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Cooking classes - beyond summer offerings

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Cooking classes - beyond summer offerings

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Specifically for kids younger than 15

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Done for specific age groups

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For parents going through the school system especially in relation to transitioning from elementary to junior high, high school and what happens after high school.  Parents could share their experiences on what to expect and provide support and information.

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Workshops or information sessions for parents, teens and young adults on transitioning to adulthood eg:  Information on guardianship, community supports, employment and how to access employment (is there an agency that supports this?) and living arrangements etc.

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Workshops and courses on advocacy for parents

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Reading and writing classes/tutoring for kids during the year (not just summer camp)

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Oilers game or Elks game or Oil Kings games

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Oilers game or Elks game or Oil Kings games

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EDSS to have a bus and everyone can go together

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Pizza and beer

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Allow for older members to give "presentations" on different topics

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Allow for older members to give "presentations" on different topics

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present to Monday Morning Play groups

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Day trip

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A weekly meeting opportunity for similar age children.

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When starting a class it's nice to supply a 1 or 2 page welcome pack for educators. It would be great to have a workshop to do this together once a year.

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Continued opportunity for programs, enjoy summer programs, social skills and musical theatre camp.

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Social skills for adults

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Speech has been a great service. Professionals that can reinforce academic subjects in easy social and fun ways

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Dance / Craft / etc where kids are coming for the activity but using play to learn with special attention to behavioural interactions / communication.

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how to read a menu, receipt, do a budget and know how to calculate or subtract what your expenses are - even if just the basics of social outings ie cost of a movie, food Things that can help them in every day life .

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Would love some day camps for PD days - could be academic focused or other

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How to join or leave a group.

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Opportunities for all ages to have meaningful roles and contribution opportunities like volunteering and working

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Work place literacy skills. Counting weighing etc

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Ditto for functional literacy and numeracy

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Festivals - maybe go out for a bite to eat then hit up the event

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Used to be a casual monthly occurrence but had minor support from EDSS (through email blasts and $25 gift certificates for hosts).  Would be nice to revive somehow or have a new and similar type activity.

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Dating and relationship development. So we can get past “ Hello, I love you”

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Using bank card, keeping cards/wallet safe/value of money

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Using bank card, keeping cards/wallet safe/value of money

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doing things/activities that are age appropriate ie patio series/music/plays that are age appropriate Street performers, concerts - so many free events that occur in Edmonton and surrounding area Going in a group with friends

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Easy activities like going to the park, bowling, crafts, music night.

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A collection of resources that people in the community find useful.. categorized by ability/age would be nice.

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Gathering around a sport activity - ex. golf, virtual golf, disk golf. 

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Gathering around a sport activity - ex. golf, virtual golf, disk golf. 

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Used to be a nice way to bring the family together.

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How to use technology appropriately and safely - possible set up a chat group through What's app or another that several kids belong to and use regularly

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How to use technology appropriately and safely - possible set up a chat group through What's app or another that several kids belong to and use regularly

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Reinforce basic social skills like getting along with others. How to interact with people. How to communicate.

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Could look like different things - playground, swim, tobogganing, other fun activities?

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having our membership and loved ones with DS being the face of EDSS - current members and families Supporting them to be inclusive in the many events that occur in and around Edmonton

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Attend Edmontons Riverhawks Game together

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Attend Edmontons Riverhawks Game together

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Perhaps a “ So you think you are ready to move out” class. Helping participants try independent living challenges that will be a part of their lives. Including safe at home training.

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Consider offering connection space for siblings?

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help young adults in groups in socially appropriate behavior and etiquette

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Monthly dinner club at different restaurants where you learn about another culture - age appropriate - the foods, geography, customs etc

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Programming to help develop communication skills. 

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Programming to help develop communication skills. 

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Perhaps speech clases connected to different activities. To help with asking for help and articulating ideas. 

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Perhaps speech clases connected to different activities. To help with asking for help and articulating ideas. 

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Ensuring children know the steps to protecting against inappropriate sexual conduct

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Day time activities that adults can access with a support worker

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Day time activities that adults can access with a support worker

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Personal care for men and women and strategies for parents to assist teaching this

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summer activity

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Rent a site like Camp He-Ho-Ha for all to enjoy for a weekend of bonding.

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Age aporopriate review of popular tik tok videos - dances, cooking marvel movies etc

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communication with membership and families

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communication with membership and families

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instagram, one Facebook group for EDSS not two, updated and current website, Friday blast goes out at noon and office is closed at noon no one to talk to or get clarification of things until next week, surveys, online registrations

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Have older members mentor some of the younger ones
- academic programming
- fun events
- functional life skills

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Overall Healthy lifestyle - eating/cooking, exercise etc.

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Allow parents to connect about programming options in the community that are INCLUSIVE and supportive for EDSS families

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Continuation of weekly summer programming for Kindergarden and up. Main Goal - support the development of peer groups in the Down Syndrome community. 

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Continuation of weekly summer programming for Kindergarden and up. Main Goal - support the development of peer groups in the Down Syndrome community. 

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Could be a monthly meeting for individuals to participate in and learn different art techniques.

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Sessions for parents to recognize and assist their loved ones with mental health/loneliness challenges. This has been highlighted as a common concern especially in our adult population. Could also morph to sessions for individuals with Ds.

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Support/community for our loved ones with a dual diagnosis (Ds and Autism), as well as for their families.

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HELP :)

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Would like something for some of our adults to continue to learn literacy as some still need help

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Would love to see a monthly or weekly group for kids ages 7-13. There are groups for under 5 and a 13 and above groups but nothing for our elementary kids.

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Speech programming specific for Apraxia 

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Speech programming specific for Apraxia 

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Would love to see specific SLP programming for our kids with Childhood Apraxia of Speech. Specifically Let’s start Talking or Let’s start talking more (based on Dr. Hodge). Or programming from an SLP trained through Apraxia Kids using Dynamic Tactile Temporal Cuing method. So much better than Prompt for treating our kids with Apraxia.

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Science of Reading based Literacy Instruction  

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Science of Reading based Literacy Instruction  

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Would like to see a literacy program based on the principles of the science of reading - namely a program that really emphasizes phonemic awareness and has explicit, systematic and sequential phonics instruction. This is often an area that is missed for literacy instruction for our kids. Would love to see a program like Raising Robust readers (developed by parents of kids with DS based on Orton-Gilligham) or the Guided Phonics SOR program by Tara West.

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Would love to have a speech social group for elementary school kids 7-13. Would love to see one that also supported AAC use.

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Would like to see a listing of therapist options and hours in the Friday Blast. Did it know when things had started up when they did as they were not listed in the newsletter.

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Can you see our swim get togethers growing into a swim club like Calgary has with Calgary Down Syndrome Dolphins Swim Club? If you google this, you will see the wide age group of swimmers having so much fun. If you can dream it, it can happen.

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How about a cafe which is run by teens and adults with Down Syndrome? Supported on site by parent volunteers? We could start small with a cafe bar out of our Down Syndrome kitchen once a week, say for 2 to 3 hours. Serving hot drinks only? Serving cold drinks only? Serving both? If you can dream it, it can happen!

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Can you see a cafe run by teens and adults with Down Syndrome? Supported on site by volunteers. We could start small out of our EDSS office? Or a kitchen? Tea and coffee, hot or cold? If you can dream it, it can happen

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What about offering programs by partnering with other locations or FRNs.
There are many families living on the outskirts of Edmonton who would love connection and programming but just say it is too far to drive to the EDSS office for everything.