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http://www.open.edu/openlearn/education/the-digital-scholar/content-section-overview

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You can't repeat that, I said it in public!

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You can't repeat that, I said it in public!

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A blog post from Damian Roland in which he reflects about ethics of SoMe research

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This is the 161st #WILTW

What would you do if the picture you posted on social media went viral? Be pleased that you had shared the love or be embarrassed that you had forgotten to check your privacy settings. Were you even aware that your posts could be seen by people you'd not 'friended'

For those who are frequent users of social media understanding the public nature of your communication is obvious. But is everyone aware of this?

In a comprehensive blog by the @Mental_Elf and the South West Peninsula Collaboration for Leadership and Applied Health Research and Care ( PenCLAHRC) a recent systematic review on " any qualitative methods to collect data on attitudes on the ethical implications of research using social media" is discussed.

Essentially the paper was looking to examine perceptions of ethical considerations when performing research using social media.

Ethics of social media research: from Big Brother to rainbow unicorns

There were a variety of findings (please do read the blog and the review itself) but the one that caught my eye was the potential necessity for obtaining informed consent for using material on social media.

Don't get fact wouldn't be allowed to examine tweet in academic paper without consent but I'm allowed to RT/Comment on it to my followers?

- Damian Roland (@Damian_Roland) June 15, 2017

If someone posts something in a public forum should you have to ask them if you want to comment on that post in an academic journal? This is more than a mere ethical conundrum. Our news feeds are now full of leaders and commentators using social media to inform and debate. It would be difficult to argue that they don't want the information to be consumed and digested.

The FAKE MSM is working so hard trying to get me not to use Social Media. They hate that I can get the honest and unfiltered message out.

- Donald J. Trump (@realDonaldTrump) June 6, 2017

But what of the general public? Whose responsibility is it to let them know that what they are saying may be available to everyone? The terms and conditions as you register? A regular reminder as you log-on? Or just common sense?

Colleagues and I will shortly be publishing a paper that (in a small appendix) uses tweets as part of the research exercise. It hadn't even occurred to me to obtain individual consent to use those (public) micro-blogs in our work?

Would you mind if your tweet or facebook posting was used by a researcher?

..and why?

What have you learnt this week? #WILTW
You can now follow WILTW on Facebook by liking this page . Browse previous posts here or insert your e-mail address in the box on the right hand side to receive future posts.

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You can't repeat that, I said it in public! #WILTW

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This is the 161st #WILTW What would you do if the picture you posted on social media went viral? Be pleased that you had shared the love or be embarrassed that you had forgotten to check your privacy settings.

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Blog post from one of #PCW participants on ethics in using SoMe data in research 

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Blog post from one of #PCW participants on ethics in using SoMe data in research 

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https://t.co/u2aQCTGtTp

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Requested #PCW from https://tags.hawksey.info/get-tags/

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https://tags.hawksey.info/get-tags/

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https://www.symplur.com/healthcare-hashtags/

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Link to Association of Internet Research website

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Link to Association of Internet Research website

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https://aoir.org/ethics/

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using twitter posts of unwitting people may be legal, but is it ethical?
Response: this is a big controversy in the field - no consensus yet

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(full of the self promotion today!)

We run a mooc on digital Footprints on Coursera that some folks might find useful:
https://www.coursera.org/learn/digital-footprint

Thanks - all resources are appreciated!!!

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I'm a mendeley advisor and big fan of the software. Here's a demo I do for my students:

https://media.ed.ac.uk/media/Mendeley+Demo/1_rvca2aer

Response: thanks for the share!!

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We will be posting many resources here https://www.mendeley.com/community/social-media-in-and-as-research/

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Something I've encountered - in the workplace, do we have an expectation that in order to participate in a certain type of work (eg our example of research project lifecycle) we require our staff to have a certain type of digital footprint? And how do we assist staff who don't want this?

Jill

Response: This is a thorny issue that I've encountered with students as well. This is why universities have their behind firewall systems, but even so causes some students distress. It is challenging to require anyone who doesn't want to participate in a digital space to do so, however with new staff that could be an expectation of the job as that is the employer's perogative.

Response: I agree and I think especially when students are involved (but we should be protecting staff too) being totally upfront and transparent about requirements is very important

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Certain research employs machine learning or computer analysis of data. Is this considered within a social media umbrella? Or is this stretching the definition too far?

Response: it depends which kind of data, I think the domains get crossed here. Think analyzing big, open data , these can be considered under the social media umbrella, although not all big data are open. in this case I am not sure we can insert the research under the SoMe umbrella.

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these tools we are putting up on post-its. They seem to be just tools. Are they social media? Or are they tools which inhabit an electronic environment?

Response: Social media has emerged from the broader context of Medicine 2.0 and has been defined in a variety of ways. Some definitions have been synonymous with Medicine 2.0 and encompass  e-learning and distance learning tools.  Others have taken a more narrow focus and defined social media as a “collection of web-based technologies that share a user-focused approach to design and functionality, where users actively participate in content creation and editing through open collaboration between members of communities of practice.”

Social media tools (such as Facebook or Twitter) have the potential to build on the success of e-learning with tools that are more learner-generated, collaborative, and engaging.
https://www.ncbi.nlm.nih.gov/pubmed/23619071

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Response: You are illustrating the downside of anonymous posting :)

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What about Implementation? Isn't that recruitment too?

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What about Implementation? Isn't that recruitment too?

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Response: yes - enrolling participants, gathering data and then analysis and interpretation of data
Definitions of each phase can be found here https://www.ncbi.nlm.nih.gov/pubmed/25742363

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Response: Thanks - more detailed lit review, identifying underlying theories and methods and planning the project timeline; definitions of each phase can be found here https://www.ncbi.nlm.nih.gov/pubmed/25742363

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(so I have a Research interest in this which influences my thinking) but I personally feel that people need to have a better understanding of their digital footprints. The visitor/resident distinction is important, but I think visitor needs to be redefined. What's a short way of saying "my data is only seen by machine learning algorithms not real people"? 😁😂

Response: Yes, you'll enjoy participating in  the discussion later on Ethics of big data.

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i find it difficult to define my digital footprint.we all exist within the digital world a great deal. our participation defies definition in many ways

Response:
It is challenging to define - what sites do you visit? Where do you post? Where do you just look? What do you share?

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...are welcome here - or you can identify yourself - either way. We will try to address your questions DURING the workshop.
You can also ask (non-anonymous) questions to be answered after the workshop on the Open Medical Education Practice blog: https://openmededpractice.wordpress.com/contact/

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Would you share your slides please?

Response: We will share our slides after the workshop with anyone who wants them - just enter your name & email address into this spreadsheet:
https://docs.google.com/spreadsheets/d/1IG-zbz2l7QsS556S2efLp3yTxm-fzGF72gSLyWXJ7L4/edit?usp=sharing_eip&ts=59a2a393

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What if you share a link? does that make you a visitor or a resident? and does it matter? because there is no such thing as not leaving a trace.

Response: Regardless of privacy settings - social media ultimately is always public, permanent, & amplified (screenshots can be taken, etc) and so - at some level - this is absolutely an arbitrary distinction!