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Participation Information
Participation & Volunteering Opportunities

Participation Workshop
Brighton & Hove Participation Padlet
East Sussex Participation Padlet

Neurodevelopmental Participation Padlet

Adult Eating Disorder Provider Collaborative Padlet
Specialist Older Adults Mental Health Services Participation Padlet
West Sussex Participation Padlet
Peer Support

Sussex Recovery College
Trust Membership
Depression Resource

Carers' WTG Padlet

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These resources have been developed by a psychology undergraduate who is working with one of the trust's East Sussex Neighbourhood Mental Health Teams. The purpose of these resources are to be used both with staff and service users to manage challenging situations in non-therapy environments.

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These resources have been developed by a psychology undergraduate who is working with one of the trust's East Sussex Neighbourhood Mental Health Teams. The purpose of these resources are to be used both with staff and service users to manage challenging situations in non-therapy environments.

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These resources have been developed by a psychology undergraduate who is working with one of the trust's East Sussex Neighbourhood Mental Health Teams. The purpose of these resources are to be used both with staff and service users to manage challenging situations in non-therapy environments.

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These resources have been developed by a psychology undergraduate who is working with one of the trust's East Sussex Neighbourhood Mental Health Teams. The purpose of these resources are to be used both with staff and service users to manage challenging situations in non-therapy environments.

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These resources have been developed by a psychology undergraduate who is working with one of the trust's East Sussex Neighbourhood Mental Health Teams. The purpose of these resources are to be used both with staff and service users to manage challenging situations in non-therapy environments.

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Please see our quarter 4 newsletter, highlighting some of the amazing work EbEs have been up to.

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Please see the agenda for the next working together group, scheduled for Wednesday 20th May at 12 o'clock, we look forward to seeing you there.

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Please see attached the Working Together Group information document, aiming to outline what the Group is for anyone interested in potentially joining.

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Information Working Together Group - Eating Disorder Provider Collaborative

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Thank you everyone who attended the April Working Together Group. Please see the minutes ans actions from the meeting.

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Exploring Neuroinclusive Eating Environments for Neurodivergent Groups and Carers

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Exploring Neuroinclusive Eating Environments for Neurodivergent Groups and Carers

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An external opportunity that may be of interest.

This study aims to explore how we can create neuroinclusive eating environments for Autistic people and people with intellectual disabilities. The research team is looking to talk to Autistic people, carers of Autistic people and/or people with intellectual disabilities (including parents, support workers and carers), and charity/support workers about how different factors of eating environment have affected their experiences.

You may be able to take part in this study if you:

are 16+ years old

are UK-based

have no diagnosis of intellectual disability

If interested in participating, please scan the QR code located on the attached study flyer. Please feel free to contact Dr Karri Gillespie-Smith (karri.gillespie-smith@ed.ac.uk) for any questions about this study.

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Exploring Neuroinclusive Eating Environments for Neurodivergent Groups and Carers

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Please see our first quarterly newsletter for the working together group. This will be a quarterly publication to highlight some of the work and progress within the provider collaborative. We welcome any input and ideas for future publications as well.

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BEAT Eating Disorder awareness week poster

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BEAT Eating Disorder awareness week poster

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The fantastic poster for eating disorder awareness week is attached above if you would like to have a look.

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Join us on Tuesday 21st April for our next Working Together Group!

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Please see the minutes from the March WTG.

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Our updated WTG poster

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Please see the agenda for the next WTG, Tuesday 24th March 11am

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Please see an opportunity, outside of the WTG, to share lived experience around the Mental Health Act. Feel free to have a look at the recruitment poster, and if you meet the criteria and are interested, reach out via the poster instructions.

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Please see our co-produced patient top tips leaflet created with key input from those who have experienced inpatient care, to reflect key information and support that would have been helpful prior to admission. This leaflet has now had the go-ahead and will be piloted as a resource within services.

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Adult Eating Disorder Top Tips FINAL Feb 26

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Please see our co-produced carers' top tips leaflet created with key input from those who have experienced caring for a loved one within the inpatient setting. This leaflet has now had the go-ahead and will be piloted as a resource within services.

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Adult Eating Disorder Carer Top Tips - FINAL Feb 26

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A key document shared within the WTG, with emphasise on the theme of community, inline with Eating Disorders Awareness Week.

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Please see the Powerpoint created following the March working together group as a reflection of the meaning of community and support, including the menti clouds generated within the session.

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Join us on Tuesday 24th March for our next working together group!

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Please find attached the "what you need to know newsletter" in regard to the changes to the MHA (MHA 1983 amended 2025).

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Please see the proposed agenda for February's Working Together Group.

In preparation for this group it would be great if you have a chance to look over the draft AMH leaflet (posted below) and bring any notes to the meeting.

We look forward to seeing you on the 25th!

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Join us on Wednesday 25th February for our next working together group!

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Draft AHM leaflet for review, with feedback brought to the February Working Together Group.

Alternatively any comments can be passed on to Lara via email if you are unable to attend the group.

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The temperatures are on the rise, but it is still important people stay warm and well this winter. If you look after a relative, friend or neighbour, we would like to encourage you to focus on your...

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Care for the Carers - Supporting carers in East Sussex

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The temperatures are on the rise, but it is still important people stay warm and well this winter. If you look after a relative, friend or neighbour, we would like to encourage you to focus on your...

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Increase or Decrease Font Size

An update on response timescales

Due to overwhelming demand for our services, response times will vary. In calling us, please leave a message on our voicemail with your contact details. Our team will endeavour to call back as soon as is practicable.

If you are in need of support urgently, please contact 111/999 in the event of a medical emergency or Adult Carepoint (01243 642121) if you need to raise a safeguarding.

We thank you for your patience.

I am most grateful for the help that you give and feel that I haven't been lost in the system but have been treated with care and consideration.

I found talking to the Response Line worker very reassuring that there was help for me if I needed it which made me feel better and not alone. All the information she gave me has been valuable and has reassured me and put my mind at rest.

I enjoyed my telephone conversation and felt far less stressed at the end of it. I felt that the Response Line worker was empathetic with my situation and listened to all my concerns.

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Carers Support West Sussex | Local Support For Carers

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Increase or Decrease Font Size Due to overwhelming demand for our services, response times will vary. In calling us, please leave a message on our voicemail with your contact details. Our team will endeavour to call back as soon as is practicable.

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Mental Health Matters Kent and Medway - 0800 107 016

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A website with resources for carers of those with eating disorders

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Caring for a Loved One with an Eating Disorder: The New Maudsley Skills-Based Training Manual provides a framework for carer skills workshops which can be used by anyone working with these conditions whether they be workshop or carer support group facilitators, clinicians, counsellors, school nurses, GPs or practice nurses.

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Switchboard is the national LGBTQIA+ support line. For anyone, anywhere in the country, at any point in their journey.

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Switchboard is the national LGBTQIA+ support line. For anyone, anywhere in the country, at any point in their journey. We can discuss anything related to sexuality and gender identity. Whether it's sexual health, relationships or just the way you're feeling. This is your space - to explore, talk and be truly heard.

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Switchboard is the national LGBTQIA+ support line. For anyone, anywhere in the country, at any point in their journey. We can discuss anything related to sexuality and gender identity. Whether it's sexual health, relationships or just the way you're feeling. This is your space - to explore, talk and be truly heard.

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If you are currently accessing services, remember to continue to utilise them for support (e.g. SEDS or AAEDS duty lines)

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Shout is the UK's first and only free, confidential, 24/7 text messaging service for anyone who is struggling to cope.

Text SHOUT to 85258

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Get help - free, 24/7, confidential mental health text support service

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Feeling anxious, stressed, or need support? Shout is free, confidential and available 24/7. Text SHOUT to 85258 to start a conversation with a trained volunteer.

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24/7 mental health text messaging support is available, text word SUSSEX to 85258

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24/7 messaging service, more info in flier

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Offer 24/7 support, you can call for free on 116 123

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A suicide prevention resource full of useful information and tools to help you stay safe in a crisis

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StayAlive | Essential suicide prevention for every day life

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The StayAlive app is a suicide prevention resource for the UK, packed full of useful information and tools to help you stay safe in crisis.

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An eating disorder charity based in Hull and Yorkshire, but the website provides an array of useful resources.

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You can call NHS 111 and select the mental health option for support

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NHS 111 can help if you think you need medical help right now.

You can get help from NHS 111:

111 can direct you to the best place to get help if you cannot contact your GP during the day, or when your GP is closed (out-of-hours).

Depending on what you need, you might be advised to:

call 999 or go to A&E in an emergency

go to an urgent treatment centre

see an evening and weekend GP (out-of-hours GP)

book a callback from a nurse

get urgent specialist support, for dental or mental health problems

contact your own GP surgery

see a pharmacist for help with a minor illness

look after yourself safely at home

Get help online

111 online is for people aged 5 and over. Call 111 if you need help for a child under 5.

Answer questions about your symptoms on the website or in the NHS App and you will be told what to do next.

Find out how 111 online works in detail.

Emergency prescriptions

You can get an emergency supply of regularly prescribed medicine from 111 online for someone of any age.

Dental problems

111 online can help with dental problems. This might mean finding a dentist, or an emergency dentist if there is availability in your area.

What 111 online cannot do

111 online cannot:

issue fit notes - you need to contact your GP

make or cancel appointments for you in other parts of the NHS

111 online asks for feedback, but this is only used to help improve the service.

111 online is unable to respond to requests for medical help left as feedback.

Get help on the phone

Call 111 instead if you:

need help for a child under 5

have complex problems caused by an existing medical condition

have a care plan from your doctor for your current health problem

need to get end-of-life care

Find out what happens when you call 111.

Waiting for a callback from a 111 nurse

Depending on your symptoms, you may have been offered a callback from a nurse when you used 111. You cannot request one.

The time you will wait is based on the symptoms you told 111 about. The callback service is usually busier at weekends and on bank holidays.

People with the most serious symptoms are called back first.

If you booked a callback using 111 online

The confirmation page describes what will happen next and what you should do if your symptoms get worse while you are waiting.

If you are waiting for a callback from the 111 telephone service

You are in a queue. You do not need to contact 111 again unless your symptoms have changed or got worse.

If your symptoms get worse while you are waiting

Call 111 for children under 5. Anyone over the age of 5 can check their symptoms online or call 111.

If you have signs of a life-threatening illness or have tried to end your life, call 999 now.

If you miss the call

A nurse will try and call you up to 3 times. If they cannot contact you they will leave a message, but you will not be able to call them back.

You will have to use 111 online or call 111 again and start from the beginning.

You cannot cancel the call

A nurse needs to check you're ok. If you feel better or have got help elsewhere, tell the nurse when they call.

Other ways to contact 111

Text relay

Call 18001 111 using text relay, 24 hours a day.

British sign language (BSL)

Use signvideo.co.uk/nhs111

Help in other languages

Call 111 and ask for an interpreter.

How to get urgent medical help elsewhere in the UK

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Find out when to get help from NHS 111, including how to use 111 and what problems 111 can help with.

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You can download this now for free from both the Apple and Google store – see attached QR code for ease.

The App was designed to enable users to locate safe spaces near to their location at any given time.  The App now has over 275 safe spaces across the county with more added every week. The App enables the user to assign a named contact who will receive an SMS when triggered of the users GPS and What3Words location asking them to call the user as they feel unsafe.

The App also has the option for recording surroundings with both camera and sound and the footage is stored securely within the app should this be needed as well as links to the SafeSpaceSussex online directory of support services for further help and advice.

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Join us on Monday 12th January for our first meeting of 2026!

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Join us on Tuesday 2nd December for our next working together group.

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Experts by Experience are encouraged book in with their local Participation Lead for a conversation about how they are developing in their role.

Please download this EbE Development Form that is designed to help with this.

If you require the form in an alternative format (for example, as a PDF),  please contact us and let us know.

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Up to 12 months of expert coaching, to help you overcome whatever challenges you face RE work, and equip you with the skills and mindset you need to get into work or education.

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If you’re 16 to 24 and looking for work, register your interested to sign up for the Spear Programme.

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See post below for timetable and link

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Online Activity Sessions | Virtual Village Hall | Royal Voluntary Service

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The Virtual Village Hall offers online activity sessions for you to enjoy at home. Run by Royal Voluntary Service, all sessions are led by professional tutors and experts.

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A free self-management course for adults
living with a long-term health condition.

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Mental Health Awareness week starts on May 12th - here is the signposting for SPFT

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If you're struggling with your mental health or are concerned about someone else, here's how to get help. From the following options, please select the one that best describes how you are feeling.
Feeling unable to cope, worried you may hurt yourself or somebody else and/or experiencing suicidal feelings?

For immediate help

For same or next day help

You can get support in different ways depending on what you prefer. All services are free.

Call NHS 111 and select the mental health option or the Samaritans on 116 123 (available 24/7).

Visit a Staying Well service (out-of-hours mental health crisis support service for people aged 18+ available in Brighton, Crawley, Eastbourne, Hastings and Worthing).

Text the word SUSSEX to 85258 (24/7 mental health text-messaging support service).

Download the Stay Alive app - a suicide prevention resource full of useful information and tools to help you stay safe in crisis.

Feeling stressed, anxious, low or experiencing panic attacks?

The following are services that you can either contact directly (details below) or be referred by a GP.

NHS Talking Therapies for anxiety and depression

If you live in Sussex, are over 18 and are struggling with common mental health problems like feelings of depression, excessive worry, social anxiety, post-traumatic stress disorder (PTSD) or obsessive compulsive disorder (OCD), you can refer yourself to your local NHS Talking Therapies service.

Services are free, confidential and provide a wide range of support, including courses, online programmes and one-to-one sessions. They aim to help you understand your symptoms and take practical steps to improve your mental health.

If you are experiencing a severe mental health disorder, please see a GP, who can refer you to the appropriate service.

Mental health support at your GP surgery

If you have a diagnosed mental illness or are having difficulties with your mental health and would like coping strategies to help, you can get support with your mental health from the Emotional Wellbeing Service, or similar service, at most GP surgeries. These services can provide you with information, advice, guidance and support.

Contact your GP surgery to find out what mental health support is available.

Experiencing a significant change in your mental health?

You should call NHS 111 or visit NHS 111 online for advice if you - or the person you are concerned about - experience a significant change in your mental health and are not already receiving care from mental health services.

This might include:

Hearing or seeing things that are not experienced by other people, for example hearing voices

Having strong beliefs that are not shared by others, for example believing there is a conspiracy against you

Having excessive energy or movements, sleeping very little

Behaving in a bizarre and out of character way

Changes in behaviour like wanting to avoid people, lack of basic self-care.

Whilst these can be normal experiences, they can also be signs of something more serious.

Do you currently receive care from one of our services?

If you or the person you are concerned about currently receives care from one of our services, such as a community mental health team, please get in touch with the specialist team as soon as possible. You can refer to the care plan for advice. This will also contain contact details for the team supporting the person in crisis.

Worried about money, housing or another issue that is affecting your mental health?

There are lots of ways you can get practical help with issues that may be affecting your mental health.
If you live in Brighton & Hove If you live in East Sussex If you live in West Sussex
Social Prescribing service at your GP surgery

Social Prescribers can connect you to support, services and activities to help address the challenges and issues you may be struggling with. Ask your GP or GP surgery if they have a Social Prescribing service.

Waiting times differ between GP surgeries.

Where to find advice and information about local mental health support

Not sure what support you need or would like? There are several community-based groups that can support you with your mental health, whether you have a diagnosed mental illness or need short-term help or advice about your mental health. Find out what's available in your area.
If you live in Brighton & Hove If you live in East Sussex If you live in West Sussex

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How to get help if you need help with your mental health

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Welcome to the Adult Eating Disorder PC Padlet. Have a look around at previous meetings and work as well as future opportunities available.

If you would like to know more information on how to get involved we would love to hear from you!

Please email lara to find out more.

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Working Together Group Terms of Reference

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Working Together Group Terms of Reference

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Beat are the UK’s eating disorder charity. Founded in 1989 as the Eating Disorders Association, our mission is to end the pain and suffering caused by eating disorders.

Key contact number: 0808 801 0677

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Beat provides Helplines offering support and information about eating disorders no matter where you are in your journey.