreads in the body, see our page on Metastatic Cancer.

Do power lines cause cancer?

No, not according to the best studies completed so far. Power lines emit both electric and magnetic energy. The electric energy emitted by power lines is easily shielded or weakened by walls and other objects. The magnetic energy emitted by power lines is a low-frequency form of radiation that does not damage genes. For more information, see the NCI fact sheet on Electromagnetic Fields and Cancer.

If someone in my family has cancer, am I likely to get cancer, too?

Not necessarily. Cancer is caused by harmful changes (mutations) in genes. Only about 5 to 10 percent of cancers are caused by harmful mutations that are inherited from a person's parents. In families with an inherited cancer-causing mutation, multiple family members will often develop the same type of cancer. These cancers are called "familial" or "hereditary" cancers.

The remaining 90 to 95 percent of cancers are caused by mutations that happen during a person's lifetime as a natural result of aging and exposure to environmental factors, such as tobacco smoke and radiation. These cancers are called "non-hereditary" or "spontaneous" cancers. For more information about the risk of getting cancer, see the NCI fact sheet on Genetic Testing for Inherited Cancer Susceptibility Syndromes and Cancer Causes and Risk Factors.

If no one in my family has had cancer, does that mean I'm risk-free?

No. Based on the most recent data, about 38 percent of men and women will be diagnosed with cancer at some point during their lives. Most cancers are caused by genetic changes that occur throughout a person's lifetime as a natural result of aging and exposure to environmental factors, such as tobacco smoke and radiation. Other factors, such as what kind of food you eat, how much you eat, and whether you exercise, may also influence your risk of developing cancer. For more information, see Cancer Causes and Risk Factors.

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Certain popular ideas about how cancer starts and spreads-though scientifically wrong-can seem to make sense, especially when those ideas are rooted in old theories. But wrong ideas about cancer can lead to needless worry and even hinder good prevention and treatment decisions. This page provides the latest science-based information about some common cancer myths and misconceptions.

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University College London Hospitals NHS Foundation Trust

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About RLHIM : University College London Hospitals NHS Foundation Trust

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The Royal London Hospital for Integrated Medicine (RLHIM) is part of University College London Hospitals NHS Foundation Trust and is Europe’s largest public sector centre for integrated medicine.

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TYAC - Teenagers and Young Adults with Cancer's website

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Welcome to the online home of the TYAC, the Teenagers and Young Adults with Cancer's website.

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Returning to school or college after a brain tumour diagnosis can be challenging. Find out more about our education resources.

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Trust Links is a local independent charity aiming to improve mental health, wellbeing and the environment in Essex.

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Welcome

Trust Links is South East Essex's local independent charity for mental health and wellbeing. We offer therapeutic gardening, recovery classes, social activities, employment training, and more to people living with mental health conditions. We support around 1,500 people in Southend, Castle Point and Rochford each year. We're committed to building stronger communities and promoting sustainable living.

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Trust Links is South East Essex's local independent charity for mental health and wellbeing. We offer therapeutic gardening, recovery classes, social activities, employment training, and more to people living with mental health conditions. We support around 1,500 people in Southend, Castle Point and Rochford each year.

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Free Gifts and Experiences for people financially affected by cancer

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Something To Look Forward – For cancer patients, their families and carers

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Free Gifts and Experiences for people financially affected by cancer A charity website for people with cancer, and their families, to access a variety of gifts and experiences that are generously donated by companies and individuals. Find anything from restaurant meals, hotel stays, beauty

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1-2-1 coaching for working carers who are not funded by their employer and to their partners/spouses, over the phone or face to face

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Coaching We offer confidential 1-2-1 coaching for working carers who are not funded by their employer and to their partners/spouses, over the phone or face to face. We use a variety of coaching approaches to address the physical and psychological impact of cancer. Our coaching significantly complements and enhances EAP and other counselling services. Watch… [Read More]

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Whether you're dating, in a serious relationship, having a bit of fun or committed to be together for the rest of your lives, when your partner's diagnosed with cancer it can bring some big challenges along.

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When your husband, wife, girlfriend, boyfriend or partner has cancer it can be difficult to know what to do. Supporting someone with cancer is tricky but we’re here to help

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An information guide for teenagers and young adults whose sibling is diagnosed with cancer

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The community for people with cancer. By people with cancer.

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The Alike app

A game-changing peer support platform.

Living with cancer can be lonely. Speaking to others who have been there, done that, and worn the unflattering hospital gown makes all the difference. That's what the Alike app is for.

It's a place to share, connect, vent or show off (if that's your thing). Whatever you need to do, whenever you need to do it, we're here. So jump in.

Why we exist

Making an inclusive space where people can connect.

Even with all the tech around us, the fact is, there's no dedicated space for young people with cancer to get to know each other online. So, we created one. And we used our firsthand experience to make sure it works - whoever you are and whatever stage of the journey you're at. Hear more from our founder, Brad.

young people are diagnosed with cancer every year

Thank you

To all our amazing partners, donors and fundraisers.

Your support has made this community a reality and you can't put a price on that. Find out how you can support Alike's mission. We'll love you for it, like, forever.

Let's talk

We're all about a good natter.

Got a question? An idea? Or just want to get something off your chest? Drop us a message and your details and we'll get back to you as soon as we can.

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Alike | The community for (and by) people with cancer

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The Alike app A game-changing peer support platform. Living with cancer can be lonely. Speaking to others who have been there, done that, and worn the unflattering hospital gown makes all the difference. That's what the Alike app is for. It's a place to share, connect, vent or show off (if that's your thing).

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The mental wellbeing of young  people diagnosed with cancer and their support network is at the heart of everything we do

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Gift Aid does not cost you a penny more, but can add an additional 25p to every £1 you donate. When Mind Over Cancer receives a donation from a UK taxpayer, we're entitled to claim an amount of tax (calculated at the basic rate of income tax in that year) paid on that donation. Once you have given your permission for us to do this on your behalf, there is no need for you to do anything else.

All that is required is that you must be a taxpayer and that would have paid or will pay sufficient Income and/or Capital Gains Tax to cover all the Gift Aid claimed on all your donations in that tax year. Please note that it is your responsibility to pay any difference.

The amount of tax we claim will be 25% of the total value of your donations in that tax year. Furthermore, if you are a higher taxpayer, you are also entitled to claim the difference between the basic rate which we will claim and the amount of tax you have actually paid. For further details on how you can do this, please contact your tax office. If your tax situation changes and your gifts will no longer be eligible for the Gift Aid scheme please contact us and we will amend your record accordingly.

Take me to my donation "

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Mind Over Cancer - We're here when you are ready to talk

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Gift Aid does not cost you a penny more, but can add an additional 25p to every £1 you donate. When Mind Over Cancer receives a donation from a UK taxpayer, we're entitled to claim an amount of tax (calculated at the basic rate of income tax in that year) paid on that donation.

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We provide telephone and online counselling for young people who are living with cancer, and their families.

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Counselling service details - Flynnes Barn

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We provide telephone and online counselling for young people who are living with cancer (see criteria below). There is also telephone and online support for family members (see criteria below). Young people living with serious ill-health may experience isolation and worry about their mental health. Access to mental health services is difficult and involves long […]

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Are you a young adult aged 16-30 who has either received a brain tumour diagnosis or is affected by a loved one’s diagnosis? Our Young Adults Service is here for you.

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Learn about our Young Adults Service. This is practical and emotional support for those aged 16-30 affected by a brain tumour. Read more.

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We’ve co-designed these pages with young people across the UK, to share your stories, and experiences and bring you the information that you need to know.

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On this page, you'll find information on a wide range of issues that are important to blind and partially sighted young people.

School life and planning ahead

Our school life and planning ahead section covers choosing subjects, exams and study skills, after-school clubs and activities as well as how to start planning for life after school and moving on to college or work.

Leaving home

Moving out of home for the first time? Whether you are off to college or university or just taking those first steps to living independently, we can help you get prepared. You will find information on getting around and developing mobility skills as well as money management and learning useful cooking tips from students!

Starting college

If you are thinking about going to college then have a look at our starting college section. Find information on choosing the right college for you, what support is available at college and funding advice. You will also find useful study tips and hear about other student's experiences of starting college.

Starting university

There are lots to think about before going to university. You need to find the right course, get clear on application processes and it's handy to know where you can get financial help. Read on and you will discover lots of practical support for anything from choosing the right university and funding advice to how to make the most of student life!

Starting work

Starting work may seem daunting, but this section will help you to identify the people who can advise you about career choices, help with interview preparation, give guidance about work experience and volunteering and advise about the support mechanisms available, such as the Access to Work scheme.

Free time

Not sure what to do in your free time? Find ideas and inspiration and learn about what other young people are doing. From sports and hiking to reading and going to the cinema, there is something for everyone!

Transition guides

We've created handy guides for blind and partially sighted young people who are about to move into higher education and work.

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On this page, you'll find information on a wide range of issues that are important to blind and partially sighted young people. Our school life and planning ahead section covers choosing subjects, exams and study skills, after-school clubs and activities as well as how to start planning for life after school and moving on to college or work.

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This is our support group for everyone affected by pituitary conditions from 18 years up to 30. We offer a place where you can raise your concerns, ask questions and receive support from people who truly understand what you’re going through.

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Young People - online and in-person - Pituitary Foundation

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This is a support group for younger people from 18 years up to 30.

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Find out how our money advisers can help you access benefits you may be entitled to if you are living with cancer or supporting someone with cancer.

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We know that money is a big and often difficult thing to talk about when you’re living with cancer. Find out more about how Macmillan can help you access benefits which you’re entitled to.

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We know that young people have lots of questions about how cancer and treatment can impact on your fertility and your sex life.

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Fertility and Sexual Health Information Session and Q&A

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In February 2024 we held a joint webinar with OUTpatients about fertility, sexual health and cancer

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Where you can get answers to questions you might not want to ask your nurse or doctor

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Sex with Cancer is an online shop, an artwork and a public campaign exploring how people living with and beyond cancer can take agency over their own health and wellbeing. Watch the video below to find out more...

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What if cancer patients got together to open a sex shop? Products, artworks and peer-led advice around illness and intimacy

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Navigating sex and cancer is a minefield.

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How can cancer impact sexuality and sex? life​​ Not everyone with cancer will have changes in how they feel about themselves, sex or their sexual desire

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Calm Harm is an app that helps you manage or resist the urge to self-harm

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Calm Harm is an award-winning app funded by teenage mental health charity stem4, to help manage the urge to self-harm. It was developed by Clinical Psychologist Dr. Nihara Krause MBE, in collaboration with young people and uses principles from an evidence-based psychological treatment called Dialectical Behaviour Therapy (DBT).

The urge to self-harm is like a wave. It feels the most powerful when you start wanting to do it.

Learn to ride the wave with the Calm Harm app by choosing activities from these categories:
, , Express Yourself , , and .

There is also a breathing exercise to help you be mindful and stay in the moment, regulate difficult emotions, and reduce tension.

When you ride the wave, the urge to self-harm will fade.

The Calm Harm app provides some immediate activities and techniques to help you break the cycle of self-harm behaviour and explore underlying trigger factors; the app supports you in building a 'safety net' of helpful thoughts, behaviours, and access to supportive people, as well as providing the opportunity to journal and self-reflect. The Calm Harm app also signposts to help.

The app is private, anonymous, and safe.

Please note that the Calm Harm app is not a substitute for the assessment and individualised treatment by a health or mental health professional.

Our app is for young people over the age of 13.

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Calm Harm is a free app to help teenagers manage the urge to self-harm. Available on Google Play & App Store.

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The fear of threat, or anxiety, is like a strong gust of wind. It drags you in and makes you want to fight it or run away.

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The fear of threat, or anxiety, is like a strong gust of wind. It drags you in and makes you want to fight it or run away.

Instead, face your fear with the Clear Fear app and learn to reduce the physical responses to threat as well as changing thoughts and behaviours and releasing emotions.

Anxiety is a natural response to fear, threat and apprehension. However, when anxiety is extreme or goes on for a long time, or the response to a threat is disproportionately large and affects a person negatively, it may become an anxiety disorder.

Anxiety disorders are the most common form of emotional disorder and respond very well to a form of treatment called Cognitive Behavioural Therapy or CBT.
When you face your fear, you will reduce the threat and glide.

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Clear Fear is the latest app from award-winning teenage mental health charity stem4.

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The Rob George Foundation has been set up to provide practical and/or financial support to young people with life threatening or terminal illnesses

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The Rob George Foundation has been set up in loving memory of Rob George, who died aged 21 on 9th December 2013 following a long battle with leukaemia

The Rob George Foundation has two distinct objectives. These are:

1) To provide practical and/or financial support to young people with life threatening or terminal illnesses

Rob was a student throughout the period of his illness, and had no tangible income of his own. He found the process of seeking financial support completely frustrating and demoralising. The Foundation hopes to assist young people with life threatening or terminal illnesses who find themselves in similar difficulty to Rob, and applications from young people with life threatening or terminal illnesses who require practical as well as financial assistance will be considered.
2) To provide financial support to young people who demonstrate exceptional commitment and/or ability in the worlds of sport or the performing arts but may be held back by their financial situation from pursuing their goals
Applications will be welcome from young people who demonstrate exceptional commitment and/or ability in the worlds of sport or the performing arts but may be held back by their financial situation from pursuing their goals.

All applications should be made on the Rob George Foundation Application Form via email as indicated on the form.

The application will need to cover at least the following key points:

The amount being requested (up to £1000 initially but in exceptional circumstances more could be made available).

A breakdown of how the funds will be used

Why the grant is needed

The name and contact details of two referees prepared to support the application.

An acknowledgement will be issued and further information may be requested.

Every successful applicant will be required to agree with the trustees some key objectives and to provide feedback against those objectives to an agreed timescale.

Please click here to read a copy of the Rob George Foundation's Grant Making Policy

The Rob George Foundation
Charity No: 1156026
Patrons: Graham Gooch OBE DL, Michael J Fitch & Tammy Beaumont MBE

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Applications - The Rob George Foundation

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Click here to apply for a grant Click here to submit a reference Click here to read our grant making policy The Rob George Foundation has been set up in loving memory of Rob George, who died aged 21 on 9th December 2013 following a long battle with leukaemia The Rob George Foundation has two … Continued

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Chai Cancer Care provides free, professional and expert support to any member of the Jewish community affected by cancer, as well as their family and friends.

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Tottenham Hotspur Foundation, in partnership with North Central London Clinical Commissioning Group and North Central London Cancer Alliance, is offering a 12-session guided physical activity programme for adults who have had a cancer diagnosis in the last five years

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Tottenham Hotspur Foundation - Move 4 You

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Tottenham Hotspur Foundation, in partnership with North
Central London Clinical Commissioning Group and North Central London Cancer
Alliance, is offering a 12-session guided physical activity programme for
adults who have had a cancer diagnosis in the last five years. Move4You led by
specialist activity instructors, provides ongoing support for 12 months and is
tailored to each individual, supporting people of all abilities to engage with
a variety of activities to help them move more during and after treatment.

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If you're worried about ovarian cancer, want to know about symptoms, testing, treatment options or clinical trials, you can find everything you need here.

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If you’re worried about ovarian cancer, want to know about symptoms, testing, treatment options or clinical trials, you can find everything you need here.

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Grants for bone marrow transplant patients 

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Grants for bone marrow transplant patients 

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You can apply for a grant if you have had any type of stem cell transplant or CAR T-cell therapy, or are due to have that treatment within the next six months.

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Anthony Nolan Grants can financially support patients before, during, and after a stem cell transplant. We offer small one-off grants to help with any unexpected costs you may have.

The grant helped us survive another month. Thank you for your help at such a tough time. Stem cell transplant recipient

What should a grant be used for?

An Anthony Nolan Grant is up to £250. It can help cover any extra costs you may experience as a result of having a stem cell transplant, such as:

We can also offer an extra £150 towards your heating costs this winter, as part of Anthony Nolan's Winter Recovery Fund.

Who can apply?

You can apply for a grant if you have had any type of stem cell transplant for a blood cancer or blood disorder, or are due to have one in the next six months.

You must also:

be a UK resident

have no more than £6,000 in savings (if a single person) or £8,000 in savings (if a couple or family).

How do I apply?

Someone from your health or social care team must complete the grant application form on your behalf. For example, you can ask your:

clinical nurse specialist (CNS)

district nurse

social worker.

If you're not sure who can complete your grant application, speak to your healthcare team or contact us at patientgrants@anthonynolan.org or 0303 303 0303.

Once your application has been submitted, we will process it and will be in touch if we need any more information from you.

Once your application is approved, we will let you know and you will receive your payment by BACS into your bank account within two weeks.

If you are a healthcare professional, you can apply on behalf of a patient. Please ensure you have the following information to hand:

Diagnosis & transplant

Employment/education status

Living situation (parental, if the application is for a child)

Household savings, mortgage/rent & council tax

Benefits

Bank details

In order to be successful, a health or social care professional must:

1. explain the specific needs your patient has which are related to their stem cell transplant, and outline how an Anthony Nolan Grant will help to address these needs

2. explain how they intend to spend their grant, and be specific about how you or your patient have estimated the costs, for example: 'Petrol for 10 trips to the hospital at £X per visit'

3. include other financial support that they are receiving, for example: 'The patient has received £30 from the Healthcare Travel Costs Scheme'.

Contact us

If you or your healthcare professional get stuck completing the form, or have any questions at all, please do get in touch!

You can speak to our friendly Patient Services team on 0303 303 0303 (9am to 5pm, Monday to Friday - excluding Bank Holidays) or email patientgrants@anthonynolan.org

FAQs

What should a grant be used for?

An Anthony Nolan Grant is up to £250. It can help cover any extra costs you may experience as a result of having a stem cell transplant, such as:

You can apply for a grant if you have had any type of stem cell transplant for a blood cancer or blood disorder, or are due to have one in the next six months.

You must also:

be a UK resident

have no more than £6,000 in savings (if a single person) or £8,000 in savings (if a couple or family).

You can ask a member of your healthcare team to complete the grant application form on your behalf.

In order to be successful, your healthcare professional must:

explain the specific needs you have which are related to your stem cell transplant, and outline how an Anthony Nolan Grant will help to address these needs

explain how you intend to spend your grant, and be specific about how you have estimated the costs, for example: 'Petrol for ten trips to the hospital at £5 per visit'

include other financial support that you are receiving, for example: 'we have received £30 from the Healthcare Travel Costs Scheme'.

If you would like to claim the extra £150 towards heating costs, simply ask your healthcare professional to tick the 'Winter Recovery Fund' option on the grant application form.

Top tips for a successful application?

It's worth bearing in mind that the panel will consider the following on each application:

The extent to which there is a compelling case about the need for financial support at this time.

A clear connection between the impact of needing or having a stem cell transplant and the items or services requested.

Whether the information in the Medical Report supports the items or services requested.

Whether you have received grants from other charities or organisations, such as Macmillan. Patients who have received other grants may still be eligible for an Anthony Nolan Grant.

Whether the estimated cost of an item or service is reasonable. If the cost seems higher, an explanation for this would be expected.

Whether there are statutory resources, or any other alternative forms of support available.

Whether comfort and quality of life is compromised.

Is there any other financial help available?

Grants from other charities or organisations are available. Contact your local Citizen's Advice for details.

Macmillan Cancer Support offers grants for people undergoing treatment for cancer, including blood cancer.

Financial support charity Turn2us lists grants that you may be eligible for. They also have a useful Benefits Calculator.

Information published: 10/02/23
Next review due: 10/02/24

Related links
Help with your finances Returning to work Patients & Families Forum Order or download publications

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Anthony Nolan Grants can financially support patients before, during, and after a stem cell transplant. We offer small one-off grants to help with any unexpected costs you may have. An Anthony Nolan Grant is up to £250.

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Free, confidential support from trained practitioners