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Caregivers provide personal care to older adults and people with disabilities. This includes helping clients with their daily living tasks such as: bathing, dressing, using the toilet, personal hygiene, transferring, walking, meal preparation, light housework, grocery shopping, and trips to medical appointments.

To be a paid caregiver you must

Be 18 years old or older.

Pass an in-state and federal (FBI) criminal conviction background check.

Provide picture ID and be authorized to work in the U.S.

Successfully complete all the caregiver training requirements (see below).

Work place

In-home placement

Agencies

Veteran Services

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Caregiver Support is a Phone Call Away

Talk to caring people for practical caregiving information and help finding local resources/services.

Contact your local Family Caregiver Support Program.

There are several ways to become a paid caregiver. You can be hired by:

Home Care Agencies and Facilities that Hire Caregivers

Home care agencies hire, train, pay, supervise, and are responsible for the care you provide as a paid caregiver in someone's home. Contact them directly to see if they have any openings. Use The National Association of Home Care and Hospice locator to get a listing of home care agencies in your area.

Adult family homes, assisted living facilities, and nursing home hire, train, pay, and supervise their caregivers. Contact them directly to see if they have any openings. Use the links here to learn more about these types of facilities and get a listing of facilities where you live.

People Hiring Caregivers Directly

The Home Care Referral Registry (available in many, but not all, counties throughout Washington) links Medicaid consumers with paid caregivers. Learn how to get on the Referral Registry.

Look in your local paper in the help wanted section to see if anyone is looking to hire a paid caregiver. You can also check bulletin boards for ads in local grocery stores, places of worship, senior centers, hospitals, doctor's offices or libraries.

In-Home Caregiver (Individual Provider)
IRS Notice 2014-7, Difficulty of Care Payments Excludable from Income Frequently asked questions about becoming an in-home paid caregiver
The state pays for a caregiver if the person needing care lives at home, is eligible for care services, and needs Medicaid to help pay for them. In this situation, the person who needs care hires and supervises the caregiver but the caregiver is paid by the state for these services. Caregivers contract with the state to provide these services and are called Individual Providers (IPs).

The types of care tasks that an IP is authorized to do and the number of hours an IP will be paid to do them is determined by a care plan. The care plan is the result of a care assessment completed by the DSHS social worker/case manager working directly with the person who needs care.

An IP must meet a number of requirements to contract with the state, including:
Be 18 or older.

Pass a criminal conviction background check.

Provide picture ID and be authorized to work in the U.S.

Not be the spouse of the person getting care.

Sign a contract with DSHS and agree to the conditions listed in it.

Successfully complete all of the caregiver training requirements.

A person using Medicaid to help pay for long term care services who wants to employ you as their IP should contact his or her case manager.

Family or friends as unpaid caregivers

The majority of people who provide care for an adult family member or friend are not paid. There is free or low cost help for unpaid caregivers through the Family Caregiver Support Program. Learn more about the services offered through the Family Caregiver Support Program.

CarinaCare

Carina helps individuals, families and home care professionals find qualified, verified caregivers and more hours. Find out more about this free resource at www.CarinaCare.com

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Caregiver Support is a Phone Call Away Talk to caring people for practical caregiving information and help finding local resources/services. Contact your local Family Caregiver Support Program. There are several ways to become a paid caregiver.

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On February 16, 2024, AHCCCS received approval from CMS to permanently allow parents of minor children to get paid to provide attendant care and habilitation when it meets an “extraordinary” care definition.

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AHCCCS received temporary authority from the Centers for Medicare and Medicaid Services (CMS) to allow parents of minor children with disabilities to be paid caregivers during the federal COVID-19 Public Health Emergency (PHE) on April 6, 2020. This temporary authority ensured children received services during the PHE. It also ensured services continued when direct care workers became ill or left the workforce. AHCCCS sent an 1115 Waiver amendment to the Centers for Medicare and Medicaid Services (CMS) requesting to make this authority permanent on September 27, 2023.

On February 16, 2024, AHCCCS received approval from CMS to permanently allow parents of minor children to get paid to provide attendant care and habilitation when it meets an "extraordinary" care definition. AHCCCS and DDD published a letter announcing they will collaborate to implement this change.

The Division and AHCCCS began working with a group including families, providers, and health plans on May 15, 2024. This group will provide input on the required policy and procedures. They will also help to create new tools for use in the assessment process.

Who qualifies as a "parent" to provide this service?

Parents who have formal physical and/or legal custody of their minor child. This includes guardians of minor children. Stepparents do not fall under the CMS definition of a legally responsible parent under the new authority. Stepparents can provide paid care without the limitations of this new authority as family members. DDD will update its policies in the future to align with AHCCCS policy.

What does "extraordinary care" mean in relation to this service?

AHCCCS defines "extraordinary care" as:

Care for the member that exceeds the range of activities a parent would ordinarily perform in the household on the member's behalf if they did not have a disability or chronic illness, and

Care which is necessary to assist the member's health and welfare to avoid institutionalization.

What will change as this flexibility becomes permanent in the months ahead?

Tools will be revised and developed for use in the assessment process.

Parents will be limited to 40 hours of paid care per week per child in the future if the member is assessed for more than 40 hours of service per week. The limitation will be phased in. The schedule will be communicated as it is developed. Support Coordinators continue to use the PHE guidance (English)/PHE Guidance (Spanish) to assess the need for this service.

When the limitation starts, the child can receive additional hours over the maximum 40 hours of authorized services being provided by a parent in a given week, through an alternate caregiver.

Qualified Vendors will continue to hold quarterly supervisory visits with the parent(s) being paid to provide the service. During these visits, they will also help assess the needs of the family caregiver.

The AHCCCS website continues to be updated including their Frequently Asked Questions related to this topic with the most up-to-date information.

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AHCCCS received temporary authority from the Centers for Medicare and Medicaid Services (CMS) to allow parents of minor children with disabilities to be paid caregivers during the federal COVID-19 Public Health Emergency (PHE) on April 6, 2020. This temporary authority ensured children received services during the PHE.

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Arizona Moms of Children with Disability can get paid as full-time caretakers

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Arizona Moms of Children with Disability can get paid as full-time caretakers

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"Knowing that this program being permanent for them, brings them so much relief and stability and consistency in their lives knowing that they're going to know how to pay their rent next month, they're going to be able to put food on the table themselves, they're going to be able to get out of government services that they've otherwise relied on through their own employment and work ethic is really powerful." Gov. Hobbs

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Gov. Hobbs announces more children will be eligible for KidsCare, parents can get paid to provide care for disabled children.

PHOENIX - It took them three years, but Arizona mothers of disabled kids are now celebrating a huge victory for their children.

Gov. Katie Hobbs announced Monday that the Biden Administration will allow parents like Brandi Coon of Queen Creek to be their child's full-time caregiver - with pay.

Coon said that, since 2021, she and a group of moms did a lot of knocking on doors and heard a lot of "no's." Finally, Gov. Katie Hobbs announced the Biden administration will allow parents like Coon to be their child's full-time paid caregiver.

Coon, a former school teacher, was already providing round-the-clock care for her 9-year-old son, Tyson. Tyson has complex medical issues, including cerebral palsy and epilepsy.

As Coon tells it, a few parents got together on Facebook three years ago to brainstorm ways to make permanent the "Parents As Paid Caregivers" program that started during the pandemic.

A change.org petition didn't do the job, but their hard work, research and persistence paid off.

Coon explained why she teared up when she spoke at Hobbs' news conference Monday.

"I've heard thousands of stories from parents on how this program has made a change in their lives the last few years," Coon said during an interview.

"Knowing that this program being permanent for them, brings them so much relief and stability and consistency in their lives knowing that they're going to know how to pay their rent next month, they're going to be able to put food on the table themselves, they're going to be able to get out of government services that they've otherwise relied on through their own employment and work ethic is really powerful."

The Biden Administration also approved Gov. Hobbs' expansion of KidsCare, the state's Medicaid program for children.

On April 1, the upper-income limit for KidsCare families will increase to 225% of the federal poverty level - $70,200 for a family of four.

An estimated 10,000 more children will become eligible.

For the Parents as Paid Caregivers program, disabled children must be enrolled in the Arizona Long-Term Care System.

Parents must get training as caregivers from a provider that will hire them through the state-funded program.

About 3,600 severely disabled children are eligible.

12News on YouTube

Catch up on the latest news and stories on our 12News YouTube playlist here.

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Arizona moms of children with disability can now get paid as full-time caretakers

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Gov. Hobbs announces more children will be eligible for KidsCare, parents can get paid to provide care for disabled children.

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Big Companies offering benefits to help caregivers

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Big Companies offering benefits to help caregivers

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AT&T management employees are entitled to caregiver leave, which gives them up to 15 days off a year to care for ailing children or other relatives without eating into their vacation or personal sick days.

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AT&T offers managers a rare benefit: paid time off to care for loved ones

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AT&T management employees are entitled to up to 15 days off caregiver leave, which allows them to care for ailing children or other relatives without eating into their vacation or personal sick days.

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You’re constantly exhausted, even after sleeping or taking a break.

You neglect your own needs, either because you’re too busy or you don’t care anymore.

Your life revolves around caregiving, but it gives you little satisfaction.

You have trouble relaxing, even when help is available.

You’re increasingly impatient and irritable with the person you’re caring for.

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Caregiver Stress and Burnout - HelpGuide.org

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Caregiving stress can lead to burnout if you don’t take care of yourself. These tips will help you avoid caregiver burnout and regain control over your life.

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Ask for and accept help.

Focus on what you can do.

Set goals you can reach.

Join a support group.

Seek social support.

Take care of your health.

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Caregiver stress: Tips for taking care of yourself

Caring for a loved one strains even the most resilient people. If you're a caregiver, take steps to preserve your own health and well-being.
By Mayo Clinic Staff
As the population ages, more people are doing caregiving. About 1 in 3 adults in the United States is an informal or family caregiver.

A caregiver is anyone who helps another person in need. A person in need might be an ill spouse or partner, a child with a disability, or an aging friend or relative.

Caregivers report higher levels of stress than do people who are not caregivers. It's important for caregivers to know that they, too, need help and support.

Caregiving is rewarding but stressful

Caregiving can have many rewards. For most caregivers, caring for a loved one feels good. And it can make your relationship stronger.

But the demands of caregiving also cause emotional and physical stress. It's common to feel angry, frustrated, worn out or sad. And it's common to feel alone.

Caregiver stress can put caregivers at risk of changes in their own health. Factors that can increase caregiver stress include:

Caring for a spouse.

Living with the person who needs care.

Caring for someone who needs constant care.

Feeling alone.

Feeling helpless or depressed.

Having money problems.

Spending many hours caregiving.

Having too little guidance from health care professionals.

Having no choice about being a caregiver.

Not having good coping or problem-solving skills.

Feeling the need to give care at all times.

Signs of caregiver stress

As a caregiver, you may be so focused on your loved one that you don't see how caregiving affects your own health and well-being. The signs of caregiver stress include:

Feeling burdened or worrying all the time.

Feeling tired often.

Sleeping too much or not enough.

Gaining or losing weight.

Becoming easily irked or angry.

Losing interest in activities you used to enjoy.

Feeling sad.

Having frequent headaches or other pains or health problems.

Misusing alcohol or drugs, including prescription medicines.

Missing your own medical appointments.

Too much stress over time can harm your health. As a caregiver, you might feel depressed or anxious. You might not get enough sleep or physical activity. Or you might not eat a balanced diet. All of these increase your risk of health conditions, such as heart disease and diabetes.

Tips to manage caregiver stress

The emotional and physical demands of caregiving can strain even the strongest person. Many resources and tools can help you care for your loved one and yourself. Make use of them. If you don't take care of yourself, you won't be able to care for anyone else.

To help manage caregiver stress:

Ask for and accept help. Make a list of ways in which others can help you. Then let them choose how to help. Ideas include taking regular walks with the person you care for, cooking a meal for you and helping with medical appointments.

Focus on what you can do. At times, you might feel like you're not doing enough. But no one is a perfect caregiver. Believe that you're doing the best you can.

Set goals you can reach. Break large tasks into smaller steps that you can do one at a time. Make lists of what's most important. Follow a daily routine. Say no to requests that are draining, such as hosting meals for holidays or other occasions.

Get connected. Learn about caregiving resources in your area. There might be classes you can take. You might find caregiving services such as rides, meal delivery or house cleaning.

Join a support group. People in support groups know what you're dealing with. They can cheer you on and help you solve problems. A support group also can be a place to make new friends.

Seek social support. Stay connected to family and friends who support you. Make time each week to visit with someone, even if it's just a walk or a quick cup of coffee.

Take care of your health. Find ways to sleep better. Move more on most days. Eat a healthy diet. Drink plenty of water.

Many caregivers have trouble sleeping. Good sleep is important for health. If you have trouble getting a good night's sleep, talk to your health care professional.

See your health care professional. Get the vaccines you need and regular health screenings. Tell your health care professional that you're a caregiver. Talk about worries or symptoms you have.

Respite care

It may be hard to leave your loved one in someone else's care. But taking a break can be one of the best things you do for yourself and the person you're caring for. Types of respite care include:

In-home respite. Health care aides come to your home to spend time with your loved one or give nursing services or both.

Adult care centers and programs. There are centers that give day care for older adults. Some also care for young children. The two groups might spend time together.

Short-term nursing homes. Some assisted living homes, memory care homes and nursing homes accept people who need care for short stays while caregivers are away.

Working outside the home

Caregivers who work outside the home can feel burdened. If this describes you, think about taking a leave from your job for a time if you can afford to do so.

Employees covered under the federal Family and Medical Leave Act may be able to take up to 12 weeks of unpaid leave a year to care for relatives. Ask your human resources office about choices for unpaid leave.

You aren't alone

Ask for the help you need. Besides asking family and friends, use local resources for caregivers.

To start, check out the national Eldercare Locator or contact your local Area Agency on Aging to learn about services in your area. Or try your state's Aging and Disability Resource Center. You can find these resources online or in a telephone directory.

There also are mobile apps and web-based services that give support to caregivers. These services can help build coping skills and teach about caregiving.

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Show references

1. Caregiver stress. Office on Women's Health. https://www.womenshealth.gov/a-z-topics/caregiver-stress. Accessed June 19, 2023.

2. Veronese S, et al. Palliative approach to Parkinson disease and parkinsonian disorders. https://www.uptodate.com/contents/search. Accessed June 19, 2023.

3. Petrovic M, et al. Digital mental health tools for caregivers of older adults - A scoping review. Frontiers in Public Health. 2020; doi:10.3389/fpubh.2020.00128.

4. Caregiver stress: The impact on physical health. National Council on Aging. https://ncoa.org/article/caregiver-stress-the-impact-on-physical-health. Accessed June 19, 2023.

See more In-depth

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Practical solutions for caregiver stress

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Fight caregiver stress and prevent burnout by taking time to take care of yourself.

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Caregiver burnout is a state of physical, emotional and mental exhaustion that happens while you’re taking care of someone else. Stressed caregivers may experience fatigue, anxiety and depression. You can reduce your risk of burnout by participating in respite care, joining a support group or talking with a mental health professional.

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Caregiver Burnout; Causes, Symptoms & Prevention

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Caregivers tend to burn out from being overstressed from caring for an ill or elderly loved one. There are ways to help prevent burnout, such as talking to a friend or therapist.

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Many paid caregivers still experience financial hardships because often times, paid caregiving is not enough to support their families, so they will have to work two jobs. Yet, they have to go into work late, take time off, take out loans, and more to survive.

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Increase of self-esteem, happiness, confidence, empathy, and blood pressure !

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The Surprising Health Bonus of Caregiving

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Could caregiving actually boost your longevity?

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Caregivers are eligible for federal or state benefits that allow them to take a short or extended leave from work. Caregivers are also eligible for paid family leave in many states like:

1. California Paid Family Leave provides up to six weeks of partial pay leave to employees.

2. The New Jersey Family Leave Act allows for up to 12 weeks of leave within a 24-month period with up to $650 a week in pay.

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To minimize stress and maximize health for both you and your loved one, it's important that you take advantage of all the caregiver employee benefits available to you. Read on for tips on the employer caregiving benefits you may be entitled to, like employer-sponsored caregiver resources, time off, or financial support.
In this article:
Employer-paid caregiver resources

It may sometimes feel like you're the only one at your job juggling caregiving duties and a career, but that's probably not the case.

"Around 88% of United States employees care for a loved one who is aging in place, 36% are long-distance caregivers and 60% have senior loved ones with cognitive or medical issues," according to a 2018 report by Torchlight, a data-driven company which offers employer-sponsored resources to employees who are also caregivers.

There are many companies that offer elder care benefits to their employees, as family caregiving responsibilities can fall on executives and line staff alike, explained Adam Goldberg, CEO and founder of Torchlight. Employers pay Torchlight for services that are then offered as a benefit to caregiving employees. Torchlight's support services include advising from an array of specialists, concierge services, as well as podcasts, webinars, and other caregiving resources.

"We match the employee up for a consultation with someone with experience in memory care, insurance, housing, and other issues that caregivers face," said Goldberg.

If you are eligible for employer caregiver benefits through your company, you will likely find those benefits in your company handbook. If you don't find what you're looking for, consider reaching out to your employer's human resources (HR) department to see if the company offers these benefits.

Let our care assessment guide you

Our free tool provides options, advice, and next steps based on your unique situation.

Programs for finding and managing care

Many companies now offer caregiver-specific benefits that even include care support.

is one of those companies. They provide public- and private-sector employers with ways to best support employees, by providing the employee with care resources like respite care on in-home care options. Care@Work's mission is to fill a future need for caregiving resources. They provide their client employers with a network of care providers to fill caregiving gaps for employees.

Again, read through your employee handbook or check in with your employer's HR department to see if similar programs are available to you through your place of work.

Family and Medical Leave Act (FMLA)

Caregiving employees may be eligible for federal or state benefits that allow them to take a short or extended leave from work to care for an aging loved one. Some of these benefits can be found through the Family and Medical Leave Act (FMLA). This act entitles eligible family caregivers to receive up to 12 weeks of unpaid, job-protected leave within a 12-month period to care for an aging loved one.

You're eligible for the FMLA benefits if you meet the following criteria:

Work for a private employer with 50 or more employees

Work for a government agency or school district

Worked 1,250 hours during the 12 months prior to the start of the leave

Worked for the employer for at least 12 months (not necessarily consecutively)

Some companies provide paid or partially paid FMLA leave. For more information on FMLA rules, see the U.S. Department of Labor's FMLA Employee Guide.

Paid family leave

A handful of states provide some form of paid or unpaid family leave on top of the leave afforded by the federal FMLA. Additional paid family leave is critical when a large amount of time off is needed to care for a seriously ill loved one. The following states offer additional paid family leave benefits:

The COVID-19 pandemic has also led to federal and state mandates requiring companies to provide COVID-specific caregiving leave to employees. Picking up medications, providing transportation, and keeping immunocompromised loved ones safe during times of high community transmission are all examples of caregiving that may be eligible for COVID-19 special benefits or accommodations.

Talk with a Senior Living Advisor

Our advisors help 300,000 families each year find the right senior care for their loved ones.

"People caring for a loved one should research what benefits are available at work. They may actually have employee benefits they didn't realize they could use," advised Bradley.

Flexible spending accounts (FSAs)

Many employers offer some form of a flexible spending account (FSA), which can be used for long-term caregiving costs. But, according to Colin Bradley, CEO and president of Winston Benefits in Manasquan, New Jersey, many employees often fail to take advantage of this benefit, because they do not understand that their expenses are eligible. So, it's important to check if your employer offers this benefit.

An FSA and a dependent care FSA (DCFSA) each are employer-sponsored benefits that allow employees to contribute pretax dollars up to a certain amount annually. Some employers even make additional contributions to an FSA account as an added employee benefit. Employees can then use these funds to cover health or dependent care expenses, like respite or in-home care, depending on the type of FSA. Even better, because FSA dollars are pretax, they can reduce your taxable income.

Know your options

If you're uncertain whether your employer offers caregiver-specific benefits, reach out to your company's HR representative to discuss your options. Many policies have been updated since the COVID-19 pandemic, so be sure to review them all to see if there have been changes. Employer benefits for caregivers may provide care resources, ways to pay for long-term care, paid time off, and more. Don't hesitate to take advantage of these benefits to find a work-life balance.

Ultimately, paid leave for caregivers helps employers ensure their top talent have the support they need to remain creative, efficient and productive while caregivers receive the support and time they need to provide proper care for their family members.

When caregiving becomes too much

If your loved one is in need of a higher level of care than you feel you can truly provide while working, maybe it's time to discuss their long-term care options. Perhaps part-time in-home care or only a respite care stay is all that's needed to lighten the load. Or, maybe a senior living community is the appropriate option for the highest quality of care.

If this is a consideration, reach out to a Senior Living Advisor at A Place for Mom for free, local advice on care options in your area. They have been helping families find the right care for decades.
The information contained in this article is for informational purposes only and is not intended to constitute medical, legal, or financial advice or to create a professional relationship between A Place for Mom and the reader. Always seek the advice of your health care provider, attorney, or financial advisor with respect to any particular matter, and do not act or refrain from acting on the basis of anything you have read on this site. Links to third-party websites are only for the convenience of the reader; A Place for Mom does not endorse the contents of the third-party sites.

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Caregiver Employee Benefits That Help Caregivers Find a Work-Life Balance

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To minimize stress and maximize health for both you and your loved one, it's important that you take advantage of all the caregiver employee benefits available to you. Read on for tips on the employer caregiving benefits you may be entitled to, like employer-sponsored caregiver resources, time off, or financial support.

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Relationship Benefits of caring for your loved ones

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Relationship Benefits of caring for your loved ones

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You can actually deepen your bond by taking up paid caregiving of your loved ones and it is proven that it actually helps family dynamics prosper

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Dada Home Care | The official website of Dada Home Care — Family Wellness Program | CDPAP

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10 Benefits of Becoming a Paid Caregiver for Your Loved One | Dada Home Care

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Caring for a loved one is a profound and rewarding experience. Here, we explore the numerous benefits of becoming a caregiver through this program.

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Paid Caregivers are working many hours yet still barely making ends meet, bringing awareness to the financial burdens Paid caregivers are undergoing in today's world.

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The daily struggles of paid caregivers trying to make ends meet

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Millions of Parents, partners, spouses, adult and minor children, friends, and neighbors are few of the many faces of caregiving

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Caring for a child with a disability, a sick sibling, or an injured veteran? You are considered a caregiver and can reap the benefits of paid caregiving

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Caregiving Stories: The New Faces of Caregiving

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Advocating for full equity, inclusion, and access

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Celebrities are caregivers as well! Some celebrities include: The Baldwin Brothers, Patrick Dempsey (Greys Anatomy), Seth Rogen, Dwayne Johnson, and more!

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The Famous Faces Behind the Men of Caregiving | Caregiving Club

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We think of the typical caregiver being a boomer-age woman caring for her older parents yet according to the National Alliance for Caregiving, men make up 34 percent of the 65 million caregivers across the country.

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Arizona Caregiver Resource Line:

888-737-7494
Speak with a trained volunteer who can provide a compassionate ear, information, assistance, local resources and support Monday through Friday from 9 a.m. – 4 p.m.

Caregiver Action Network Resource Line:

855-227-3640

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Family Caregivers provide most of the assistance that enables older Arizonans and those with disabilities to live independently in their homes and communities. Caregivers can also include grandparent raising grandchildren.

What is the Family Caregiver Support Program?

The program offers five direct services to Caregivers that best meet the range of their needs, including:

Information about available services.

Assistance in gaining access to supportive services.

Individual counseling, organization of support groups, and training to assist caregivers in making decisions and solving problems relating to their roles.

Respite care to enable caregivers to be temporarily relieved from their caregiving responsibilities.

Supplemental services, on a limited basis, to complement the care provided by caregivers.

Arizona Caregiver Resource Line:
888-737-7494
Speak with a trained volunteer who can provide a compassionate ear, information, assistance, local resources and support Monday through Friday from 9 a.m. - 4 p.m.
Caregiver Action Network Resource Line:
855-227-3640

Eligibility

A family caregiver is defined as:

An adult family member, or another individual, who is an informal provider of in-home and community care to an older individual or any individual with Alzheimer's disease or a related neurological disorder.

A grandparent or older individual who is a relative caregiver (defined as a grandparent or step-grandparent of a child, or a relative of a child by blood, marriage, or adoption, who is 55 years of age or older):

1. Lives with the child who is not more than 18 years of age or who is an adult child between 19 and 59 years of age with a disability. In the situation when it is an adult child with a disability, the caregiver cannot be the parent.

2. Is the primary caregiver of the child because the biological or adoptive parents are unable or unwilling to serve as the primary caregiver of the minor child.

3. Has a legal relationship to the child, such as legal custody or guardianship, or is raising the child informally.

Services, such as respite care and supplemental services, will only be provided to a family caregiver who is providing care to an older individual who has been determined unable to perform at least two Activities of Daily Living (ADLs) without substantial human assistance, including verbal reminding, physical cueing, or supervision.

Respite services shall only be provided to a family caregiver who is assessed to be at moderate or high risk as determined by an assessment tool designated by the Division of Aging and Adult Services.
Contact a local Area Agency on Aging

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Family Caregivers provide most of the assistance that enables older Arizonans and those with disabilities to live independently in their homes and communities. Caregivers can also include grandparent raising grandchildren. The program offers five direct services to Caregivers that best meet the range of their needs, including: Information about available services.

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Includes resources for:

Coping with Caregiving Stress

Crisis Planning for Caregivers

Treatment and Recovery

Mental Health Resources for Parents

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It’s important for caregivers to take care of their own mental health. Supporting caregivers with information and resources can help them maintain their mental health and better serve loved ones with mental illness.

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How do you get paid to be a family caregiver? 

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How do you get paid to be a family caregiver? 

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Check to see if you are eligible to be a PAID family caregiver!

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ARCH National Respite Network & Resource Center |

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How Do I Get Paid to be a Family Caregiver? | ARCH National Respite Network & Resource Center

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SHARE THIS PAGE: Share on Facebook Share on Twitter Share on Linkedin Share on Email Share on Print ARCH is frequently asked if payment is available for family caregivers. There may be help for you, but resources are limited, may not exist in your state at all, and eligibility is restrictive. Toward the end of

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Caregivers Health matters just as much as their loved ones 

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Caregivers Health matters just as much as their loved ones 

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About one in ten caregivers report that caregiving has caused their physical health to worsen and about 23% of caregivers experience higher level of stress hormones. Caregivers it is important to take care of yourselves because if you do not take care of yourself, you won't be able to take care of others. You matter too.

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A Population at Risk

An estimated 44 million Americans age 18 and older provide unpaid assistance and support to older people and adults with disabilities who live in the community. The value of this unpaid labor force is estimated to be at least $306 billion annually, nearly double the combined costs of home health care ($43 billion) and nursing home care ($115 billion).

Evidence shows that most caregivers are ill-prepared for their role and provide care with little or no support, yet more than one-third of caregivers continue to provide intense care to others while suffering from poor health themselves. Studies have shown that an influential factor in a caregiver's decision to place an impaired relative in a long-term care facility is the family caregiver's own physical health.

A substantial body of research shows that family members who provide care to individuals with chronic or disabling conditions are themselves at risk. Emotional, mental, and physical health problems arise from complex caregiving situations and the strains of caring for frail or disabled relatives.

Today, medical advances, shorter hospital stays, limited discharge planning, and expansion of home care technology have placed increased costs as well as increased care responsibilities on families, who are being asked to shoulder greater care burdens for longer periods of time. To make matters worse, caregivers are more likely to lack health insurance coverage due to time out of the workforce. These burdens and health risks can hinder the caregivers' ability to provide care, lead to higher health care costs and affect the quality of life of both the caregiver and care receivers.

Impact of Caregiving on Caregiver Mental and Emotional Health

The psychological health of the family caregiver is negatively affected by providing care. Higher levels of stress, anxiety, depression and other mental health effects are common among family members who care for an older relative or friend.

Caregivers show higher levels of depression.

Studies consistently report higher levels of depressive symptoms and mental health problems among caregivers than among their noncaregiving peers.

Both caregiver depression and perceived burden increase as the care receiver's functional status declines. Thus, higher levels of clinical depression are attributed to people caring for individuals with dementia. Studies show that 30 to 40% of dementia caregivers suffer from depression and emotional stress.

Caregivers suffer from high levels of stress and frustration.

Caregivers have higher levels of stress than noncaregivers. They also describe feeling frustrated, angry, drained, guilty or helpless as a result of providing care.

Some 16% of caregivers feel emotionally strained and 26% say taking care of the care recipient is hard on them emotionally. An additional 13% of caregivers feel frustrated with the lack of progress made with the care recipient.

Caregiving can also result in feeling a loss of self identity, lower levels of self esteem, constant worry, or feelings of uncertainty. Caregivers have less self-acceptance and feel less effective and less in control of their lives than noncaregivers.

Caregivers who experience chronic stress may be at greater risk for cognitive decline including loss in short-term memory, attention and verbal IQ.

As a response to increased stress, caregivers are shown to have increased alcohol and other substance use. Several studies have shown that caregivers use prescription and psychotropic drugs more than noncaregivers.

Impact of Caregiving on Caregiver Physical Health

High rates of depressive symptoms and mental health problems among caregivers, compounded with the physical strain of caring for someone who cannot perform activities of daily living (ADLs), such as bathing, grooming and other personal care activities, put many caregivers at serious risk for poor physical health outcomes. Indeed, the impact of providing care can lead to increased health care needs for the caregiver.

Caregivers are in worse health.

Caregivers have lower levels of subjective well-being and physical health than noncaregivers. In 2005, three-fifths of caregivers reported fair or poor health status, one or more chronic conditions, or a disability, compared with one-third of noncaregivers. Caregivers also reported chronic conditions (including heart attack/heart disease, cancer, diabetes and arthritis) at nearly twice the rate of noncaregivers (45 vs. 24%).

Caregivers suffer from increased rates of physical ailments (including acid reflux, headaches, and pain/aching), increased tendency to develop serious illness, and have high levels of obesity and bodily pain.

Studies demonstrate that caregivers have diminished immune response, which leads to frequent infection and increased risk of cancers. For example, caregivers have a 23% higher level of stress hormones and a 15% lower level of antibody responses. Caregivers also suffer from slower wound healing.

Caregivers have an increased risk of heart disease.

Caregivers exhibit exaggerated cardiovascular responses to stressful conditions which put them at greater risk than noncaregivers for the development of cardiovascular syndromes such as high blood pressure or heart disease.

Caregivers have lower levels of self-care.

Caregivers pay the ultimate price for providing care-increased mortality.

Increasing Positive Health Outcomes for Caregivers

A large and growing body of evidence reveals that providing care for a chronically sick person can have harmful physical, mental, and emotional consequences for the caregiver. As families struggle to care for others, their own health is put in danger. As a result, caregiver health is quickly becoming a public health issue that requires more focused attention from health professionals, policy makers and caregivers themselves to ensure the health and safety of those individuals dedicating their lives to the care of others.

Increasing appropriate mental health services and medical care for family caregivers are important steps toward addressing caregiver health. Although caregiving can have a negative impact on caregivers' health and well-being, research demonstrates its effects can be alleviated at least partially by:

Improved recognition and treatment of physical and psychological symptoms among caregivers is a growing health concern and should be considered a public health priority. Keeping family caregivers healthy and able to provide care is key to maintaining our nation's long-term care system and, with the aging of the population, this issue will only grow more important in the coming decades.

Endnotes

National Alliance for Caregiving & AARP. (2004). Caregiving in the U.S. Washington, DC: Author.
National Family Caregivers Association & Family Caregiver Alliance (2006). Prevalence, Hours and Economic Value of Family Caregiving, Updated State-by-State Analysis of 2004 National Estimates (by Peter S. Arno, PhD). Kensington, MD: NFCA & San Francisco, CA: FCA.
Arno, P.S. (2006). Economic Value of Informal Caregiving: 2004. Presented at the Care Coordination & the Caregiver Forum, Department of Veterans Affairs, January 25-27, 2006.
National Alliance for Caregiving & AARP. (2004). Caregiving in the U.S. Washington, DC: Author.
Alzheimer's Association & National Alliance for Caregiving. (2004). Families Care: Alzheimer's Caregiving in the United States. Chicago, IL: Alzheimer's Association and Bethesda, MD: National Alliance for Caregiving.
Family Caregiver Alliance (2006). Caregiver Assessment: Principles, Guidelines and Strategies for Change. Report from a National Consensus Development Coference (Vol. I). San Francisco: Author.
Navaie-Waliser, M., Feldman, P.H., Gould, D.A., Levine, C.L., Kuerbis, A.N. & Donelan, K. (2002). When the caregiver needs care: The plight of vulnerable caregivers. American Journal of Public Health, 92(3), 409-413.
Buhr, G.T., Kuchibhatla, M., & Clipp, E. (2006). Caregivers' reasons for nursing home placement: Cues for improving discussions with families prior to the transition. The Gerontologist, 46(1): 52-61.
Whitlatch, C.J., Feinberg, L.F., & Sebesta, D.S. (1997). Depression and health in family caregivers. Journal of Aging and Health, Vol.9 (2), 222-243.
Whitlatch, C.J., Feinberg, L.F., & Stevens, E.J. (1999). Predictors of institutionalization for persons with Alzheimer's disease and the impact on family caregivers. Journal of Mental Health and Aging, Vol. 5(3). 275-288.
Lieberman, M.A. & Kramer, J.H. (1991). Factors affecting decisions to institutionalize demented elderly. The Gerontologist, 31, 371-374.
Family Caregiver Alliance. (2006). Caregiver Assessment: Principles, Guidelines and Strategies for Change. Report from a National Consensus Development Conference (Vol. I). San Francisco: Author.
Levine, C., (Ed.). (2004). Always On Call: When Illness Turns Families Into Caregivers. New York: United Hospital Fund.
Ho, A., Collins, S., Davis, K. & Doty, M. (2005). A Look at Working-Age Caregivers Roles, Health Concerns, and Need for Support (Issue Brief). New York, NY: The Commonwealth Fund.
Schulz, R.., O'Brien, A.T., Bookwals, J., & Fleissner, K. (1995). Psychiatric and physical morbidity effects of dementia caregiving: Prevalence, correlates, and causes. The Gerontologist, 35: 771-791.
Marks, N., Lambert, J.D. & Choi, H. (2002). Transitions to caregiving, gender, and psychological well-being: A prospective U.S. national study. Journal of Marriage and Family, 64, 657-667.
Pinquart, M. & Sorensen, S. (2003). Differences between caregivers and noncaregivers in psychological health and physical health: A meta-analysis. Psychology and Aging, 18(2), 250-267.
Teri, L., Logsdon, R., Uomoto, J., McCurry, S.M. (1997). Behavioral treatment of depression in dementia patients: A controlled clinical trial. Journal of Gerontology B: Psychological Science and Social Science, 52, 159-166.
Schulz, R., Newsom, J., Mittelmark, M., Burton, L., Hirsch, C. & Jackson, S. (1997). Health effects of caregiving: The Caregiver Health Effects Study: An ancillary study of The Cardiovascular Health Study. Annals of Behavioral Medicine, 19: 110-116.
Zarit, S. (2006). Assessment of Family Caregivers: A Research Perspective. In Family Caregiver Alliance (Eds.), Caregiver Assessment: Voices and Views from the Field. Report from a National Consensus Development Conference (Vol. II) (pp. 12 - 37). San Francisco: Family Caregiver Alliance.
Grunfeld, E. (2004). Family caregiver burden: Results from a longitudinal study of breast cancer patients and their principal caregivers. Canadian Medical Association Journal, 170(12): 1795-1801.
Covinsky, K.E., Newcomer, R., Dane, C.K., Sands, L.P., Yaffe, K. (2003). Patient and caregiver characteristics associated with depression in caregivers of patients with dementia. Journal of General Internal Medicine, 18: 1006-14.
Alzheimer's Association & National Alliance for Caregiving. (2004). Families Care: Alzheimer's Caregiving in the United States. Chicago, IL: Alzheimer's Association and Bethesda, MD: National Alliance for Caregiving.
Schulz, R., Belle, S., Czaja, S., McGinnis, K., Stevens, A. & Zhang, S. (2004). Long-term care placement of dementia patients and caregiver health and well-being. JAMA, 292 (8): 961-967.
Spector, J. & Tampi, R. (2005). Caregiver depression. Annals of Long-Term Care: Clinical Care and Aging, 13(4): 34-40.
Pinquart, M. & Sorensen, S. (2003) Differences between caregivers and noncaregivers in psychological health and physical health: A meta-analysis. Psychology and Aging, 18(2), 250-267.
Center on Aging Society. (2005). How Do Family Caregivers Fare? A Closer Look at Their Experiences. (Data Profile, Number 3). Washington, DC: Georgetown University.
Ibid.
Ibid.
Ibid.
Marks, N., Lambert, J.D. & Choi, H. (2002). Transitions to caregiving, gender, and psychological well-being: A prospective U.S. national study. Journal of Marriage and Family, 64, 657-667.
Pinquart, M. & Sorensen, S. (2003) Differences between caregivers and noncaregivers in psychological health and physical health: A meta-analysis. Psychology /and Aging, 18(2), 250-267.
³³ Center on Aging Society. (2005). How Do Family Caregivers Fare? A Closer Look at Their Experiences. (Data Profile, Number 3). Washington, DC: Georgetown University.
Vitaliano, P.P., Echeverria, D., Yi, J., Phillips, P.E.M, Young, H. & Siegler, I.C.. (2005). Psychophysiological mediators of caregiver stress and differential cognitive decline. Psychology and Aging, 20: 402-411.
U.S. Department of Health and Human Services. (1998). Informal Caregiving: Compassion in Action. (Based on data from the National Survey of Families and Households [NSFH]), Washington, DC: Author.
National Alliance for Caregiving & Evercare. (2006). Evercare® Study of Caregivers in Decline: A Close-up Look at the Health Risks of Caring for a Loved One. Bethesda, MD: National Alliance for Caregiving and Minnetonka, MN: Evercare.
Marks, N., Lambert, J.D., & Choi, H. (2002). Transitions to caregiving, gender, and psychological well-being: A prospective U.S. national study. Journal of Marriage and Family, 64, 657-667.
Beach, S.R., Schulz, R., Williamson, G.M., Miller, L.S., Weiner, M.F. & Lance, C.E. (2005). Risk factors for potentially harmful informal caregiver behavior. Journal of the American Geriatric Society, 53: 255-61.
National Alliance for Caregiving & AARP. (2004). Caregiving in the U.S. Washington, DC: Author.
Johnson, R.W. & Wiener, J.M. (2006). A Profile of Older Americans and Their Caregivers (Occasional Paper Number 8), Washington, DC: The Urban Institute.
Miller, B. & Cafasso, L. (1992). Gender differences in caregiving: fact or artifact? The Gerontologist, 32: 498-507.
Yee, J.L. & Schulz, R. (2000). Gender differences in psychiatric morbidity among family caregivers: a review and analysis. The Gerontologist, 40: 147-164.
Pinquart, M. & Sorensen, S. (2006). Gender differences in caregiver stressors, social resources, and health: An updated meta-analysis. Journal of Gerontology: Psychological Sciences, 61B (1): 33-45.
Cannuscio, C., Jones, C., Kawachi, I. Colditz, G., Berkman, L. & Rimm, E. (2002). Reverberations of family illness: A longitudinal assessment of informal caregiving and mental health status in the nurses' health study. American Journal of Public Health, 92(8), 1305-1311.
National Alliance for Caregiving & Evercare. (2006). Evercare® Study of Caregivers in Decline: A Close-up Look at the Health Risks of Caring for a Loved One. Bethesda, MD: National Alliance for Caregiving and Minnetonka, MN: Evercare.
Center on Aging Society. (2005). How Do Family Caregivers Fare? A Closer Look at Their Experiences. (Data Profile, Number 3). Washington, DC:.Georgetown University.
Pinquart, M. & Sorensen, S. (2003). Differences between caregivers and noncaregivers in psyhcological health and physical health: A meta-analysis. Psychology and Aging, 18(2), 250-267.
Schulz, R., O'Brien, A.T., Bookwals, J. & Fleissner, K. (1995). Psychiatric and physical morbidity effects of dementia caregiving: Prevalance, correlates, and causes. The Gerontologist, 35: 771-791.
Ho, A., Collins, S., Davis, K. & Doty, M. (2005). A Look at Working-Age Caregivers Roles, Health Concerns, and Need for Support (Issue Brief). New York, NY: The Commonwealth Fund.
Ibid.
National Alliance for Caregiving & Evercare. (2006). Evercare® Study of Caregivers in Decline: A Close-up Look at the Health Risks of Caring for a Loved One. Bethesda, MD: National Alliance for Caregiving and Minnetonka, MN: Evercare.
Shaw, W.S., Patterson, T.L., Semple, S.J., Ho, S., Irwin, M.R., Hauger, R.L. & Grant, I. (1997). Longitudinal analysis of multiple indicators of health decline among spousal caregivers. Annals of Behavioral Medicine, 19: 101-109.
Barrow, S. & Harrison, R. (2005). Unsung heroes who put their lives at risk? Informal caring, health, and neighborhood attachment. Journal of Public Health, 27(3): 292-297.
Kiecolt-Glaser, J.K., Dura, J.R. & Speicher, C.E., (1991). Spousal caregivers of dementia victims: Longitudinal changes in immunity and health. Psychosomatic Medicine, 53(4):345-362.
Kiecolt-Glaser, J., Glaser, R., Gravenstein, S., Malarkey, W.B. & Sheridan, J.,(1996). Chronic stress alters the immune response to influenza virus vaccine in older adults. Proceedings of the National Academy of Sciences of the United States of America, 93: 3043-3047.
Glaser, R. & Kiecolt-Glaser, J.K. (1997). Chronic stress modulates the virus-specific immune response to latent herpes simplex virus Type 1. Annals of Behavioral Medicine, 19: 78-82.
Vitaliano, P., Zhang, J. & Scanlan, J. (2003). Is caregiving hazardous to one's physical health? A meta-analysis. Psychological Bulletin, 129(6): 946-972.
Kiecolt-Glaser, J.K., Marucha, P.T., Malarkey, W.B., Mercado, A.M. & Glaser, R. (1996) Slowing of wound healing by psychological stress. Lancet, 346(8984): 1194-1196.
Center on Aging Society. (2005). How Do Family Caregivers Fare? A Closer Look at Their Experiences. (Data Profile, Number 3). Washington, DC: Georgetown University.
King, A.C., Oka, R.K., Young, D.R. (1994). Ambulatory blood pressure and heart rate responses to the stress of work and caregiving in older women. Journals of Gerontology Series A: Biological Sciences and Medical Sciences, 49: 239-245.
Shaw, W.S., Patterson, T.L., Ziegler, M.G., Dimsdale, J.E., Semple, S.J. & Grant, I. (1999). Accelerated risk of hypertensive blood pressure recordings among Alzheimer's caregivers. Journal of Psychosomatic Research, 46: 215-227.
Lee, S.L., Colditz, G.A., Berkman, L.F., & Kawachi, I. (2003). Caregiving and risk of coronary heart disease in U.S. women: A prospective study. American Journal of Preventive Medicine, 24(2), 113-119.
Ibid.
Schulz, R., Newsom, J., Mittelmark, M., Burton, L., Hirsch, C. & Jackson, S. (1997). Health effects of caregiving: The Caregiver Health Effects Study: an ancillary study of The Cardiovascular Health Study. Annals of Behavioral Medicine, 19: 110-116.
Lee, S.L., Colditz, G.A., Berkman, L.F. & Kawachi, I. (2003). Caregiving and risk of coronary heart disease in U.S. women: A prospective study. American Journal of Preventive Medicine, 24(2), 113-119.
The Commonwealth Fund. (1999). Informal Caregiving (Fact Sheet). New York: Author.
National Alliance for Caregiving & Evercare. (2006). Evercare® Study of Caregivers in Decline: A Close-up Look at the Health Risks of Caring for a Loved One. Bethesda, MD: National Alliance for Caregiving and Minnetonka, MN: Evercare.
Ibid.
Tanner Sanford, J., Johnson, A.D., & Townsend-Rocchiccioli, J. (2005). The Health Status of Rural Caregivers. Journal of Gerontological Nursing, 31(4), 25-31.
Schulz, R. & Beach, S. (1999). Caregiving as a risk factor for mortality: The Caregiver Health Effects Study, JAMA, 282: 2215-2219.
Christakis, N.A. & Allison, P.D. (2006). Mortality after the hospitalization of a spouse. New England Journal of Medicine, 354: 719-730.
Schulz, R. & Beach, S.R. (1999) Caregiving as a risk factor for mortality: The caregiver health effects study. Journal of the American Medical Association, 282, 2215-2219.
Pinquart, M. & Sorensen S. (2003). Differences between caregivers and noncaregivers in psychological health and physical health: A meta-analysis. Psychology and Aging, 18(2), 250-267.
Navaie-Waliser, M., Feldman, P.H., Gould, D.A., Levine, C.L., Kuerbis, A.N. & Donelan, K. (2002). When the caregiver needs care: The plight of vulnerable caregivers. American Journal of Public Health, 92(3), 409-413.
Family Caregiver Alliance (2006). Caregiver Assessment: Voices and Views from the Field. Report from a National Consensus Development Conference (Vol. II). San Francisco: Author.
Gwyther, L.P., Ballard, E.L. & Hinman-Smith, E.A.(1990). Overcoming Barriers to Appropriate Service Use: Effective Individualized Strategies for Alzheimer's Care. Durham, N.C.: Center for the Study of Aging and Human Development.
Guberman, N., Keefe, J., Fancey, P., Nahmiash, D. & Barylak, L. (2001). Assessment Tools Serving the Needs of Caregivers: A Document to Better Understand the Importance of Assessing Caregivers' Needs. Montreal, Canada: School of Social Work, University of Quebec at Montreal.
Cooke, D., McNally, L., Mulligan, K., Harrison, M., & Newman, P. (2001). Psychosocial interventions for caregivers of people with dementia: A systematic review. Aging & Mental Health, 5(2): 120-135.
Gallagher-Thompson, D., Lovett, S., Rose, J., McKibben, C., Coon, D., Futterman, A., & Thompson, L.W. (2000). Impact of psycho-educational interventions on distressed caregivers. Journal of Clinical Geropsychology, 6(2): 91-110.
Family Caregiver Alliance. (2004). California Caregiver Resource Centers 2004 Satisfaction Survey. San Francisco, CA: Author.
Lyons, K. & Zarit, S. (1999). Formal and informal support: The great divide. International Journal of Geriatric Psychiatry, 14, 183-196.
Zarit, S., Gaugler, J. & Jarrott, S. (1999). Useful services for families: Research findings and directions. International Journal of Geriatric Psychiatry, 14: 165-181.
Zarit, S., Stephens, M., Townsend, A. & Greene, R. (1998). Stress reduction for family caregivers: Effects of adult day care use. Journal of Gerontology: Social Sciences, /53B: S267-S277.
⁸⁶ The Lewin Group. (2002). The national family caregiver support program resource guide. Falls Church, VA: Author.
Kaye, L.W., Turner, W., Butler, S.S., Downey, R. & Cotton, A. (2003). Early intervention screening for family caregivers of older relatives in primary care practices. Family Community Health, 26(4): 319-328.

Resources

Family Caregiver Alliance
National Center on Caregiving
(415) 434-3388 | (800) 445-8106
Website: www.caregiver.org
Email: info@caregiver.org
FCA CareNav: https://fca.cacrc.org/login.
Services by State: www.caregiver.org/connecting-caregivers/services-by-state/

Family Caregiver Alliance (FCA) seeks to improve the quality of life for caregivers through education, services, research, and advocacy. Through its National Center on Caregiving, FCA offers information on current social, public policy, and caregiving issues and provides assistance in the development of public and private programs for caregivers. For residents of the greater San Francisco Bay Area, FCA provides direct support services for caregivers of those with Alzheimerʼs disease, stroke, traumatic brain injury, Parkinsonʼs, and other debilitating disorders that strike adults.
Prepared by Family Caregiver Alliance in cooperation with California's Caregiver Resource Center. Reviewed by Moira Fordyce, MD, MB, ChB, Adjunct Clinical Professor, Stanford University School of Medicine, President, California Geriatrics Society, and fellow of the American Geriatrics Society. Funded by the California Department of Mental Health. © 2006 Family Caregiver Alliance. All rights reserved.

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Caregiver Health - Family Caregiver Alliance

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An estimated 44 million Americans age 18 and older provide unpaid assistance and support to older people and adults with disabilities who live in the community. The value of this unpaid labor force is estimated to be at least $306 billion annually, nearly double the combined costs of home health care ($43 billion) and nursing home care ($115 billion).

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Find out if you are able to get paid as a family caregiver in Arizona

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Find out if you are able to get paid as a family caregiver in Arizona

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Get Paid as a Family Caregiver in Arizona | Givers

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Learn how to get paid caring for a loved one in Arizona—including Medicaid options, non-Medicaid state programs, Veterans support, and tax credits or deductions.