# data[].attributes.headline
The ability to share IP of course-created work equally

# data[].attributes.subject
The ability to share IP of course-created work equally

# data[].attributes.headline
Division between those of us that sit in professional services but have a small research portfolio

# data[].attributes.subject
Division between those of us that sit in professional services but have a small research portfolio

# data[].attributes.headline
Projects that involve researchers working with communities in a short term way (no funding to continue it long term) which then leave communities feeling used

# data[].attributes.subject
Projects that involve researchers working with communities in a short term way (no funding to continue it long term) which then leave communities feeling used

# data[].attributes.headline
Lack of clarity over whether/how payments can be made to participants within doctoral research

# data[].attributes.subject
Lack of clarity over whether/how payments can be made to participants within doctoral research

# data[].attributes.headline
Ensuring ethical payments to partners take place / is allocated accordingly

# data[].attributes.subject
Ensuring ethical payments to partners take place / is allocated accordingly

# data[].attributes.headline
Compensating community members for their time without it having a catastrophic impact on their benefit payments

# data[].attributes.subject
Compensating community members for their time without it having a catastrophic impact on their benefit payments

# data[].attributes.headline
Getting stuck in inflexible ethical approval processes that duplicate other processes (ie safeguarding) and are restrictive in a way that make outcomes worse for partners and students

# data[].attributes.subject
Getting stuck in inflexible ethical approval processes that duplicate other processes (ie safeguarding) and are restrictive in a way that make outcomes worse for partners and students

# data[].attributes.headline
The ability to share co-created work equitably

# data[].attributes.subject
The ability to share co-created work equitably

# data[].attributes.headline
'Helicopter' research - going into a community and working with them on a project but not having the resources to build capacity in the community to continue/build on the work (as this wasn't build into the bid in the first place)

# data[].attributes.subject
'Helicopter' research - going into a community and working with them on a project but not having the resources to build capacity in the community to continue/build on the work (as this wasn't build into the bid in the first place)

# data[].attributes.headline
Ensuring the voices we hear are diverse without risking appearing tokenistic

# data[].attributes.subject
Ensuring the voices we hear are diverse without risking appearing tokenistic

# data[].attributes.headline
It's around putting researchers in an environment where they might be vulnerable (example of a researcher being racially harassed by a member of the public), we want researchers to work with diverse audiences, but how do we ensure that they are safeguarded as well? 

# data[].attributes.subject
It's around putting researchers in an environment where they might be vulnerable (example of a researcher being racially harassed by a member of the public), we want researchers to work with diverse audiences, but how do we ensure that they are safeguarded as well? 

# data[].attributes.headline
Finance e.g. due to Covid payments went online via bank transfers only which can limit who we can involve

# data[].attributes.subject
Finance e.g. due to Covid payments went online via bank transfers only which can limit who we can involve

# data[].attributes.headline
Requiring a partner to apply for the grant, but then not knowing whether we will get it, but the partner needs to be compensated for their time in applying for the funding whether or not we get it

# data[].attributes.subject
Requiring a partner to apply for the grant, but then not knowing whether we will get it, but the partner needs to be compensated for their time in applying for the funding whether or not we get it

# data[].attributes.headline
For me is it's a question of 'to ethics or not to ethics'? As a researcher I do ethics applications for everything I do, as a public engagement professional I find in working in that role it 'isn't required' and I  haven't got to a justification of that yet that I am happy with!

# data[].attributes.subject
For me is it's a question of 'to ethics or not to ethics'? As a researcher I do ethics applications for everything I do, as a public engagement professional I find in working in that role it 'isn't required' and I  haven't got to a justification of that yet that I am happy with!

# data[].attributes.headline
There us a lack of resource available for researchers doing PE work. Their research may go through ethics board, but who is checking that their approach to PE is ethical and inclusive?

# data[].attributes.subject
There us a lack of resource available for researchers doing PE work. Their research may go through ethics board, but who is checking that their approach to PE is ethical and inclusive?

# data[].attributes.headline
Academic expectations that publics are waiting for them to come along and gift them knowledge. That they would be grateful, rather than an equal partner

# data[].attributes.subject
Academic expectations that publics are waiting for them to come along and gift them knowledge. That they would be grateful, rather than an equal partner

# data[].attributes.headline
1)	Paying people on benefits without affecting their entitlement (particularly for ad hoc things)	2)	For patient involvement – the same people often get asked over and over to participate in projects (particularly for rare diseases). Unfair burden on people who are ill.

# data[].attributes.subject
1)	Paying people on benefits without affecting their entitlement (particularly for ad hoc things)	2)	For patient involvement – the same people often get asked over and over to participate in projects (particularly for rare diseases). Unfair burden on people who are ill.

# data[].attributes.headline
Cultural shift in how and why vulnerable and   underserved populations should be recognised for their wisdom and skills - e.g teaching role

# data[].attributes.subject
Cultural shift in how and why vulnerable and   underserved populations should be recognised for their wisdom and skills - e.g teaching role

# data[].attributes.headline
I worry that research with vulnerable participants might be inherently unethical, given how it is monetised by the university, contributes to my own career progression, etc.

# data[].attributes.subject
I worry that research with vulnerable participants might be inherently unethical, given how it is monetised by the university, contributes to my own career progression, etc.

# data[].attributes.headline
Trying to get volunteers from communities to engage with advisory groups and expert patient group but not being able to pay them due to funding and also affects on benefits.

# data[].attributes.subject
Trying to get volunteers from communities to engage with advisory groups and expert patient group but not being able to pay them due to funding and also affects on benefits.

# data[].attributes.headline
No gender neutral pronouns on university forms

# data[].attributes.subject
No gender neutral pronouns on university forms

# data[].attributes.headline
I can only think about a personal one: Reactions to mask exemption during covid time, and getting almost 'angry' looks from people. Later I obtain a 'horizons disability tag' as well as a 'mask exempt' lanyard, which massively improved things, but by then things had calmed down nationally a bit as well, so not sure what was the biggest driver, maybe fear had gone down anyway

# data[].attributes.subject
I can only think about a personal one: Reactions to mask exemption during covid time, and getting almost 'angry' looks from people. Later I obtain a 'horizons disability tag' as well as a 'mask exempt' lanyard, which massively improved things, but by then things had calmed down nationally a bit as well, so not sure what was the biggest driver, maybe fear had gone down anyway

# data[].attributes.headline
Sometimes ethics processes themselves take a considerable toll on community groups and are not a co-produced process in themselves.

# data[].attributes.subject
Sometimes ethics processes themselves take a considerable toll on community groups and are not a co-produced process in themselves.

# data[].attributes.headline
NCCPE just worked with Durham to update their participatory research ethics guidance and toolkit https://www.durham.ac.uk/research/institutes-and-centres/social-justice-community-action/research-areas/ethics-consultation/       The toolkit includes a bit on ethical approval process. We (at UKRI and Wellcome too) are looking what else is needed for the sector too

# data[].attributes.subject
NCCPE just worked with Durham to update their participatory research ethics guidance and toolkit https://www.durham.ac.uk/research/institutes-and-centres/social-justice-community-action/research-areas/ethics-consultation/       The toolkit includes a bit on ethical approval process. We (at UKRI and Wellcome too) are looking what else is needed for the sector too

# data[].attributes.headline
It's hardest when an individual's best interest may be contrary to the best interest of the whole?

# data[].attributes.subject
It's hardest when an individual's best interest may be contrary to the best interest of the whole?

# data[].attributes.headline
At The University of Manchester we have an interactive ethics decision tool which now has PPIE section, unfortunately I can’t share it as it restricted access

# data[].attributes.subject
At The University of Manchester we have an interactive ethics decision tool which now has PPIE section, unfortunately I can’t share it as it restricted access

# data[].attributes.headline
Lack of time and resource to develop equitable partnerships!

# data[].attributes.subject
Lack of time and resource to develop equitable partnerships!

# data[].attributes.headline
As I said above, it's hardest when an individual's best interest may be contrary to the best interest of the whole?

# data[].attributes.subject
As I said above, it's hardest when an individual's best interest may be contrary to the best interest of the whole?

# data[].attributes.headline
Continuous/long term funding schemes to support sustained work with communities

# data[].attributes.subject
Continuous/long term funding schemes to support sustained work with communities

# data[].attributes.headline
sharing resources and processes… each institution keeps this stuff so private

# data[].attributes.subject
sharing resources and processes… each institution keeps this stuff so private

# data[].attributes.headline
As has been mentioned, lack of time/resources to work longer term with communities/coresearchers that is necessary to establish rapport/partnerships etc

# data[].attributes.subject
As has been mentioned, lack of time/resources to work longer term with communities/coresearchers that is necessary to establish rapport/partnerships etc

# data[].attributes.headline
Student projects as part of a module - defining what counts as "research" and what requires ethical approval.

# data[].attributes.subject
Student projects as part of a module - defining what counts as "research" and what requires ethical approval.

# data[].attributes.headline
Lack of time and resources. Disjointed responsibility for different aspects of PE.

# data[].attributes.subject
Lack of time and resources. Disjointed responsibility for different aspects of PE.

# data[].attributes.headline
Lack of diversity and lived experience within teams = dissonance and lack of understanding within practice and approaches

# data[].attributes.subject
Lack of diversity and lived experience within teams = dissonance and lack of understanding within practice and approaches

# data[].attributes.headline
Not unsurprising but it’s the process and length of time it takes. Also the different processes that intersect between research and public engagement

# data[].attributes.subject
Not unsurprising but it’s the process and length of time it takes. Also the different processes that intersect between research and public engagement

# data[].attributes.headline
The sense of a lack of time - implicit pressure from institution (channelled from REF) to achieve an output/activity and move on to the next project/product.

# data[].attributes.subject
The sense of a lack of time - implicit pressure from institution (channelled from REF) to achieve an output/activity and move on to the next project/product.

# data[].attributes.headline
It could be that such a network members could offer expertise as an 'external consultee' for ethics applications. Likewise is there a role for NCCPE in a review role - a panel or Board? Having sight of the applications may provoke a sense of the challenges and decision making that could be shared.

# data[].attributes.subject
It could be that such a network members could offer expertise as an 'external consultee' for ethics applications. Likewise is there a role for NCCPE in a review role - a panel or Board? Having sight of the applications may provoke a sense of the challenges and decision making that could be shared.

# data[].attributes.headline
Having an aligned conversation about how to support best practice

# data[].attributes.subject
Having an aligned conversation about how to support best practice

# data[].attributes.headline
We're building relationships between the PER committee and our tender support team to try and get best practice into bids which include engagement

# data[].attributes.subject
We're building relationships between the PER committee and our tender support team to try and get best practice into bids which include engagement

# data[].attributes.headline
I'd like us to share better amongst institutions, including research councils!

# data[].attributes.subject
I'd like us to share better amongst institutions, including research councils!

# data[].attributes.headline
having a LEAP panel involved in design (although some of these issues may apply there too)

# data[].attributes.subject
having a LEAP panel involved in design (although some of these issues may apply there too)

# data[].attributes.headline
I'm not sure about how the Uni could make things more ethical, as funding is often external, but inspired by the session this morning I wish we had a PVC for Engagement/Community/Civic engagement to champion this work within the university and the city

# data[].attributes.subject
I'm not sure about how the Uni could make things more ethical, as funding is often external, but inspired by the session this morning I wish we had a PVC for Engagement/Community/Civic engagement to champion this work within the university and the city

# data[].attributes.headline
ethical engagement training - getting buy-in from the powers that be to make it a mandatory for researchers (and public engagement colleagues)

# data[].attributes.subject
ethical engagement training - getting buy-in from the powers that be to make it a mandatory for researchers (and public engagement colleagues)

# data[].attributes.headline
Clearer policy on 'payment' to 'volunteers'. I'm in a Medicine and Health Sciences Faculty and policy varies between groups.

# data[].attributes.subject
Clearer policy on 'payment' to 'volunteers'. I'm in a Medicine and Health Sciences Faculty and policy varies between groups.

# data[].attributes.headline
Having a dedicated diverse task team that that can raise questions/challenge strategies of engagement

# data[].attributes.subject
Having a dedicated diverse task team that that can raise questions/challenge strategies of engagement

# data[].attributes.headline
Embed ethical and equitable practice into institutional behaviours and all roles rather than something that one person does

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Embed ethical and equitable practice into institutional behaviours and all roles rather than something that one person does

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At the heart of such engagements are genuine relationships which are sustained through mutual learning and exchange of skills knowledge - at RGU we have achieved this work through collaborative working

# data[].attributes.subject
At the heart of such engagements are genuine relationships which are sustained through mutual learning and exchange of skills knowledge - at RGU we have achieved this work through collaborative working

# data[].attributes.headline
Does anyone have further examples where their institution has made positive changes in terms of ethics approval processes in this area?

# data[].attributes.subject
Does anyone have further examples where their institution has made positive changes in terms of ethics approval processes in this area?

# data[].attributes.headline
Review ethical potential issues in our PE

# data[].attributes.subject
Review ethical potential issues in our PE

# data[].attributes.headline
I'm going to familiarise myself with the resources from Durham and report back to my team

# data[].attributes.subject
I'm going to familiarise myself with the resources from Durham and report back to my team

# data[].attributes.headline
Consult some of the examples that other institutions have been developed and shared within this chat and discussion

# data[].attributes.subject
Consult some of the examples that other institutions have been developed and shared within this chat and discussion

# data[].attributes.headline
Definitely take a look at the resources people have provided and see how it can inform my own practice

# data[].attributes.subject
Definitely take a look at the resources people have provided and see how it can inform my own practice

# data[].attributes.headline
Follow up with our departmental ethics team about developing a PE specific ethics process based on our prior work

# data[].attributes.subject
Follow up with our departmental ethics team about developing a PE specific ethics process based on our prior work

# data[].attributes.headline
Would it be viable to have community representatives on university ethics committees?

# data[].attributes.subject
Would it be viable to have community representatives on university ethics committees?

# data[].attributes.headline
I will read the Durham guidance that was linked above. Would love to see other resources that others are able to share!

# data[].attributes.subject
I will read the Durham guidance that was linked above. Would love to see other resources that others are able to share!

# data[].attributes.headline
If NCCPE set up a panel/Board I would be happy to undertake reviews - if anyone wants an external consultee give me a shout z.r.knowles@ljmu.ac.uk

# data[].attributes.subject
If NCCPE set up a panel/Board I would be happy to undertake reviews - if anyone wants an external consultee give me a shout z.r.knowles@ljmu.ac.uk

# data[].attributes.headline
Share the good work that is happening across institutions internally

# data[].attributes.subject
Share the good work that is happening across institutions internally

# data[].attributes.headline
Ask about what cross university working is happening to support this?

# data[].attributes.subject
Ask about what cross university working is happening to support this?