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Patient and Public Involvement, Engagement and Participation (PPIEP) : resource available from the Leeds BRC

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Patient and Public Involvement, Engagement and Participation (PPIEP) : resource available from the Leeds BRC

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Amy Rebane leads the PPIE team at Leeds BRC.  The team support BRC researchers to plan and cost their PPIE activities.
the team has developed a PPIE Guide for Researchers in partnership with PPI members and BRC researchers to help you get started

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The PPIE team at Leeds BRC are here to support BRC researchers to plan and cost your PPIE activities. We have developed the following PPIE Guide for Researchers in partnership with PPI members and BRC researchers to help you get started:

The PPIE Team can support you to design, develop and cost your PPI activities. You will be asked to complete a request form for PPI activities, depending upon which type of activity you will be given a form to complete either:

This form is to be completed by researchers who are preparing any grant application which they would like reviewed by members of the PPIE Network.

This form is to be completed by researchers to indicate the commitment needed from PPIE Network members, and the nature of their involvement. This form must be completed for all PPI requests.

To ensure meaningful involvement, forms must be submitted to the PPIE Team at least three weeks prior to the involvement activity taking place.
Online resources for researchers External resources
Involve - a national advisory group which supports public involvement in NHS, public and social care research. Involved have a wide range of resources to help you plan and cost your PPIE activities.

Jargon Buster We ask that where possible you avoid using jargon and acronyms - this jargon buster is a great resource to help think about how to phrase your public facing documents.

Health Research Authority - guidance on Patient Information Sheets. This guidance is a framework to help you think carefully about how best to inform potential participants.

Plain English Guide this is a useful guide to help you think about how to use plain English to communicate complex information.

For more information and support please contact Amy Rebane on PPIBRC@leeds.ac.uk

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Resources for Researchers - Leeds Biomedical Research Centre

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The PPIE team at Leeds BRC are here to support BRC researchers to plan and cost your PPIE activities. We have developed the following PPIE Guide for Researchers in partnership with PPI members and BR

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LTHT Publications - Leeds Libraries

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Each month, the LTHT Library & Knowledge Service collates details of all new publications in which one or more author is listed as a member of Leeds Teaching Hospitals staff.

A regularly updated Excel workbook listing details of these publications can be accessed by NHS staff on Sharepoint, or downloaded here.

The monthly reports are based on the date that articles are added to the databases (Medline, Embase and Emcare), which may vary from the date of publication stated.

Due to the way that the databases we use to produce this report are configured it is possible that we may miss some publications or include some errors. If you are a member of LTHT staff and have a publication you would like us to add, or if you would like us to amend any details in the spreadsheet please contact us.

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Information on the servives of the joint NHS libraries in Leeds.

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LTHT and University of Leeds shared R&I Strategy 2020-2030

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LTHT and University of Leeds shared R&I Strategy 2020-2030

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In 2021/22, the Academy of Medical Sciences convened a Working Group of experts from academia, industry, charities and the NHS to explore the actions needed to future-proof health research in the UK.

The final report, published in May 2023, has been produced by 30 experts from across the UK, including established and emerging research leaders, patients, carers and representatives from the public, private and charitable sectors. It details key threats to UK health research and the steps needed to protect it.

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In 202 1 /2 2 , the Academy of Medical Sciences convened a Working Group of experts from academia, industry, charities and the NHS to explore the actions needed to future-proof health research in the UK. The final report , published in May 2023, has been produced by 30 experts from across the UK, including established and emerging research leaders, patients, carers and representatives from the public, private and charitable sectors. It details key threats to UK health research and the steps needed to protect it.

Issues identified by the report

The current UK health research system is no longer fit for purpose because:

It presents too many barriers to too many people,

It fails to cover the full cost of health research, and

It does not do enough to support research in the NHS.

At risk is the UK's ability to deliver world-leading health research and the benefits that brings to patients and the public.

Solutions to future-proof the research system

Excellent research needs a strong, future-proofed research system that allows talented researchers, science and innovation to thrive. This project develops a vision for what sustainable health research in the UK should look like.

1. We must place people at the heart of the UK health research system . Research culture and career structures can be narrow, inflexible, precarious and exclusive, undermining the ability of diverse individuals, including patients, and those with broad expertise to fully explore their potential and deliver innovations.

2. We must ensure talented people can develop careers that span sectors to address a lack of movement of researchers between roles in public, private and charitable research sectors.

3. We must ensure that the true cost of excellent health research is adequately covered, to address a funding model which relies on cross-subsidy from international students as the total cost of research in universities is not covered by any funder .

4. We must maximise the research potential of the NHS , which currently struggles to make health research part of the norm.

Hear from people within the system as they shar e their experiences and call for urgent action to be taken to protect the health research that saves and improves lives everyday:

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Future-proofing UK Health Research: a people-centred, coordinated approach

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In 202 1 /2 2 , the Academy of Medical Sciences convened a Working Group of experts from academia, industry, charities and the NHS to explore the actions needed to future-proof health research in the UK.

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RCP NIHR position statement: Making research everybody’s business | RCP London

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The COVID-19 pandemic has starkly illustrated the importance of clinical research, which was crucial to the development of vaccines and treatments that have saved millions of lives globally. Clinical research is essential to improving outcomes for patients, and by improving the efficiency and efficacy of care it can be a vital tool in tackling waiting list backlogs and reducing the pressure on the NHS.

All clinicians can play a role in supporting clinical research, from leading studies to helping recruit patients to trials. RCP and NIHR's new position statement makes the following recommendations for stakeholders across the health and care system, with the overall aim of embedding research in clinical practice.

For trusts, health boards and integrated care systems (ICSs):

Develop strong links between medical directors, R&D directors and chief executives

Encourage support for research to be recognised as part of direct clinical activity and reward involvement of such through local and national awards

Ring-fence time for research in job plans of those who want to have a substantive research leadership role

Ensure that multidisciplinary workforce planning encompasses those who support research

Take opportunities to implement proportionate training requirements for those involved in research (including taking account of Medicines and Healthcare products Regulatory Agency and Health Research Authority's joint statement on the application of Good Clinical Practice)

For Health Education England and NHS England, as well as statutory education bodies and the departments of health in the other UK nations:

Work with stakeholders to promote opportunities for postgraduate doctors, medical students and other health professionals to engage with research

Recognise and reward trusts that engage with research and industry to improve patient care

For the CQC: strengthen assessment of clinical research activity as a marker of care within assessment processes for trusts and ICSs

For the GMC: build on the publication of its key principles - which set out system changes needed to encourage engagement with research - by continuing to work with partners to encourage greater participation

For the NIHR: continue to build capacity and capability for research across the whole of the NHS and care, working closely with other funders, academies and cross-funder initiatives

Ensure that grant awards and research processes recognise and support research that addresses health inequalities and other NHS priority areas

Ensure that research projects that are funded are accessible and inclusive

Provide support to grant-holders to reduce the environmental impact of clinical research activity

The statement is supported by UK Research and Innovation, UKRD, the Academy of Medical Royal Colleges and the Royal College of Surgeons of England.

You can download the full statement below. And find out more about our work on research at the . For further information or if you have any questions, please feel free to contact us via RCP Research and innovation hub policy@rcp.ac.u k.

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RCP NIHR position statement: Making research everybody's business

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The RCP and National Institute for Health and Care Research have published a joint position statement setting out a series of recommendations for embedding research in everyday practice for all clinicians. The statement is supported by UK Research and Innovation, UKRD, the Academy of Medical Royal Colleges and the Royal College of Surgeons of England.

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This Padlet contains a selection of resources, information and signposts.  We strive to keep the site up to date and relevant. If you would like to give us feedback or suggestions, then please contact denise.ross@nhs.net

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Our training events - Leeds Biomedical Research Centre

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The Leeds NIHR BRC holds training events that are open for anyone to join. If you've been unable to attend one of our recent online webinar events, you can watch them again here.https://youtu.be

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HEE Allied Health Professions Research and Innovation Strategy FINAL_0