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World Prematurity Day is now recognised by the World Health Organisation and is celebrated on 15th November every year.

Please check back here nearer the time for more details of our celebrations.

The theme for 2026 is:

𝐒𝐦𝐚𝐥𝐥 𝐛𝐚𝐛𝐢𝐞𝐬, 𝐛𝐢𝐠 𝐩𝐨𝐭𝐞𝐧𝐭𝐢𝐚𝐥.

𝐈𝐧𝐯𝐞𝐬𝐭 𝐢𝐧 𝐟𝐨𝐥𝐥𝐨𝐰-𝐮𝐩 𝐜𝐚𝐫𝐞 𝐭𝐨 𝐩𝐫𝐨𝐭𝐞𝐜𝐭 𝐭𝐡𝐞𝐢𝐫 𝐟𝐮𝐭𝐮𝐫𝐞!

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Left out of their new sibling's life

Missing usual time and attention from parents

Jealous

Lonely

Anger towards their parents for being away

Scared of other people becoming sick

Guilty they are healthy

Angry with their new brother or sister

Confused about the new changes in their life

(Taken from UHW Neonatal Psychology)

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Having a baby in the neonatal unit is difficult for the whole family, including older brothers and sisters.

It can be hard for children to understand what is happening, and they may feel sad, scared, or angry, though these may be hard for them to express.

These feelings may show up as changes in behaviour. Try to be patient with your child (and yourself!) during this difficult time.

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As society acknowledges the significant and diverse roles fathers play within their families, it becomes increasingly important to ensure that family services […]

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Located by the main hospital entrance, left-hand side before the restaurant

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Through the Family Area is a kitchen for you to make yourself a cup of tea or coffee.

Please also feel free to help yourself to breakfast.

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Feeding and Nutrition on the neonatal unit

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Feeding and Nutrition on the neonatal unit

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Link to feeding and nutrition resources from our wider West Midlands neonatal network

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Support and wellbeing resources from the wider neonatal network

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We have two bedrooms for parents to stay. These are on the Neonatal Unit, just beyond the Family Area.

Though we understand all parents would like to stay, we give priority for these bedrooms to parents of babies who are very sick, or who live a long way from the hospital.

We also cannot promise that you can stay in a room long-term. We will talk to you about this as early as we can if we need you to leave the room.

You will still be welcome to sleep beside your baby if you wish.

For more information about Transitional Care (TC) rooms on Level 2 SCBU, please see the "Getting ready to go home" section

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There may be times that you wish to speak to a member of the medical or nursing team privately.

We have several spaces within the unit that team members can take you to for private and confidential conversations.

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On the Special Care Baby Unit located on the 2nd Floor, there is another family area where parents and visitors can spend time and relax.

There are also some toys and books for siblings to play with, and a portable DVD player with a selection of DVDs.

Please do not leave children unattended in this area.

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The family area is located next to the Reception desk on the Neonatal Unit (Level 1).

This is an area where parents, their family and friends can spend some time relaxing on the comfortable seating, read a magazine or watch TV.

There are lockers where parents can store their valuables if they wish, and there is a kitchen joined where you can access tea/coffee, a fridge and microwave should you wish to bring in your own food.

The family area also has toys and books for siblings to play with. Please note children must not be left unattended in this area.

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There are dedicated areas or rooms where you can store and prepare expressed breast milk for your baby. The area has a fridge, a freezer and cleaning equipment.

We can only store 1 basket of breast milk for each baby so please take excess home to store safely in your freezer. Remember to check the freezer for milk before you are discharged home too.

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You are welcome to express your milk at your baby’s bedside on the unit, with the use of privacy screens.

However we also have an expressing room available with comfortable seating. This private room is located in the Family Area next to the Reception desk on the Neonatal Unit.

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Try to hand express your colostrum as soon as possible, ideally within 2 hours after birth. Don't worry too much about how much you get, even a few drops is wonderful!

Your baby can then have the drops of colostrum in the side of their mouth. Every drop you can give us will help to protect your baby from infections, and help their brain, eyes, heart, brain and gut (tummy) to grow.

Aim for 8-10 expressions per 24 hours, including once overnight. This means roughly every 2-3 hours.

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Transitional Care (TC) Rooms

Our TC rooms are located on the Special Care Baby Unit. You can stay with your baby in the days before you get ready to go home. This is to help create a "bridge" between being on the unit and being at home.

Here you can will care for your baby as if you were at home - feeding, changing, and comforting them, but still with the support of the neonatal team.

We have two private Transitional Care rooms with en-suite toilet and shower. Partners are welcome to stay on our fold-out camp beds. Parents in Transitional Care can have breakfast; lunch and dinner provided by the hospital during their stay, should they wish.

If both these rooms are in use, parents can also sleep on a camp bed to stay next to their baby’s bed space in the Special Care bay.

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Noahs Star – Supporting families when their baby is born premature.

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Support for you and your family if your baby is born premature

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A 2022 survey from neonatal charity Bliss found parents on the neonatal unit spent an extra £405 in weekly costs while their baby was in hospital.

Some reasons for this:

Cost of travel to and from the neonatal unit and parking

High cost of food and drink available at hospitals

Paying for childcare for other children

We are working to explore what we can do as a unit to ease the burden of cost for parents. Parking on our unit is free for all parents staying over 6 hours total per day, and you are welcome to breakfast in our Family Room kitchen.

In the meantime please read below to see if there is any other financial help you may be able to receive.

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Our neonatal scrapbooking group runs every Monday, 11am-12.30am in the Family area.

This group is a calm, supportive space which offers:

A chance to print a photo of your baby

Creative scrapbook activities

Support for bonding, confidence and wellbeing

Time to reflect on the week and set goals for the future

Space to meet to meet other parents

All parents welcome, whether you stay five minutes or an hour. All materials are provided - just bring yourself.

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Coventry & Warwickshire Parents in Mind | About us, Community support programmes | NCT

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Parents in Mind offers support to mothers and birthing people across Coventry and Warwickshire.

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Parents can be with their babies at all times. This includes at night.

We have reclining chairs on the Neonatal Unit (Level 1) and fold-out camp beds on SCBU Special Care Baby Unit (Level 2).

We also have two overnight rooms on the Neonatal Unit. For more information please see the "Facilities" section.

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Are you going home with the support of our neonatal community outreach team (NCOT)?

Please join us for our stay and play sessions

This month's theme is "People who help us"

Next meeting: Wednesday 10th June

9.30am-12:30pm

The Moat Family Hub

Coventry

CV2 1EQ

-Meet our therapy dogs

-West Midlands Fire Service will be bringing their fire engine

-Free gift for Dad to celebrate Father's Day

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Photograph of the Faith Centre set up for a neonatal coffee morning

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Our coffee mornings are a friendly, relaxed space for neonatal families to meet up and have a tea or coffee, and some biscuits. Many of our families have been coming since their babies were on the unit, who are now grown toddlers and older.

They are held every other month in our Faith Centre on the ground floor. This is a short trip down the stairs from the neonatal unit. It is a lovely open space with access to the

Please note: Coffee mornings are not religious. Please let us know if you would like religious or spiritual support.

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We know how important it is for you and your baby to be together. Parents, as well as big brothers and sisters, are welcome to be here for as long as you want.

Other family and friends may visit the unit at any time; but a parent must still be present. Our safety guideline limits two people per cot side at all times.

We ask that you or other visitor do not come to the unit if you are feeling unwell. In particular, do not come to the unit:

If you have a cough, sneezing, sore throat or other respiratory symptoms.

If you or your other children have chickenpox

Please speak to a member off staff before returning to the unit to ensure you are following correct procedures.

Note that policies on visiting may sometimes change based on circumstances. Staff will always notify you of policy changes. Please know that any changes are made to protect our patients, families, and staff.

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ATAIN (Avoiding Term Admissions into Neonatal units)

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ATAIN (Avoiding Term Admissions into Neonatal units)

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Amazon.co.uk

We have created a NICU Amazon Wishlist with items that help support babies and their families on the unit. These are things we use everyday to make the environment more comfortable and supportive during your stay.

If you would like to contribute, we would be incredibly grateful for any donations-big or small.

Thank you for your support.

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Support for parents, families & friends of those who have experienced an H.I.E. event

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Support for parents, families & friends of those who have experienced an H.I.E. event

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Peeps HIE Charity | HIE Awareness & Support

Welcome to Peeps HIE

We provide support to parents, families & friends of those affected by HIE (Hypoxic-Ischaemic Encephalopathy), raising awareness of HIE.

Some of the things we do include:

Provide information about HIE

Buddy/peer support

Counselling and therapy

Funding for equipment

Find out more about what we do...

Our Family stories

We pride ourselves on the support we can give to families experiencing the challenges of day-to-day life with children affected by HIE.

Read our Family Stories

Peeps on Twitter

Our information leaflets are written by families, with families, for families.
They can be downloaded from our website, or printed copies sent out - please get in touch if we can help support.

https://www.peeps-hie.org/resources-downloads/

#HeardOfHIE

2

If you'd like to find out more about our new book club, starting in 2024, and register an interest, please check out our website:

It will be online, peer-led, from the comfort of your own home, and just for H.I.E. parents/grandparents/carers.
Suggestions...

We recognise that each H.I.E. journey can be unique; we aim to provide support and guidance tailored to the diverse needs of our community.

Inclusion matters and is an agenda item on every meeting we have with Trustees and employees.

From informational resources to emotional...

Twitter icon
View more

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Peeps HIE Charity | HIE Awareness & Support

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Peeps is a UK charity, dedicated to supporting those affected by HIE (hypoxic-ischaemic encephalopathy). We provide emotional, practical and financial support.

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(B) Bottle feeding leaflet FINAL (V1 2025 APPROVED 9_25 PSG) (1)

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(C) Communicating with your baby leaflet (FINAL (V1 2025 APPROVED 9_25 PSG))

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Information on neonatal leave for parents of babies on the neonatal unit. This can be up to an extra 12 weeks on top of your maternity or paternity leave.

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Your baby communicates with you from the moment they are born

Your baby will use their face and body to tell you how they are feeling

You can learn all about your baby's cue to find out what they like and don't like

All you have to do is OWL (Observe, Watch, Listen). When you respond, it lets your baby know that you understand them

You can learn more about your baby's development by asking your neonatal team, allied health professionals and community healthcare professionals

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Pale pink background with an illustration of a sleeping baby 

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Your baby's communication development starts in the womb, where they start to:

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Your baby's communication development starts in the womb, where they start to:

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Open and close their mouth, getting ready to feed, make sounds and copy

Hear sounds

Listen and respond to voices and sounds

Move and turn to voices

All of the above helps to build the foundations to support speech and language development

If your baby was born early, their development continues on the neonatal unit with you

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Pale pink background with an illustration of a pregnant woman holding her baby bump

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Hello

Welcome to The Smallest Things, a registered charity promoting the good health of premature babies and their families. We're really glad you found us. Whether you're a parent or family member looking for support, an employer wanting to help your staff, or a health professional looking for information, you're in the right place.

Following its #NotMatLeave campaign, The Smallest Things was delighted when the government announced in March 2020 that parents of babies admitted to neonatal care would receive paid time off work.

Plans for 2022/23 were recently made public and once again the government has failed to include neonatal leave. This is despite Prime Minister Boris Johnson assuring us in November 2021 that legislation would be brought forward ''one way or another''.

Neonatal families have been forgotten and continue to be kept apart by work and financial pressures at a time they need to be together most.

About us
The Smallest Things exists because we don't believe there's enough understanding of the unique needs of families of premature babies.
Going home from the hospital is far from the end of the journey through neonatal care. Many babies have longer-term needs and lots of parents struggle mentally, practically and financially following the trauma of NICU. We're here for them.

From signing the petition to extend parental leave to making a donation or hosting a picnic, there are lots of ways you can support The Smallest Things...

Fundraise for us
Fancy getting your trainers on and running 10K? Or perhaps coffee and cake are more your thing? There are lots of ways to raise money for The Smallest Things and we'll support you every step of the way.

Ask your employer
In February 2018, with no sign of new legislation on the cards, we launched our Employer with Heart charter, asking businesses to extend parental leave for staff who have babies born early. Has your workplace signed up to our charter yet?

Make a donation
We're a tiny charity run entirely by volunteers so every penny really does count. Your donations help us to raise awareness, carry out research, host events, consult with government officials and launch schemes such as our 'preemie proud' red book stickers.

Sign the petition
More than 350,000 people have signed our petition asking Kelly Tolhurst MP and government colleagues to recognise the significant and unique needs of families with children born prematurely and to extend statutory leave accordingly. Is your name on the list?

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The Smallest Things exists because we don't believe there's enough understanding of the unique needs of families of premature babies. Going home from the hospital is far from the end of the journey through neonatal care. Many babies have longer-term needs and lots of parents struggle mentally, practically and financially following the trauma of NICU.

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Welcome to

Children's Speech &
Language Therapy

Speech & Language Therapy (SLT) aims to support children and young people to reach their full potential with speech, language and communication.

Welcome

Speech & Language Therapy (SLT) aims to support children and young people to reach their full potential with speech, language and communication. We also support children with feeding and swallowing. We work with other key people involved in children's lives such as families, other health professionals, education and social care colleagues.

Families

In this section you will find:

information about the different areas of speech, language and communication

suggestions of how to help your child at home.

If your child is accessing our service please refer to their therapy plan which will identify areas of the website relevant to your child.

Professionals

In this section you will find:

Additional services that can be bought in including commissioned therapy time

How to access our training courses: universal, freely accessible training as well as more specific training that can be bought in to your service

Resources

Here you will find a range of videos our Speech and Language Therapy team demonstrating different therapy approaches and pictures you can use to support your child's speech sound development.

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Speech & Language Therapy (SLT) aims to support children and young people to reach their full potential with speech, language, communication, families, health professionals, education, social care

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This website aims to provide accessible information on our Physiotherapy service for children and young people and their family or carers. It also provides information for those working with children and young people, including GP’s, education staff and other healthcare professionals.

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Children's physiotherapy leaflet V2 07.05.2024.pptx with changes.pptx  -  Read-Only

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If you would like to share your journey on our Neonatal Graduates please email cheryl.mcgreevy@uhcw.nhs.uk

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Weaning your premature baby

This information is about introducing your premature baby to more solid foods, and the steps you can follow as your baby moves from milk to eventually only eating solids. This is called weaning. This information is also available as a PDF download at the bottom of this page.

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This information is about introducing your premature baby to more solid foods, and the steps you can follow as your baby moves from milk to eventually only eating solids. This is called weaning.This information is also available as a PDF download at the bottom of this page.

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The Coventry City Council website provides online services, information and advice for residents, businesses and visitors.

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Health Visiting - Parenting support – Coventry City Council

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Every day brings many opportunities to give babies, children and young people the emotional nurture they need to develop healthy brains. Emotional nurture (five to thrive) feeds the brain, just as physical nurture (five a day) feeds the body.

The Five to Thrive Approach is based on a set of five key activities (respond, cuddle, relax, play and talk) that are the building blocks of healthy brains and emotional development.

More than 90% of what we know about the human brain has been discovered in the last 20 years - research in neuroscience is transforming how we think about human beings.

One of the key findings is that people need people. We humans have a very long childhood because we have such a big and complex brain to build. Children depend on adults to nurture them. It is relationships with adults that build the brains of children and young people. This booklet explores how all humans need connected relationships to build healthy brains.

Baby Five to Thrive

We now offer a brand new programme for parents/carers and their baby called Baby Five to Thrive. This includes 5 sessions where you will learn about the 5 things your baby needs for development each week and lots of opportunities to relax and play with your baby!

Email: parenting@coventry.gov.uk to find out when and where the next Baby Five to Thrive group is!

The Newborn Brain

Did you know your baby's brain doubles in size in the first year of their life?

Your baby starts life with around one hundred billion brain cells. By the time they are one year old their brain will already be two-thirds the size of an adult brain, but children's brains are not fully developed until around the age of 25 years! Brain development and emotional health are just as important as physical health to ensure our children can live happy and fulfilled lives.

Emotional Regulation, Empathy and Relationships

Five to Thrive is also an approach that can help parents to help their children when they are experiencing strong emotions due to challenges. Babies and children are not born knowing how to calm down after experiencing emotions like disappointment, anger or sadness. They need a calm and connected adult to help them to regulate their emotions. This series of videos demonstrates the Five To Thrive Approach in action at different ages and stages and how as parents we can support our children's emotional health.

Five to thrive in action - Baby

Five to thrive in action - Toddler

Five to thrive in action - Primary

Five to thrive in action - Secondary

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Children and young peoples Occupational Therapy

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Children and young peoples Occupational Therapy

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Welcome to Coventry's children & young people's occupational therapy service home page.

Occupational Therapy (OT) aims to support children and young people in getting the most from their lives and achieving their potential. Occupational Therapists (OT's) work with other key people involved in children and young people's lives such as families, other health profesionals, education and social care colleagues.

This website will provide you with information to understand the work that we do, how we may be able to help children & young people you know and provide advice and strategies for specific difficulties. The website is designed to offer information for a range of people including those who are referred to our service, teachers, doctors and other professionals who may also see the people referred to our service.

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Children & Young People’s Occupational Therapy Service Coventry

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Home " Children & Young People's Occupational Therapy Service Coventry

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Welcome to Coventry's children & young people's occupational therapy service home page. Occupational Therapy (OT) aims to support children and young people in getting the most from their lives and achieving their potential. Occupational Therapists (OT's) work with other key people involved in children and young people's lives such as families, other health profesionals, education and social care colleagues.

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UPLOADED Head Turning and Plagiocephaly sent awaiting (790)

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My daughter Lucy was born on 16 June 2015 at 28 + 3 gestation because of a blood clot weighing 3 lb 2 oz.

I stayed at UHCW NICU for 52 days.

She was put under the light for 2 days then moved up to NICU she was doing ok after 3 weeks except she kept putting weight on then losing it very quickly so they said she couldn't go home until she made it to 5 lb then around 6 weeks old she finally made it to 5 lb but they told me she had to stay another week to make sure she don't start losing it again luckily she didn't lose it and at 6 weeks I was allowed to go home

Lucy has turned into superhero she is doing very good at school and completed swimming levels and is a black belt in martial arts.

💜💜💜

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Juniper, born at 25 weeks in July 2024, had a challenging start to life. Facing a pneumothorax and NEC, spent three weeks on a ventilator, followed by what felt like an eternity on high-flow oxygen. Despite the hurdles, Juniper made great progress and was discharged at 35 weeks with home oxygen and a feeding tube.  Battled a few more different hurdles since being home, but has started laughing, rolling, and has such a sassy loveable personality! These prem babies may be little but definitely mighty!

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Our son Jude was born at 25+1 September 23rd, 2024. He had CPAP for 5 days before requiring intubation.

Jude was intubated for 15 days, CPAP for 11 days, High flow for 28 days and then low flow for 86 days. Jude came home on home oxygen at 36+3 and was taken off at 5 weeks corrected. He required 5 blood transfusions and 2 courses of steroids.

Jude was 1lb 12oz when he was born and now at 6 weeks corrected, he weighs 10lb 12oz, he is doing so well. He is thriving in every way possible, and it is completely down to the staff in NICU, we couldn't have gotten through it without them.

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This Isla Rose she was born at 30wks 5 days 3/4/24 weighing only 2.5lb. She stayed Nicu for 30 days and graduated ncot on her due date.

She has been so strong all the way through and is now a healthy 10-month-old.

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Link to Coventry Family Hub app

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Your personal app for up to date news, events and helpful content.

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Talking to your preterm baby 32-35 weeks

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Talking to your preterm baby 32-35 weeks

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Casey was born at 24+1 weeks in a very poor condition and required intubation and CPR. He weighed 640g and was ventilated for first 32 days of his life. He was successfully extubated onto CPAP, then high flow until he was able to tolerate low flow nasal prong oxygen.

He had a wide range of complications during his 107 day neonatal stay including Pulmonary Interstitial Emphysema, PDA, Anaemia, Hypotension, Jaundice along with suspected NEC and Sepsis.  He received 7 blood transfusions and also had laser eye surgery for Stage 3 ROP.

Casey was discharged home one week before his due date with Oxygen. He was eventually weaned from Oxygen completed around 4 months after discharge.

He is now 9 years old and at Year 4 in school. He is a very happy, energetic boy who loves playing football, going to theme parks and spending time with his family and friends.

We will be forever grateful to the NICU…they saved Casey’s life.

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Our wonderful neonatal volunteer team includes Aimee, Lorraine, Kirsty, Brian and Shirley.

They have all had personal experience of premature or sick babies and can relate to your experience.

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Will my baby need a blood transfusion? Patient information

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Will my baby need a blood transfusion? Patient information

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For many babies, blood transfusions may be needed during their stay. Unless this is a life-threatening need, you will be asked for your verbal consent.

Please see this leaflet for further details, and ask if you have any further questions

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This Padlet has information which may be helpful for you while your baby is on the neonatal unit.

There is a lot of information, and not all of it will apply to your baby. Some of the topics may feel too much for right now.

Go at your own pace and read them if and when you feel ready.

Please ask us if there is anything you are unsure about or would like more information.

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The information in this section is here for you to better understand some of the medical conditions we see and treat on the neonatal unit. Remember, not every baby will experience these medical conditions.

If you have any questions or need support, please speak with a member of staff. We are here to help.

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Breast milk fortifier

Fortifier is a powder that is added to your breast milk to increase the calorie, protein and vitamin content of the milk.

The fortifier may be continued beyond discharge in 4-6 feeds per day until your baby is up to 8 weeks past their due date, depending on their growth.

The infant feeding team will support you during your time on the ward and once you’re home with making decisions around feeding and when to stop the fortifier.

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What is Family Integrated Care? (FiCare)

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What is Family Integrated Care? (FiCare)

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As a unit we aim to work in a way that supports parents to be the main carers for their babies.

Your views and thoughts are highly valued on our unit and parents are seen as important members of our team.

If English is not your first language, please ask if this information can be to be translated into your preferred language.

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Immunisations for your baby - video in British Sign Language.

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Immunisations for your baby - video in British Sign Language.

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Link to a video explaining routine vaccinations for babies

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Bereavement support in different languages.

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Bereavement support in different languages.

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Sands Bereavement Support Book | Sands - Saving babies’ lives. Supporting bereaved families.

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To guide you through this difficult time, we have put together our Bereavement Support Pack. It is free and the information it contains may be helpful to you both now and later.

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How to use the Ardo Calypso electronic breastpump

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The Lullaby Trust. Advice on infection in babies.

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The Lullaby Trust. Advice on infection in babies.

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It is important to try and keep babies safe from infection. Reduce the risk of by following this: THANKS - Think Hands And No KisseS

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Lifecycle of vaccinations Animation Video

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Childhood Vaccinations in Arabic, Romanian, Uru, Polish, Spanish and Turkish.

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Childhood Vaccinations in Arabic, Romanian, Uru, Polish, Spanish and Turkish.

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Advice on accessing GPs, pharmacists, urgent care emergency services and other healthcare services for refugees and asylum seekers.

If you have any problems accessing healthcare or have questions call Doctors of The World UK advice line on 0808 164 7686

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Subtitled video on how to navigate the NHS for Refugees & Asylum Seekers. Set language in Settings

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Please ask about "LanguageLine" - a digital interpreting service which offers many different languages.

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How to assemble Medela's Symphony pump set.

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How to assemble Medela's Symphony pump set.

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How to assemble Medela's Symphony pump set with PersonalFit PLUS | Medela | How-To Use

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When visiting the Neonatal unit either as a parents, partner, relative, friend or professional please be aware of the butterfly logo which may be on some cots or incubators.

This represents a baby that was part of a multiple pregnancy but sadly not all the babies survived and parents have chosen that they wish to make others aware.

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The Butterfly Project | Co-twin loss; Healthcare education; Neonatal Research

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This Padlet provides general information and online resource links to neonatal care.

The accuracy of the information provided in external resources is not monitored by UHCW team but you may find it useful and easy to understand (e.g. from BLISS and other networks).

The staff on the unit can explain if there is any information you don't understand or need more details about. If you have any concerns regarding the information, please contact neonatal unit staff.

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What is the National Neonatal Audit Programme?

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What is the National Neonatal Audit Programme?

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Royal College of Paediatrics and Child Health

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What is the National Neonatal Audit Programme?

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Sahil is a South Asian Mental health and Wellbeing support center providing services across Coventry and Warwickshire. For the over 30+ years we have provided highly Appreciated and Accessible Culturally Appropriate Services to all Communities delivered at the Project and Satellite venues.

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NIPE - Newborn and Infant Physical Examination.

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NIPE - Newborn and Infant Physical Examination.

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Newborn and infant physical examination (English)

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Leicester General Hospital (LGH) Level 1 (SCBU) Neonatal Unit and Leicester Royal Infirmary (LRI) Level 3 (NICU) Surgical Neonatal Unit

Please skip to 1:10 for LRI

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Children’s Hospital virtual tour and maps

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The page to find our virtual tour and hospital maps. Our virtual tour
was developed by our friends at Autism West Midlands and Google and
kindly funded by Bi…

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Lily Mae Foundation | Baby Loss Support Charity

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We are The Lily Mae Foundation, A support charity for parents and families who have tragically lost a baby to Stillbirth, Neonatal Death, Miscarriage and Medical Termination across the West Midlands.

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For Bereaved Parents & Families – Baby Loss Awareness Week

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If your baby has died or you have been told to expect that they may die soon, we are so sorry. This section highlights bereavement support available for you and your family, whenever you need it.
There are also a number of ways for you to take part in Baby Loss Awareness Week and commemorate your baby(ies)’s life including Ribbon Remembrance Events and the Wave of Light.

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Sam and Finn is the original story of Kate Polley’s twin sons, Sam and Finn. Kate wrote this first book after Sam died, to help her surviving twin, Finn and her other children to understand that we can experience the love and joy of a loved one, even when they are no longer with us here on earth. It is a story of hope, designed for all children and families who have experienced the loss of a twin, sibling or child.

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4Louis - Support for parents experiencing miscarriage, stillbirth and baby loss

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4Louis - Support for parents experiencing miscarriage, stillbirth and baby loss

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SUPPORTING FAMILIES THROUGH MISCARRIAGE, STILLBIRTH AND CHILD LOSS SUPPORTING FAMILIES THROUGH MISCARRIAGE, STILLBIRTH AND CHILD LOSS SUPPORTING FAMILIES THROUGH MISCARRIAGE, STILLBIRTH AND CHILD LOSS

SUPPORTING FAMILIES THROUGH MISCARRIAGE, STILLBIRTH AND CHILD LOSS SUPPORTING FAMILIES THROUGH MISCARRIAGE, STILLBIRTH AND CHILD LOSS SUPPORTING FAMILIES THROUGH MISCARRIAGE, STILLBIRTH AND CHILD LOSS

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SUPPORTING FAMILIES THROUGH MISCARRIAGE, STILLBIRTH AND CHILD LOSS SUPPORTING FAMILIES THROUGH MISCARRIAGE, STILLBIRTH AND CHILD LOSS SUPPORTING FAMILIES THROUGH MISCARRIAGE, STILLBIRTH AND CHILD LOSS SUPPORTING FAMILIES THROUGH MISCARRIAGE, STILLBIRTH AND CHILD LOSS SUPPORTING FAMILIES THROUGH MISCARRIAGE, STILLBIRTH AND CHILD LOSS SUPPORTING FAMILIES THROUGH MISCARRIAGE, STILLBIRTH AND CHILD LOSS

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Whether you are a new or expectant parent, a professional interested to know about Down syndrome or a member of the public - you've come to the right place!

We hope that our stories and photos reassure you, inspire you and show you the reality of life with Down syndrome. There is a lot of negativity, fear of and ignorance around Down syndrome, but we are the experts on living with someone with Down syndrome and these stories are written honestly from experience and absolute understanding.

#NobodyToldMe is a collection of personal experiences written by young people with Down syndrome, their friends and family.

#NobodyToldMe challenges outdated perceptions and attitudes towards those with Down syndrome by showing the reality of our lives.

We, too, have experienced receiving the news that our baby has Down syndrome, so we know how you're feeling, what you're worried about, or what you are feeling guilty for thinking. We are delighted to have this opportunity to share a little of our lives with you to try to address some of those feelings.

There are groups all around the UK, offering a range of support and community.

Click the button below to see a map showing what groups there are near you.

The stories here are our true and personal experiences. PADS is not affiliated with any religious or political organisation.

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Positive About Down Syndrome - A website by parents for parents and parents-to-be

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Whether you are a new or expectant parent, a professional interested to know about Down syndrome or a member of the public - you've come to the right place! We hope that our stories and photos reassure you, inspire you and show you the reality of life with Down syndrome.