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Small balls...trying to juggle...finding a safe space to rest.

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Amazing sketchnote by Abi Chapman

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Amazing sketchnote by Abi Chapman

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Amazing sketchnote by Abi Chapman

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Amazing sketchnote by Abi Chapman

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Amazing sketchnote by Abi Chapman

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Amazing sketchnote by Abi Chapman

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Models to Realities  Nuanced Perspectives on Disability-full video

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I felt like this image really summed up how lit up my brain was by all these talks. I'm still processing it all!

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warm up- What are you hoping to gain from today?

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warm up- What are you hoping to gain from today?

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Lots of diverse voices and stories intersecting. Connection and difference together in one space.

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Warm up- What am I putting down to be here today

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Warm up- What am I putting down to be here today

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This is my pc, as I was putting down my written PhD work for the day. It was good to acknowledge this as it allowed my to truly put that away for the day, rather than hold it in some part of me.

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As always a mixture of emotions, happy, excited and anxious. It was really helpful to sit with these feelings and acknowledge them at the start of the event.

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Abi Chapman - Models to Realities: Nuanced Perspectives on Disability

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The Models to Realities Nuanced Perspectives on Disability (2)

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Dr Emma Craddock - Models to Realities: Nuanced Perspectives on Disability

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Sadie Rockliffe - Models to Realities: Nuanced Perspectives on Disability

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The Models to Realities Nuanced Perspectives on Disability (4)

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Fe Steven's   Models to Realities  Nuanced Perspectives on Disability

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Emma Sadera - Models to Realities:Nuanced Perspectives on Disability

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Becoming immersed within the DisCReg safe space, sharing diverse ideas and experiences - 'What do you want to get out of today'? 

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Becoming immersed within the DisCReg safe space, sharing diverse ideas and experiences - 'What do you want to get out of today'? 

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Becoming immersed within the DisCReg safe space, sharing diverse ideas and experiences - 'What do you want to get out of today'? [Creative response warm up activity]

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Calming the Pain Brain During Times of Focus - 'How are you currently feeling'? 

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Calming the Pain Brain During Times of Focus - 'How are you currently feeling'? 

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Calming the Pain Brain During Times of Focus - 'How are you currently feeling'? [Creative response warm up activity]

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The Work-Family Conflict - 'What have you given up to be here today?' 

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The Work-Family Conflict - 'What have you given up to be here today?' 

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The Work-Family Conflict - 'What have you given up to be here today?' [Creative Response Warm Up Activity]

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Image taken by Emma Sadera showing beach ramps in NZ

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Pressure Points In The System: Ontological perspectives on the labour of changemaking

In this paper, I present a selection of ontological perspectives of marginalised people in relation to their experiences of labour entangled with and within the paradigm of changemaking. Building upon the seminal work of systemic designer Donella Meadows on "leverage points in the system"(Measdows,1999). Meadows' leverage points in the system are pivotal junctures where small changes can lead to profound shifts in complex systems. However, my focus diverges towards the ontological realities of those who exist and labour at pressure points of change that exist at many places throughout systems and societal structures. It focuses on those who are left with the burden of enacting the change designed by others in more privileged positions.

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This was a presentation at the relating systems thinking and design conference 11 in 2022. These were some of the foundational ideas that went into my PhD study idea.

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Chantal Spencer

University Of Brighton

This presentation is an exploration of changemaking design practices centred around the problematics of engagement through the lens of micro-(im)mobilities (Sheller, 2018, p2) that are reproduced in conventional participatory design and research methodologies. I have observed that traditional social design, co-design and focus group models of academic social research lean heavily on the labour of the oppressed for the gain of those in positions of power.

As a disabled woman with fluctuating health, mental and physical capacities, I must live in an extremely mindful way, measuring my energy levels and outputs like they are granules of gold dust. This gives me a lesser travelled path to and through my research and allows me a particular sensitivity to the burdens that I require of the people whom my work will benefit. With this in mind, as a consistent and defining characteristic of the experiences that myself and others are familiar with, I am working on a theoretical positioning around the principle of minimising the burden of change on the shoulders of the oppressed. I am working towards a balance between paternalistic speaking for others and the ideology of Nothing About Us Without Us (Germon, 2000). Having said that, I feel strongly that intersectional communities should be represented and be in decision-making positions of power and that "in some instances speaking for others constitutes a violence" (Alcoff, 1991). However, I would argue that in many instances requiring others to speak for themselves to attain basic human rights is also a violence. Additionally, we are always speaking for others, even if we identify as a member of that community. Meadows discusses leverage points in the system (Meadows, 1999); my work aims to better understand and communicate the ontological perspectives of marginalised people within the paradigm of change-making and how they manifest as pressure points in the system. I aim to show that careful consideration of this standpoint can be a catalyst to creativity rather than a barrier to overcome.

This presentation includes examples of previous projects that have been designed from this standpoint. I will also be discussing and sharing personal reflections on my own experiences as a disabled woman in academia and the importance of Cripping my work. I will explore ways in which Crip culture can be assimilated into research practices to the benefit of the participants and the researcher.

KEYWORDS: participatory design research, Crip culture, design justice, mobility justice, co-design, systemic injustice

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RSD is a systemic design resource that is continuously updated with the proceedings of the annual symposium and other Systemic Design Association (SDA) events. It serves as a searchable repository of peer-reviewed work in systemic design.

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Amazing sketchnotes by Abi Chapman

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Raising the voices of AuDHD women and girls: exploring the co-occurring conditions of autism and ADHD

‘You don’t look autistic’: Why neurodivergent women have been sidelined

Forthcoming in Qualitative Health Research:

Being a woman is 100% significant to my experiences of ADHD and autism: Exploring the gendered implications of an adulthood AuDHD diagnosis

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Image is of an Auckland beach at sunset, showing a flexible mat ramp extending across the sand towards the sea. In the horizon, there is a distant dormant volcano with a bird flying above it

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My memory of the one time in my life I felt truly free, and equal: Hawaii. I snorkelled with turtles, supported by an amazing crew, who had my first ever rental mobility scooter stored safely away while we were at sea. The pavements were clear, there were drop kerbs everywhere, and I was free.

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My pathway! A home on the second floor with no lift, no mobility aid storage outside of the home, a car needed to get anywhere, medical trauma and gaslighting, questioning my use of mobility aids…etc.

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I was inspired to doodle my own map, with my own barriers and access difficulties

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Please complete this form to give us your consent to use your artworks in future publications and to keep you updated on them.

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Models to Realities: Consent Form for Artworks Submission

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Title:

Model Patients: Reflections on Decolonising Disability Narratives from Aotearoa New Zealand

Bio:

Emma Sadera (she/her) is Associate Dean for Equity and Diversity and a Senior Teaching Fellow in the Faculty of Medical and Health Sciences, Waipapa Taumata Rau/The University of Auckland, where she teaches a number of subjects, including Disability Studies. Over the course of her 20-year academic career in the UK and Aotearoa New Zealand, Emma has developed varied research interests including (in)equity and social justice in educational practices, decolonising curricula, inclusive assessment, self-efficacy in teacher development, early modern representations of transgressive sexualities and maternity, and representing marginalised identities in healthcare curricula.

Summary of Talk:

In this keynote, Emma will reflect on experiences of teaching/researching about disability and teaching/researching while disabled, in colonised contexts. Taking the construction of disability models as a starting point, she will consider how these intersect and conflict conceptually with constructions of culture and Indigeneity. She will discuss how she is attempting to deconstruct the inherent colonialism within these frameworks in her teaching and research practices whilst being tauiwi (non-Māori, non-Indigenous). Emma will reflect on some wider narratives around disability, and contemplate the question of how using intersectional and decolonising lenses can impact on teaching, research, and life as a disabled academic.

Contact info:

Email:

e.sadera@auckland.ac.nz

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Register here for tickets and updates

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We are excited to invite you to the inaugural symposium hosted by the Disability Culture Research Group (DisCReg). This event promises a deep dive into the rich and varied dimensions of disability culture, offering perspectives that seek to go beyond disconnected models of disability and instead thrive in the interconnected nature of lived realities that make up Disability culture.

DisCReg is a vibrant collective of researchers at all career stages, unified by a commitment to understanding and advancing disability through a broad and inclusive lens. Our group includes members with lived experiences of disability and allies dedicated to advocating for disability rights, with a particular emphasis on centring the voices of minoritized genders. We are proud to include scholars from across the UK and globally, fostering a collaborative environment where diverse insights and backgrounds intersect.
Symposium Highlights:

Presentations from Disability Researchers: Engage with groundbreaking work presented by disability studies researchers at various stages in their research career. DisCReg's symposium will not only explore the intersections of medicine, humanities, arts, and business within disability culture but also emphasize the importance of considering diverse cultural perspectives, such as the bi-cultural insights from Aotearoa (New Zealand).

Global Contributions: Hear from researchers around the world who will join us both in person and online, sharing international perspectives and expanding the conversation on disability culture.

Hybrid Format: Our event offers a flexible hybrid format, allowing participants to attend in person or virtually from anywhere in the world. This approach ensures inclusivity and broad participation, enabling a diverse range of voices to join the discussion.

We welcome faculty, students, and industry professionals globally to join us for this insightful event. Our agenda will highlight the diversity of research within DisCReg and encourage dialogue that embraces the plurality of approaches necessary for the field.

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models to realities: nuanced perspectives on disability

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models to realities: nuanced perspectives on disability tickets

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models to realities: nuanced perspectives on disability brighton and hove

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models to realities: nuanced perspectives on disability brighton and hove tickets

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Models to Realities: Nuanced Perspectives on Disability

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Eventbrite - DisCReg presents Models to Realities: Nuanced Perspectives on Disability - Friday, June 28, 2024 at University of Brighton City Campus, Brighton and Hove, England. Find event and ticket information.

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The Models to Realities: Nuanced Perspectives on Disability

Hosted by DisCReg

Date: 28th of June

Location:

In person: room G4

University of Brighton City Campus (Room TBC).

Online: teams link: click here to go straight to the Teams call

Times: 12 noon (BST) to 4pm (BST)

Summary:

We are excited to invite you to the inaugural symposium hosted by the Disability Culture Research Group (DisCReg). This event promises a deep dive into the rich and varied dimensions of disability culture, offering perspectives that seek to go beyond disconnected models of disability and instead thrive in the interconnected nature of lived realities that make up Disability culture.

DisCReg is a vibrant collective of researchers at all career stages, unified by a commitment to understanding and advancing disability through a broad and inclusive lens. Our group includes members with lived experiences of disability and allies dedicated to advocating for disability rights, with a particular emphasis on centring the voices of minoritized genders. We are proud to include scholars from across the UK and globally, fostering a collaborative environment where diverse insights and backgrounds intersect.

Symposium Highlights:

Presentations from Disability Researchers: Engage with groundbreaking work presented by disability studies researchers at various stages in their research career. DisCReg's symposium will not only explore the intersections of medicine, humanities, arts, and business within disability culture but also emphasize the importance of considering diverse cultural perspectives, such as the bi-cultural insights from Aotearoa (New Zealand).

Global Contributions: Hear from researchers around the world who will join us both in person and online, sharing international perspectives and expanding the conversation on disability culture.

Hybrid Format: Our event offers a flexible hybrid format, allowing participants to attend in person or virtually from anywhere in the world. This approach ensures inclusivity and broad participation, enabling a diverse range of voices to join the discussion.

We welcome faculty, students, and industry professionals globally to join us for this insightful event. Our agenda will highlight the diversity of research within DisCReg and encourage dialogue that embraces the plurality of approaches necessary for the field.

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The Disability Culture Research Group (DisCReg) is a diverse community of researchers at all career stages dedicated to exploring disability through a lens that transcends the medical model. Our members include individuals with lived experience of disability as well as allies committed to advancing disability rights and perspectives with a focus on centring voices of minoritised genders. With representation from both the University of Brighton and researchers from across the UK and beyond, DisCReg fosters a collaborative environment where insights from diverse backgrounds converge.

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Lots of useful accessibility information for the site on AccessAble link above.

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Title:

Sensory Inequalities and Access to Blue Space

Bio:

Sadie Rockliffe is an ESRC SCDTP-funded PhD researcher, whose interests lie within the themes of wellbeing and therapeutic landscapes; placemaking and custodianship; and the importance of accessibility and inclusivity within blue space engagement.

Before arriving at the University of Brighton, Sadie spent over 20 years working with governing bodies and local communities to build inclusive accessible events and destination management strategies.

Summary of Talk:

Outdoor swimming is a social practice that currently displays very normative qualities around race, social class and ableness. Sadie’s research will focus on the lived experiences of people with visual impairments in relation to blue space wellbeing and engagement (including outdoor swimming). This project attempts to increase the breadth and inclusivity of this social practice in blue space by exploring the health and wellbeing benefits (and barriers to engagement) of a specifically excluded section of the population - those with visual impairments. This study emphasizes accessibility, interdependence, and the disruption of ableist norms.

Contact info:

Email:

s.rockliffe1@uni.brighton.ac.uk

Pure:

https://research.brighton.ac.uk/en/persons/sadie-rockliffe

social:

@SadieRockliffe

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Title:

Moving beyond participatory models of practice towards methodologies of radical intersectional equity

Bio:

I’m a disabled feminist academic, working in the subject areas of design justice, disability justice and mobilities. I consider myself to be a maker, designer, artist and disability rights activist. I'm currently in the first year of my PhD studentship at the University of Brighton. I am also an associate Lecturer at LCC university (UAL) in London, where I bring my expertise and knowledge of social and design justice to the curriculum. My previous professional experience includes working for large organisations like the NHS and Brighton and Hove city council in various roles relating to health and social care. Since becoming disabled, I have shifted my focus toward activism within the disabled community, especially in the arts scene in Brighton and Hove. I established and events organisation called VisAbility Arts between 2018 and 2021, our mission was to empower artists living with invisible disabilities by creating accessible spaces for them to sell and exhibit their work. Currently, I am a disabled panel member for Brighton and Hove's accessible city strategy, founder of the DiscReg (Disability Culture Research Group) and chair of the University of Brighton disabled and carer's staff network.

Summary of Talk:

My work explores legacies of oppression that exist within traditional participatory design and research methodologies. My work aims to move beyond prevailing ideologies of inclusivity, particularly those formulated by individuals in positions of power. I instead argue that radical philosophical shifts in thinking are needed, where those who are conventionally designated as the recipients of inclusivity lead the discourse. My work aims to rethink design and research methodologies from an ontological perspective enabling new ways of mobilising marginalised communities. This focus on mobilities over participation enables designers and researchers to practice working within frameworks that actively dismantle these legacies of oppression. I will be presenting an overall view of my current PhD research findings and how they bring into view the types of hidden legacies that I am highlighting.

Contact info:

Email:

c.absolom1@uni.brighton.ac.uk

Web:

www.cspencerdesign.co.uk

Blog:

www.cspencerdesign.co.uk/blog

Social:

www.instagram.com/mo_design_brighton

www.facebook.com/cspencerdesign

www.instagram.com/c.spencer.design

www.twitter.com/ChantalSpencer_

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Title:

Policy Design to Implementation: Addressing the Gaps of Inequality in Disability

Bio:

Founder of the emerging think tank focused on bringing an accessibility revolution Abi Chapman is a disability advocate, public speaker, designer & researcher.

Disabled herself, Abi Chapman has direct experience of the barriers the disabled community face on a day to day basis just to survive, let alone live and thrive. With this understanding, Chapman has worked across a variety of sectors including at management levels in the NHS and St John’s Ambulance. She now dedicates herself to using the power of creativity combined with research to bring effective changes to local communities and wider societies.

A nation-wide speaker and award winning storyteller and designer, join Abi at her latest talk at the Models to Realities Symposium, as she calls on all of us to join the accessibility revolution!

Summary of Talk:

In 2021 the British Government launched the National Disability Strategy. A 121 page policy document that was intended to be embedded into the heart of our society to work towards an equitable reality for the disabled community. Addressing everything from basic human rights to housing, healthcare, education and everything in between. This document intended to improve quality of life for disabled persons. The question is, did it do its job? Three years since its launch, and on the cusp of a general election, Chapman explores the key aims of this document and compares and contrasts the policy to the lived experience before sharing her own work, a fresh approach to the disability conversation.

Contact info:

Email:

info@accessify.uk

social:

@accessify_uk

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Title:

The disparity lens of disability

Bio:

MA Sustainable Design Student – Researcher – Speaker

Summary of Talk:

As an experimental creative practice researcher my work explores the disparity in disability concerning chronic pain.  Navigation of NHS healthcare systemic narratives are challenging and leaves a lasting effect on a person’s wellbeing, researching through an autoethnographic lens for how chronic pain creates insightful understanding into the embodiment of current NHS hospitals and the multi layers of complexity within these environments, informs a need to consider ‘otherwise’ chronic pain care.

Contact info:

Email:

f.stevens4@uni.brighton.ac.uk

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Title:

Being a neurodivergent researcher doing research about neurodivergence

Bio:

Dr Emma Craddock is a Senior Lecturer in Health Research at Birmingham City University. She completed her PhD in Sociology at the University of Nottingham in 2017 with a thesis focused on gender and local anti-austerity activist cultures. Emma’s monograph Living Against Austerity: A Feminist Investigation of Doing Activism and Being Activist was published in 2020. Emma continues to develop feminist research in the area of women’s health, and is currently researching women’s experiences of being diagnosed with autism and ADHD in adulthood, as an AuDHD researcher.

Summary of Talk:

This talk will explore the opportunities and challenges of researching neurodivergence as a neurodivergent researcher. It will draw on the researcher’s experiences of academia as an AuDHD woman researching late-diagnosed autistic ADHD women’s experiences. Emma will open up discussion about the hidden neuro-normative framing of research and academic expectations by reflecting on these experiences.

Contact info:

Email:

Emma.craddock@bcu.ac.uk

social:

@emmacraddock89

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12:00- 13:00:

Intro and warm up

intro and creative response warm up

13:00 – 14:00:

Chantal Spencer:

Moving beyond participatory models of practice towards methodologies of radical intersectional equity.

Abi Chapman:

Policy Design to Implementation: Addressing the Gaps of Inequality in Disability

Emma Craddock:

Being a neurodivergent researcher doing research about neurodivergence

Sadie Rockliffe:

Sensory Inequalities and Access to Blue Space

Q&A's

14:00 – 14:15:

Comfort Break

Tea, coffees and sandwiches provided

14:30 – 15:30

LLB Inclusive Employment:

Disability support in the workplace

Fe Stevens:

The disparity lens of disability

Emma Sadera:

Model Patients: Reflections on Decolonising Disability Narratives from Aotearoa New Zealand

Q&A's

15:30 – 16:00

Wind down:

Reflections on the day - Discussion

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Title:

Disability support in the workplace

Bio:

We provide intersectional, research-based and evidence-informed services designed to support people who are marginalised in the work place. We support disabled individuals to navigate the world of work with confidence and ease. Empowering our clients by providing consulting, research, resources, recruitment, employment support and training, we support individuals to achieve their full potential in employment; all the while exemplifying good practice as employers.

Summary of Talk:

TBC

Contact:

Facebook: https://www.facebook.com/profile.php?id=61560834783152

website

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Speaking at the Creative Changemakers Nottingham 2024 - As a previous winner of the Creative Conscience Awards, Chapman was invited back to share the power of storytelling through her own experience with disability

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Creative Conscience. Creative Change Makers PART O2

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LLB Inclusive Employment-Models to Realities: Nuanced Perspectives on Disability