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journeying through dementia intervention

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A nice overview of organizations and funding available for Adults with Severe Mental Health Conditions, as well as related legislation to the client group

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A range of legislation affects people living with dementia. These pages cover information on the Mental Capacity Act 2005 and the legislative framework for deprivation of liberty.

You can find resources explaining their relevance to the housing sector, as well as links to general information about them. They will be of interest to housing managers, providers and their partners. For example, this guide from Innovations in Dementia, 'Our Dementia, Our Rights' (opens new window) .

While the Mental Capacity Act covers deprivation of liberty, we have put specific resources relating to it in a separate sub-category to help you find them. We list the sub-categories below.

You can access them by clicking on their title or in the menu on the left-hand side.

The Mental Capacity Act 2005 clarifies the legal position of those providing help or services to people who may lack the capacity to take certain actions or decisions for themselves. It defines key principles which must be applied. These include:

Presumption of capacity

Supporting individuals to make their own decisions

The individual's freedom to make unwise decisions

Always acting in the person's best interests

Using the least restrictive option. The Act provides a test to assess someone's capacity to make a particular decision.

The Act also provides mechanisms, such as lasting power of attorney and advance decisions to refuse treatment, which enable individuals to retain some control. These measures also help people ensure their wishes are implemented in the event of future loss of mental capacity.

An understanding and implementation of the Act is essential for people working with those living with dementia. The Act and code of practice apply to all staff working with people who may lack capacity.

It is unlawful for any person to deprive any other person of their liberty except under certain circumstances and with due legal authorisation.

A Supreme Court judgement in March 2014 reduced the threshold at which someone is deemed to be deprived of their liberty if they lack the mental capacity to agree to the arrangements. This applies in housing settings as well as in care homes and hospitals.

Other relevant legislation

You might also want to look at information on other legislation not covered in this section. This includes the European Convention on Human Rights and Human Rights Act 1998, the Mental Health Acts 1983 and 2007 and the Equality Act 2010.

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Legislation - Dementia - Topics - Resources - Housing LIN

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A range of legislation affects people living with dementia. These pages cover information on the Mental Capacity Act 2005 and the legislative framework for deprivation of liberty. You can find resources explaining their relevance to the housing sector, as well as links to general information about them.

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A news report how the imbalance funding on social care and healthcare leads to insufficient support for patients with dementia 

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A news report how the imbalance funding on social care and healthcare leads to insufficient support for patients with dementia 

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More than 1,400 people with dementia who are well enough to go home will be stranded in hospital on Christmas Day, a charity has warned.

The Alzheimer's Society said the lack of social care funding was "turning wards into waiting rooms" as an investigation they carried out revealed dementia patients were delayed up to 10 times longer than patients without the condition.

There is no cure for dementia and no drugs to slow its progression, meaning hundreds of thousands of sufferers in the UK rely on social care rather than the NHS.

But the Alzheimer's Society said a £2bn shortfall in social care funding meant there was not enough support for people with dementia.

An analysis of hospital audits by the charity found people with dementia stayed an extra 500,000 days in hospital despite being well enough to leave - costing the NHS more than £170m.

The society said this was a conservative estimate as only two out of three people with dementia have been diagnosed.

Longer than necessary stays in hospital can have negative consequences for patients, causing some to become too frail to be discharged home. Hospitals can also be upsetting and confusing environments for those with dementia, according to the charity

Jeremy Hughes, Chief Executive of the Alzheimer's Society, warned that "scarce" social care funding meant wards were being turned into waiting rooms and safety was being jeopardised.

He added: "From the woman who spent two months on a bed in a corridor because there were no available care home places, to the man who died after months of waiting left him debilitated by hospital-acquired infections, people with dementia are repeatedly falling victim to a system that cannot meet their needs.

Mr Hughes demanded more money for social care to reduce the pressure on hospitals, adding: " One million people will have dementia by 2021, yet local authorities' social care budgets are woefully inadequate, and no new money has been promised in the budget to cope with increasing demand."

Karen Moore's dementia-suffering father and was stranded in hospital for six months, during which time her mother also died of cancer, so I was grieving while also trying to sort out her father's care.

"It was a nightmare. The hospital was great, but it wasn't the right environment for Dad and we were under pressure to free-up a bed. But because his needs fluctuated so much it was impossible to get him sorted with social care, so he was stuck in hospital for six months ," she said.

"Dad got infection after infection; it was like he was being taken down by a pack of wolves. Eventually, he died on the ward."

Respo nding to analysis by the Alzheimer's Society, Margaret Willcox, president of the Association of Directors of Adult Social Services (ADASS), said: "As part of a caring society, people with dementia need and deserve specialist care and support. A busy acute hospital can add to their confusion and disorientation as they thrive better when in familiar surroundings, especially their own home, with people they know."

She added that the report served as evidence of the "urgent" need to plug an estimated £2.5 billion funding gap facing adult social care up to 2020, which she said was impacting now on thousands of people in need of reliable, personal care - including those with dementia.

Cllr Izzi Seccombe, Chairman of the LGA's Community Wellbeing Board, meanwhile said: "These tragic stories of people fit to leave but stuck in hospital over Christmas reinforces our urgent call for genuinely new funding for adult social care in the Local Government Finance Settlement.

"We estimate adult social care faces an annual funding gap of £2.3 billion by 2020. It was hugely disappointing that the Chancellor found money for theNHSbut nothing for adult social care in the Autumn Budget. Spending plans for the newNHSfunding should be agreed with local government to ensure its most effective use locally."

​Cllr Seccombe urged that councils were doing "all they can" to get people out of hospital safely and quickly, urging that delays attributable to social care are down 7.2 cent from July to September.

She added: "Councils are also playing a leading role in improving the lives of people with dementia and their families through all of the services they provide, including housing, transport, leisure services, social care, public health and community safety.

"However, fundamental changes to the way we fund adult social care are needed if we are to deliver a long-term sustainable system that works for everyone in society and meets their needs with safe and high-quality services."

A Department of Health spokesperson said: "This is a very small survey based on statistics from September and isn't representative of the actual situation.

"No one should be stuck in hospital when their treatment has finished, that's why we've given an extra £2 billion funding for social care over the next three years and next summer we will publish plans to reform social care to ensure it is sustainable for the future."

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More than 1,400 dementia patients well enough to go home at Christmas will be stranded in hospital, charity warns

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More than 1,400 people with dementia who are well enough to go home will be stranded in hospital on Christmas Day, a charity has warned. The Alzheimer's Society said the lack of social care funding was "turning wards into waiting rooms" as an investigation they carried out revealed dementia patients were delayed up to 10 times longer than patients without the condition.

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An interesting speech about  how transport is improving for people with dementia at the Alzheimer’s Society Dementia Friendly Transport Conference.

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An interesting speech about  how transport is improving for people with dementia at the Alzheimer’s Society Dementia Friendly Transport Conference.

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Good morning, everyone.

It's a pleasure to be here today (6 July 2017), not least because it's the first time I get to use my new job title in full - Minister for Rail, Accessibility and HS2.

It's a slightly longer one than I had previously.

I used to just be Rail Minister.

But though I am new to the accessibility brief, I am not new to the issues.

Accessibility in its broadest sense has always been an interest of mine.

Before I became a minister I chaired the Young Disabled People's All Party Parliamentary Group.

And, sadly, I am not new to the challenge of dementia.

I represent a predominantly older constituency, and many people who either live with dementia or care for those who do.

Social change

Yet recently I've been reflecting on how society is changing in its attitude to dementia.

And it's given me cause for optimism.

It wasn't long ago that dementia was a taboo subject.

If it was talked about, it would be in hushed tones.

And there was a feeling that perhaps you wouldn't be thanked if you raised it in polite company.

But things are changing.

Partly because it's more prevalent than ever.

But also because of organisations such as the Alzheimer's Society and its volunteers.

Your work has helped give people with dementia a voice.

And this morning I'd like to set out a few ways in which that voice is being listened to.

Both by the government and by transport operators.

2020 ambition for dementia

Now, I know that the prime minister has an ambition that by 2020 we should be the best country in the world for people with dementia.

And we are making progress.

Over 2 million people in England have become Dementia Friends, for instance.

I am glad to say that I am one of them.

But our aim is to increase that number to at least 4 million.

But if we are to truly succeed, we need every section of our economy to take action.

So I'd like to mention a few things that we're doing to improve transport.

Mobility centres

First, there's the work being done by our mobility centres.

Each year we provide funding just shy of 4 and a half million pounds to 13 mobility centres in England to conduct driving assessments.

Demand for those assessments is increasing 10%, year on year.

And the largest area of increase is people living with dementia.

Now, there's often a lot of fear and anxiety about people being told they can't drive any more.

But, actually, the mobility centres' role is to enable people to keep driving safely wherever they can.

And more often than not, that is what they achieve.

Last year, just over 2,000 people referred to the mobility centres were advised to stop driving.

But almost 5,000 more were supported to continue driving safely.

And an increasing number of those will be people already living with dementia.

So a diagnosis of dementia is not in itself a reason to stop driving.

The important thing is to keep people safe through relying on proper evidence, not snap judgements.

And because we insist on evidence - evidence that's improving all the time - today 1 in 3 people with dementia are still able to drive safely.

Bus Services Act provisions

Of course, we also need to do more for people who cannot or choose not to drive.

For them, public transport is a lifeline.

It keeps them in touch with friends and family and provides access to healthcare.

So I was really pleased that just before the election our Bus Services Act was approved by parliament.

It provides powers to ensure that buses make both audible and visual announcements about the route and the next stop.

This simple reassurance of being reminded where the bus is heading and the next stop could make all the difference to someone with dementia.

So this year we will work with the bus industry, passengers and disability groups to develop the policy.

Travel to appointments competition

This intervention is a classic case of where improving technology can offer new solutions.

There's huge potential here.

But innovation works best when it's aimed at a specific problem that needs to be solved.

Consider, for example, the need to travel to medical appointments.

Everyone knows how stressful it can be to get to an appointment on time.

Especially when it's in a big, unfamiliar hospital in a part of town you otherwise rarely visit.

Well, consider how difficult that experience can be for people with dementia.

It's so difficult, in fact, that too often they don't make to the appointment at all.

And for those who do get there, they could arrive in a state of distress.

That's a problem too - feeling calm is important if the doctor is to make a proper dementia assessment, or to recommend the right treatment.

It's also just a horrible experience to go through.

So last year we contributed £120,000 to a competition to find innovative ways of reducing dementia patients' anxiety about attending medical appointments.

We set some sensible criteria.

We wanted to involve patient groups.

We wanted a person with dementia to sit on the judges' panel.

And we wanted solutions that work for all parts of the journey.

The competition is still ongoing, so I can't announce any winners yet.

But I can say we received some promising entries.

Five of which were subjected to a dragons'-den style interrogation.

Of which 2 have been selected and will now be taken to demonstration phase.

Our aim is to get products to market - so it's not just about nice ideas, but real commercial viability.

I hope we can announce more as the design and testing progresses over the summer.

Rail industry action

That's just a few things we're doing to make transport better for people with dementia.

But I wanted to mention some excellent work being taken forward by the private transport operators.

As Rail Minister, I am biased - but rail can be a particularly good form of travel for people with dementia.

Normally in speeches I like to emphasise how our railways are changing, and improving.

And they are.

But there's much about our railways that remains constant.

And when it comes to dementia, that can be a good thing.

Routes remain the same for generations.

Trains call at the same familiar stops, in a familiar order, that they did in a passenger's childhood.

Railways endure when all else has changed.

That means railways are evocative of memory.

But it also means they can be easy to use.

So I've been pleased to see rail companies seizing the opportunity to better serve people with dementia.

East Anglia trains has worked with the Alzheimer's society to deliver a dementia awareness pilot for staff at 4 stations - Norwich, Ipswich, Chelmsford and Cambridge.

Their plan is to deliver this training to all station staff.

I've also been pleased that Arriva Rail Northern has provided funds to develop the Bentham Line from Leeds to Lancaster and Morecambe as a 'centre for excellence' for people with dementia.

Airports

This is encouraging, but it's not just rail.

Many airports have been making progress too.

In November, the Civil Aviation Authority published guidance on assisting passengers with hidden disabilities. The response has been very positive.

Airports are increasingly offering special quiet routes and quiet areas.

Most airports now offer familiarisation visits to those who would benefit from them before they fly.

Heathrow has pledged to train all its 76,000 staff in dementia awareness.

And last year Gatwick was awarded the Alzheimer's Society Dementia friendly innovation award.

The future

I know that there are many more initiatives under way.

That there are so many transport operators here today indicates how seriously this is being taken.

But it would be remiss of me not to call for even more action.

Because we're only at the very beginning.

Our goal should be to place the same importance on serving passengers with dementia as we do for physical disabilities.

Later this year we will publish our accessibility action plan.

It's a plan for addressing the barriers faced by disabled people in using transport.

And it includes a focus on hidden disabilities, such as dementia.

We're going to put it out in draft first, to give people the chance comment.

And I'd love to get your views on whether our plans are the right ones.

Conclusion

But I'd like to finish with the words of a person who lives with dementia herself.

In March, Dr Joy Watson spoke at an accessibility and innovation conference we held in Westminster.

Three years ago, Dr Watson was diagnosed with young onset Alzheimer's.

And at our conference she spoke of her work as an ambassador for the Alzheimer's Society.

And how being part of the national dementia picture is what gets her out of bed in the morning.

But she also said that:

A diagnosis of dementia is not the end of the road, but the beginning of a new journey.

Some people need a little more help to take the first steps, and if I can contribute to them living well, then my mission is fulfilled.

I suggest that we who work in transport adopt that mission as our own.

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Good morning, everyone. It's a pleasure to be here today (6 July 2017), not least because it's the first time I get to use my new job title in full - Minister for Rail, Accessibility and HS2. It's a slightly longer one than I had previously. I used to just be Rail Minister.

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statutory and non- statutory services presentation 

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statutory and non- statutory services presentation 

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Statutory and non-statutory public services

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Statutory and non-statutory public services Statutory public services Non-statutory public services The education service Citizens Advice Bureau The local council Church groups The probation service The Salvation Army The NHS The NSPCC The prison service The Samaritans The armed services Alcoholics Anonymous The ambulance service Trade Unions The fire service

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What statutory and non-statutory services are, how they differ and what support they provide to public. Actual examples of services both statutory and non-statutory that are needed to public and or government.

The difference between statutory and non-statutory Public services

Public services break down into couple of categories. First category is whether the service is uniformed or non-uniformed and the second category is whether the service is statutory or non-statutory. Statutory public services are required by the law and there are legislations in place that government set for them to be in place to keep peace and order within the country and or sometimes abroad. The Non-statutory public services are not required by the law, but are still needed for public in practical situations and sometimes even crucial help is provided by these non-statutory services.

Non-uniformed and non-statutory services can be: electricity, gas, water suppliers, public transportation and other which are not required by law and many of them are owned by private businesses and are run for profit. But as long as they provide fair and needed service to public it is acceptable. Non-uniformed statutory services can be: schools and education, council services and other legal aid are required by law to be in place. Usually they are self-funded organisations, but sometimes they can receive money from government or donations.

Uniformed statutory services can be: police, fire brigade, ambulance and army. These services are required by law to maintain law and order in the country and some places abroad for armed forces. They are usually financed by government, but sometimes receive help from charities like The Royal British legion that helps veterans and soldiers that served overseas.

A Non-statutory service also splits into two groups - voluntary Non-statutory service and Non-statutory service that is funded by government. Non-statutory public service can be ran for profit and voluntary services main objectives are to fill in gaps that statutory services cannot or are not able to cover. Non-statutory services support statutory services, some of them are voluntary and are not funded by the government, so they have to cover their expenses by donations from people.

How these services support the public and citizens?

They support the public by giving them assistance in whatever the issue is. We have Public services that cover most of the problems that society could confront, from emergency situations to information, utilities and legal help. Each service specialises in specific areas and people that work there are professionals with adequate equipment, so they could be efficient and effective. People that work in the services have needed training and knowledge in the area they specialise and when these services work together they can control the situation effectively.

Examples of actual services
The Highways Agency
Highway agency is non-statutory agency, but is funded by government. They are in place to maintain main A roads and motorways in good condition, solve problems that may occur on the road like helping to clean the road after a lorry has accidentally dropped his cargo on the road. They also manage variable road signs that close roads and changes line speed. They monitor CCTV cameras for suspicious or dangerous behaviour on road and report it to police.

They carry out their duties by watching live feed from CCTV cameras and observing roads. Also they have centralised control room where they can operate all the road variable signs and report all suspicious or dangerous behaviour to police, so they could act quickly and effectively.

They support public services by helping them to manage a roads and motorways. They observe and control traffic flow by using variable road signs, inform drivers about collisions ahead and new speed limits. By this reducing level of danger on the roads and making other public services work more effective, so other public services could take care of more important things.

They were mainly created to support police service, but they also support other services like fire brigade and ambulance when they need help by managing and closing roads also helping to remove/sweep debris after collisions.

More information about Highways Agency here: http://www.highways.gov.uk/
Victim Support
Victim support is a non-statutory organisation that is partly funded by government and partly from donations to support victims and witnesses of crime in the UK. If you've been a victim of any crime or have been affected by a crime committed against someone you know, victim support organisation can help you find the strength to deal with what you've been through. They can also provide information about legal system and explain you your rights.

They provide information about legal system to witnesses, explain them their rights and what the next step that they should do is. Also they provide emotional support and if victim or witness is afraid to confront with the criminal, because he/she was threatened they will arrange glass cabinet so victim won't have direct contact with the criminal or the court procedure could be modified to suit victim/witness needs.

It supports citizens by providing all the information about legal process that victim/witness will be going through, takes care of victims and witnesses by providing psychological and mental help, so victim/witness would not be afraid to give statements against the criminal and by this supporting police investigation teams to collect evidence faster and sentence the criminal.

They mainly support police service and all the legal system including courts. They deal with the victims and witnesses so police or courts do not need to hire additional staff and police officers could do jobs that are more important and urgent.

More information about Victim Support agency: https://www.victimsupport.org.uk/
Help for Heroes
Help for Heroes is a voluntary non-statutory charitable organisation that collects money from people and donates them to support wounded and injured soldiers who come back from war with life-changing injuries and life-changing illnesses. National Health Service cannot fund all of the soldiers that came from war with medical condition and Help for Heroes is the bridge that helps those soldiers to get special equipment like wheelchairs or artificial limbs in order to be able to enjoy their life.

Help for Heroes organisation does various different types of events to raise money like: hiking, running, trekking or does ceremonial parades. Also they have recovery centres where wounded soldiers can get financial support, inspiration, sport and adventure training. They provide individual support and rehabilitation at special facilities that has swimming pools, gyms, cafeterias and other special equipment.

It supports by funding people that come back from war with life-changing injuries and life-changing illnesses when people that served in Armed forces needs special equipment or medication witch is expensive and National Health service cannot fund it. It also saves taxpayer money, because National Health Service is funded by taxpayer money. And it is important that they support people that fought against terrorists by that protecting and standing up for us and the society we live in.

They mainly support people from Armed forces including: Army, Navy, and Air Force.

More information about Help For Heroes Organsiation: http://www.helpforheroes.org.uk/
The Royal National Lifeboat Institute
They are to save people that got in trouble at sea and provide them first aid if needed. Fishermen, sailors or just people who go swim for entertainment. Situations like faulty engine or out of fuel can lead people trembling in the sea. Sailors can get in storm and that could lead them to drowning. That's why RNLI are ready to help and they also save people from flooding's when they get stuck in their homes. RNLI goes to other countries/continents and educates children how to deal with various situations you can get in when dealing with water.

They patrol the sea and rivers in all the UK for people and ships that get in trouble. They have radio communication and they receive emergency calls which they go to. They have special equipment with whom they can drag broken motor boats to coast and save people. They monitor sea conditions and sets up appropriate flag to prevent people from going to danger, watch people on the beach and offer safety advice.

They support public services by preventing people getting in danger. They are specialists that specialise in saving people from the seas and rivers, so public services like river police or ambulance wouldn't need to save people from water. They can provide first aid to people in beach and save someone's life before ambulance comes, because they are always available at the coast. RNLI lifeguards have to be very fit and well trained to be able to carry the pressure of this kind of job.

They mainly support river police, because they sometimes help and provide assistance to them if they need any and they also support ambulance with their effective special transportation (all-terrain vehicle) on the beach who can quickly transport them to victim on sand, so they could provide first aid to victim and help ambulance to carry the person to the ambulance, because in emergency every minute counts.

More information about the RNLI: http://rnli.org/

Involvement justified of statutory and non-statutory public services in providing support to citizens

Why do public need statutory and non-statutory services?

Non-statutory and voluntary services are needed, because they fill the gaps in society and in the system. Statutory services are required by the law and government put them in place, because society needs them to keep law and order. Government need someone to specialise and be professionals at certain issues from emergencies to providing utilities like electricity, gas and water. These services whether they are statutory or non-statutory have special equipment and can provide aid for people that need it. Statutory services have some restrictions about their job and their roles are strictly set by a government and non-statutory services can be flexible and there are roles where they can be very useful and helpful. Some of these services statutory or non-statutory works 24/7 and can help you anytime you get in trouble or in emergency situation. And other services provide legal information and their work is office based like citizens advice bureau, council or victim support.

What would happen if society would not have non-statutory and statutory public services?

Without Public services living would be difficult and more primitive for society, everyone would do whatever they want like animals in the wild. It would be dangerous, because no one would control criminals and people would not even get support if they get in trouble. There are countries with no or corrupt Public services where police officers takes bribes from people or beat them for no reason. Life there is violent and you can get shot in any minute. People with mental conditions have firearms, there and no one to control them. If society wouldn't have any public services chaos would happen in few days and the country could get invaded by terrorists. Crime rate would raise, people could not get medical treatment or any treatment at all. If building would get on fire and it probably would happen at high rate, nobody would take fire off and City would be destroyed in few weeks. That's why Public service is important and that's why we need them.

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Statutory and Non-Statutory Public Services

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Public services break down into couple of categories. First category is whether the service is uniformed or non-uniformed and the second category is whether the service is statutory or non-statutory. Statutory public services are required by the law and there are legislations in place that government set for them to be in place to keep peace and order within the country and or sometimes abroad.

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The role of Private domiciliary care for dementia care

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The role of Private domiciliary care for dementia care

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https://www.nice.org.uk/sharedlearning/the-role-of-private-domiciliary-care-for-dementia-care

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Aims and objectives

To integrate Home Instead Senior Care with the statutory and voluntary services for Dementia clients and carers in the Tendring areaObjectives:

Home Instead to be aware of and have general understanding of the statutory and voluntary services for dementia clients in the Tendring area

Home Instead to be aware of and have general understanding of the statutory and voluntary services for carers involved with dementia clients in the Tendring area

Home Instead office to maintain a resource library of resources relating to dementia

Resources relating to dementia to be offered at no cost to clients, carers, statutory and voluntary organisations as the need arises

Home Instead to develop and maintain an ongoing working relationship with all statutory and voluntary services for dementia in Tendring

When caring for clients with dementia ensure they are aware of the various services available to them and support them, when needed, to access these services

For clients with dementia, maintain details of all agencies involved in their care and ask to be involved in multi-disciplinary meetings

Provided consent given, promptly supply information that will assist in care planning to other agencies

Attend relevant focus groups and forums such as the Tendring Older Peoples Forum

Promote inter-disciplinary work by activities that reach out to the community such as the Alzheimer Family Workshops which are open to the public and carers

Reasons for implementing your project

The owner of Home Instead Senior Care Clacton Frinton and Walton, comes from a nursing and midwifery background plus extensive experience with work overseas. In setting up the service, it became apparent that private domiciliary care companies are very much on the outside of the care team and are viewed by the care team to be interested primarily in profit and not quality of care. The private domiciliary care companies provide extensive day to day care for clients with dementia yet are rarely included in multi-disciplinary meetings or care planning. The company sets up very detailed person centred care plans implemented by well trained care-givers and this is a big missed opportunity for dementia services who could use the care Home Instead provides to radically improve clients quality of life.

The company has been operating for over 5 years and in that time the owner has worked to set up a private domiciliary care company that is professional and puts the needs of the client first. She has built up an extensive network with statutory and voluntary agencies to which the company refers people to. The owner is still in the early stages of establishing this company as an equal and key player in the multi-disciplinary team. The general public who seek guidance from Home Instead generally report a lack of support and confusion with the dementia support in our area.

This is not a project as such rather an approach to care. In setting up the business, its leadership saw the need for better integration and collaboration between private companies and the statutory and voluntary sector. We did not carry out a baseline assessment but found, when meeting people or attending meetings that we were the only private care company working in this way. We involved our clients (patients) by signposting to them any useful resource we found and the feedback we got was that they were very grateful for this information and guidance. The benefit from following the NICE guidelines were the clients received a holistic care package and their independence was strengthened.

How did you implement the project

The steps we have taken to put NICE guidelines into practice are:

Regular visits and contact with statutory and voluntary agencies involved in dementia care

Attendance by the owner at key forums, meetings and consultation events

Establishment of a resource library at the office with materials from the above

Detailed person centred care plans which, among other things show:
-all agencies involved in that persons care
-gives extensive about the persons background, personal preferences, abilities etc
-promotes independence and is adapted as needs change

Adoption of a health promotion approach to care whereby we seek to assist clients to achieve the best quality of life possible for them and work alongside them to achieve this

Active signposting to clients and their families to any useful resource which would improve their quality of life

Ongoing dissemination to office staff and caregivers about the above resources

Dementia training for caregivers. A two-day City and Guilds certified course

Consistent and caring support to caregivers to enable them to care for clients with dementia and cope with challenging behaviour

Alzheimer Family workshops which are free and open to family members, volunteers and any staff from the care sector

The steps taken to put NICE guidance in place are described in the box below. The main problem we faced was convincing the statutory and voluntary services to see us as an equal partner in the care sector and to convince them that being a private for profit company did not mean we were only interested in profit; i.e we had to convince them we had the clients best interest at heart and were committed to providing high quality care.

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The role of Private domiciliary care for dementia care

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To integrate Home Instead Senior Care with the statutory and voluntary services for Dementia clients and carers in the Tendring areaObjectives: Home Instead to be aware of and have general understanding of the statutory and voluntary services for dementia clients in the Tendring area Home Instead to be aware of

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A recent research article (2017) talking about the contextual factors impacting the delivery of dementia care in China!!!

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Crowded living condition has a negative impact on the well-being of dementia patients

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Crowded living condition has a negative impact on the well-being of dementia patients

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A 400 sq ft flat can be subdivided to accommodate nearly 20 double-decker sealed bed spaces

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Dementia and the use of arts in care home

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Dementia and the use of arts in care home

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How Hong Kong aged care home is using art to keep minds active

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Art is breathing new life into the Jockey Club Sunshine Complex for the Elderly where four out of five new residents suffer from some form of dementia....

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Frontotemporal Dementia is a form of progressive dementia. Learn more about Frontotemporal Dementia

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Dementia: NICE clinical knowledge summaries 

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Dementia: NICE clinical knowledge summaries 

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Policy and informal care for dementia patient in China

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Policy and informal care for dementia patient in China

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Interesting article about how one-child policy in China impact the provision of informal care to dementia patient. 

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Will China be able to care for millions of dementia sufferers?

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Experts warn the government must plan for the huge numbers likely to suffer with the condition in the coming decades as the nation's population rapidly ages

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The children keeping their local care home young and fun

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Babies and toddlers are bringing singing and music into their local care home in north-east London.

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OT news Oct 17'edition
OT news Oct 17'edition
Social Interaction a
 Social Interaction and Dementia
Marmot review - Life expectancy and Dementia
Marmot review - Life expectancy and Dementia 
Next book on the list to read..
Next book on the list to read..
Your in safe hands in Surrey...
Your in safe hands in Surrey...
anyone for a film?
anyone for a film?
📎 Document
😎fabulous poster
 😎fabulous pos

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Social Interaction and Dementia

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Chatting to care-home residents about their interests boosts their quality of life, according to trial

Just one hour a week of social interaction can improve the quality of life for dementia patients in care homes, a study suggests.

A trial involving more than 800 people with dementia across 69 English care homes found that increasing the amount of time spent communicating with residents could boost older people's wellbeing when combined with personalised care.

As well as improving quality of life, the programme reduced levels of agitation and aggression.

Prof Clive Ballard of the University of Exeter medical school said: "While many care homes are excellent, standards still vary hugely. We have previously found that the average amount of social interaction for people with dementia was just two minutes a day. It's hardly surprising when that has a knock-on effect on quality of life and agitation.

"Our approach improves care and saves money. We must roll out approaches that work to do justice to some of the most vulnerable people in society."

The trial, funded by the National Institute of Health Research, ran between January 2013 and September 2015. People with dementia were randomly picked to take part in the programme for nine months or continue with their usual treatment. At the end of the period they were assessed for quality of life, agitation and other symptoms.

Two "care-staff champions" at each home were designated to perform simple tasks such as talking to residents about their interests and decisions around their own care.

The results, published in the journal Plos Medicine on Wednesday, showed statistically significant improvements in residents included in the programme, when compared with those who were not in it. The benefits were found to be greatest in those with moderately severe dementia.

The research, led by the University of Exeter, King's College London and Oxford Health NHS foundation trust, is believed to be the largest non-pharmacological randomised control trial in people with dementia living in care homes.

Dr Jane Fossey of Oxford Health NHS foundation trust said: "Taking a person-centred approach is about getting to know each resident as an individual - their interests and preferences - and reflecting these in all aspects of care. It can improve the lives of the person themselves and it can be rewarding for carers too."

There are an estimated 850,000 people with dementia in the UK. It has been described as the biggest health challenge facing the country, with the figure expected to increase to more than 1 million by 2025 and reach 2 million by 2051, according to Alzheimer's Society.

The researchers say the next challenge is to roll out the programme to the 300,000 people with dementia living in the UK's 28,000 care homes.

Doug Brown, the director of research at Alzheimer's Society, said: "This study shows that training to provide this type of individualised care, activities and social interactions can have a significant impact on the wellbeing of people living with dementia in care homes. It also shows that this kind of effective care can reduce costs, which the stretched social care system desperately needs."

Topics

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Just one hour a week of social interaction helps dementia patients

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Chatting to care-home residents about their interests boosts their quality of life, according to trial Just one hour a week of social interaction can improve the quality of life for dementia patients in care homes, a study suggests.

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Marmot review - Life expectancy and Dementia 

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Marmot review - Life expectancy and Dementia 

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PressReader.com - Connecting People Through News

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Connecting People through News. All-you-can-read digital newsstand with thousands of the world's most popular newspapers and magazines. Vast selection of top stories in full-content format available for free.

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Mitchell was 58 when she was diagnosed with early-onset Alzheimers. She began to write about the experience of losing herself, and the result is this remarkable memoir

hings begin, as so often, with a fall. A hard fall, while out running along the River Ouse in York, hard enough that Wendy Mitchell has to go to A&E; hard enough that when she goes back later to find the flagstone that caused it, the blood from where her face hit the pavement serves as a bright marker. Yet there is no obvious hazard.

Then, another day, another fall. And another. The year before, she had completed the three peaks challenge; now she finds she must give up running. Then, after a couple of unsafe incidents on the road, driving. Parts of herself crumbling, or, one day, when she looks up from her desk at work and finds she has no idea what she's doing there, dropping so fast it's like "ripping a plaster away". When she finally gets an official diagnosis it's as though she already knows: early-onset Alzheimer's. She is 58.

This revelatory book, written with the journalist Anna Wharton, is a recording of Mitchell's disappearance, as it happens. She is clear that the onset of the disease signals, for her, an existential rupture. There was a self before, and now that self has ceased to exist. "You", her current self calls her previous self. "I remember the frantic pace, the speed with which you tackled things" - fell-walking, DIY, especially after the father of her two daughters left.

She used to earn a wage as a cleaner, then, when the girls were older, as an NHS receptionist, working to become an all-competent leader of a team rostering nursing shifts in a busy hospital. That previous self seems, understandably from this specific vantage point, almost superhuman. A different story begins to leak out, however: loneliness, industriously hidden sadness, a stroke from stress and overwork. But "memory was your thing", also independence, resourcefulness, pluck. A fighting spirit.

There is still a person in there, forgetful, yes, confused, often, but still in need of love, conversation and laughter

And these last, in fact, remain. Mitchell fights against everything about her disease, every step of the way, the very recording of its progress being one method (she keeps a blog, which provided the basis for the interviews that Wharton then used to stitch this account together). Writing and remembering to use her brain holds Alzheimer's at bay for another hour, another week, another day. As, she believes, does her singleness: Mitchell is good on the double-edged sword of having dementia when one has a partner - about the guilt and the dependence, which, she thinks, hastens the progress of the disease.

She rails against the system, by which she feels abandoned, first because "there is no follow-up after diagnosis. There is nothing they can do"; second because, when she tells her managers what is happening, expecting them to attempt flexibility, to trust her and work with her, they offer only early retirement. This is one of the baldest and thus weakest points in an otherwise textured book; I found it hard to believe that someone who worked in the NHS for 20 years could be so dismissive of it, wondering if something had been left out, or tweaked, for polemical effect.

Much more interesting is her fierce alertness to others' perceptions and preconceptions, understanding them because she herself once shared them: that dementia patients are very old, helpless, blank. Cancelled, in a way, as people. Like any progressive disease, dementia is a continuum, she tells once-friendly neighbours who cross the street to avoid her; it is also fitful - there are bad days, and good ones. And there is still a person in there, forgetful, yes, confused, often, but just as in need of validation and love and conversation and laughter as anyone else. She attacks the fear - which is of nightmares made real: words going missing in public meetings, being invisible. Whole familiar cities made alien. Sounds like gunshots ripping through her head. "I lost yesterday. I don't know what happened to it." This, a report from the other side, is one of the most valuable things about the book - a detailing of what the disease actually feels like, a demystification.

She arms herself with practical ingenuities: dementia bingo; iPads pinging to remind her to take pills, to eat. A bright pink bike, not because she especially likes pink, but because it would be harder to forget. Novels become impossible to read, so she reaches for short stories and poems. Each time she congratulates herself for staying a step ahead, but at her worst moments she wonders: "Wasn't I going to see the world? What happened to all the time I thought I had?" And who is "I", anyway? Pre-dementia Wendy? Today Wendy, who is different from tomorrow Wendy? For the reader, there is also the ventriloquised, ghostwritten "I", complicating matters further.

But the "I" fights for others too, for people with dementia everywhere - travelling up and down the country to talk to conferences, to researchers. She fights for positive language, asking student nurses what words spring to mind when they hear the term "dementia": "demented, senile, burden, sufferer, old age, living death". What about, for instance, replacing the passive "suffering" with the active "living with"? - things might feel more possible, there might be at least an illusion of agency.

She learns, quickly, the "harsh lessons" Alzheimer's teaches: a conscious tomorrow may not exist; live, then, as well as possible, in today. It is striking how much of self, she discovers, is located in language. Speaking becomes difficult, but she can still write as fast as ever, WhatsApping, blogging, emailing, until one day that stutters too. It comes back, but there is no mistaking the existential vertigo: "I have become used to looking up in familiar surroundings and not knowing where I am, but this was something else. I was lost inside. Screaming to get out. It was terrifying."

Talk, then. Talk as much as possible, while it is still possible. Talk to loved ones, explain what needs to happen, about care, about resuscitation, about death. Make choices now to make theirs, already hard, a little easier later. Brave the mutual dance of fear and reassurance. But what she can least bear is losing the future she thought she and her daughters had together. And so she redoubles her efforts, writing herself notes and instructions that collect in drifts on the floor, on her cupboards, on her walls, fragments shored against the coming ruin.
Aida Edemariam's The Wife's Tale is published this month by 4th Estate.* Somebody I Used to Know is published by Bloomsbury. Save £5 on our book of the month. To order a copy for £11.99 (RRP £16.99) go to bookshop.theguardian.com or call 0330 333 6846. Free UK p&p over £10, online orders only. Phone orders min p&p of £1.99. Topics

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Somebody I Used to Know by Wendy Mitchell review - dementia from the inside

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Mitchell was 58 when she was diagnosed with early-onset Alzheimers. She began to write about the experience of losing herself, and the result is this remarkable memoir hings begin, as so often, with a fall.

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Royal Surrey County Hospital (RSCH) has been named by patients as the best place in the county to get dementia treatment.

It comes following the publication of the results of the annual patient-led assessment of care environment (PLACE) in Surrey.

The assessment looks at 279 organisations across the region, including hospitals, hospices and day treatment centres across the county.

It involves volunteers visiting hospitals as part of teams to examine how the environment supports patients' privacy and dignity, food, cleanliness and general building maintenance.

Royal Surrey was highly recommended for its food, condition, appearance and maintenance of facilities, and dementia and disability care.

It also ranked above the national average across all sections of the survey.

Louise Stead, RSCH director of nursing and patient experience, said: "The assessment is carried out by our most important critics, our patients, and I am sure that those living with dementia and their families will take a great deal of comfort in the knowledge that they think we are the best environment in Surrey for this vulnerable group of patients."

The number of people living with dementia in the UK expected to rise to one million by 2021.
Keep up to date with the latest news from around the county via the free Get Surrey app. You can set up your app to see all the latest news and events from your area, plus receive push notifications for breaking news. Available to download from the App Store or Google Play for Android.

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Royal Surrey best in the county for dementia treatment

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Royal Surrey County Hospital (RSCH) has been named by patients as the best place in the county to get dementia treatment. It comes following the publication of the results of the annual patient-led assessment of care environment (PLACE) in Surrey. The assessment looks at 279 organisations across the region, including hospitals, hospices and day treatment centres across the county.

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(Image: Calvin Marketing)

Dementia-friendly cinema screenings will be held in Esher and Walton this April.

People living with dementia, their friends and family will be able to enjoy the new movie The Founder at Morning Matinees at the two Everyman Cinemas on April 24 and 26.

The special screenings have been catered to suit the needs of those with dementia, so they can relax watching the new film The Founder.

The movie showcases the rise of huge food franchise McDonald's.

Lights will be dimmed rather than switched off during the screenings and people are free to move around the cinema.

Damien Nolan, owner of Home Instead Senior Care, who partnered with Everyman Cinema on the project, said: "At Home Instead many of our clients are living with Alzheimer's or other forms of dementia, so we understand the challenges faced by family carers.

"The dementia friendly cinema screenings are a wonderful opportunity for people living with dementia, their friends and family to have time together in a safe environment, watching wonderful movies."

Home Instead Senior Care caregivers will also be in attendance, who are trained dementia specialists.

Esher screening

Everyman Cinema, 22 High Street, Esher, KT10 9RT

Monday April 24

Walton screening

Everyman Cinema, 85-89 High St, Walton-on-Thames, KT12 1DN

Wednesday April 26

Tickets

£2.50 each or free to Home Instead clients.

To enquire or book, contact Home Instead Senior Care on 01932 241020.

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Special dementia-friendly film screenings offer safe space

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Dementia-friendly cinema screenings will be held in Esher and Walton this April. People living with dementia, their friends and family will be able to enjoy the new movie The Founder at Morning Matinees at the two Everyman Cinemas on April 24 and 26.

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😎fabulous poster