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The CF Trust says "we are really interested in hearing what you think and feel about your life with CF.  This will help us make our youth programme and the work we do with children and young people event better".

Aged 6-17. Have your say!

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This year, as part of our annual Your Life and CF survey, we have created a survey for children and teenagers with CF aged 6-17. We are really interested in hearing what you think and feel about your life with CF. This will help us make our youth programme and the work we do with children and young people event better (you can find out more about our youth programme here).

Young people from our Youth Advisory Group (YAG) wrote the questions with us. One YAG member wanted to share a bit about why she thinks the survey is so important:
"I am a member of YAG and we work on projects to help people with CF by solving problems in their lives. We created this survey because we want to understand how CF impacts children and young people, and their thoughts and feelings about their condition and their lives. We are curious to see what children and young people value and the support they receive. We hope that we will find out what the CF community feels is most important. We wrote the questions hoping that children and teenagers feel comfortable answering them and for the survey to be a trusted place to write down their thoughts and feelings. We think children and young people's thoughts, feelings and worries are really important! If we know what matters to them, we can help to make a difference so that everyone can live a life that is not limited by CF."
Thank you for filling in our survey!

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Web survey powered by SurveyMonkey.com. Create your own online survey now with SurveyMonkey's expert certified FREE templates.

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Save money by applying for mytravelpass to get discounted travel for all 16-21 year olds across Wales. Receive 1/3 off your travel with mytravelpass.

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These videos provide information to help explain the key stages in the Personal Independence Payment (PIP) customer journey. For more information online, go ...

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Cardiff Youth Service are part of Cardiff Council’s Education department. We work with young people aged 11-25 to develop personal, social and educational development through a variety of opportunities. This includes activities in communities, participatory experiences, as well as information, suppo…

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Young person's guides

The following guides have been developed to provide information and advice to young people, who are leaving care, to find their way in the world.
Resources

Visit the Family Information Service for advice on childcare and parenting

AGENDA: A young people's guide to making positive relationships matter helps young people to raise awareness of gender inequalities, sexual harassment and violence in schools and communities

Newport Youth Council

We're recruiting now! Here at Newport Youth Council we have a number of exciting new opportunities available. Join us and #BeYourBrilliantSelf.
Who We Are & Why We Do This
We are a group of people aged between 11-25, actively engaged in representing young people's views and opinions.

With support and guidance from Newport City Council we ensure that young people have a voice and help to shape the future in the city for future generations.

We do this in line with United Nations Convention on the Rights of the Child and the local authority's duty to engage with young people. Each area within Wales must facilitate a Youth Council to allow young people to influence local decision making and provide every young person with the platform to make positive change.

If you would like to know more about our growing organisation please follow us on Twitter and Instagram.
Join Us!
If you would like to become a member, please fill in our personal details form.

After completion please send it to hello@newportyouthcouncil.org.uk and someone will respond as soon as possible!

Duke of Edinburgh's Award

The Duke of Edinburgh (DofE) programme is open to anyone aged between 14 and 24 years who would like to learn a new skill, volunteer, undertake a physical activity and complete an expedition.

Complete a bronze, silver or gold level and achieve an award by completing a personal programme of activities in four sections, or five if you're going for gold.

Along the way you'll pick up experiences, friends and talents that will stay with you for the rest of your life.

The DofE is run in Newport's secondary schools, youth clubs, Coleg Gwent and the Share Centre, Stow Hill.

Bronze level takes six months to complete, silver a year and gold 18 months.

Email duke.edinburgh@newport.gov.uk or visit the Duke of Edinburgh's Award website for more information.

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The following guides have been developed to provide information and advice to young people, who are leaving care, to find their way in the world. Resources Visit the Family Information Service for advice on childcare and parenting AGENDA: A young people's guide to making positive relationships matter helps young people to raise awareness of gender inequalities, sexual harassment and violence in schools and communities We're recruiting now!

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610 Followers, 72 Posts - Swansea’s one-stop shop for young people (11-25). Free & Confidential

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Growing up with CF, it's completely normal to worry about what the future might hold; how CF might affect your working life and if you will still be able to achieve everything you want to. But it's important to remember that more people with cystic fibrosis (CF) are in employment than ever before. And as far as possible, CF shouldn't be a barrier to you achieving a fulfilling career and achieving your dreams, whatever that might mean for you.

Working life when you have CF can also bring its challenges, though- whether that be a less than understanding employer, managing treatments at work or time off for hospital appointments.

In this podcast we explore all that and more. Our host Lucy enjoys a (virtual) cuppa with guests Rupert and Cicely, who share their experiences of working with CF, discuss some of the barriers they've faced, and reflect on their hopes and dreams for the future.
We'll also hear from Matthew, who works on the Trust's Helpline and will be answering your questions on CF and employment, as well as introducing the Trust's new programme of employment support for the CF community.
For information and support on any of the issues we talk about in the podcast, you can call our Helpline on 0300 373 1000, or email helpline@cysticfibrosis.org.uk.
You can find lots more information on work and CF, including details of organisations that can provide support with discrimination, on our website: https://www.cysticfibrosis.org.uk/life-with-cystic-fibrosis/work.

Find out more about CForYourself at www.cysticfibrosis.org.uk/podcast.

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cforyourself: a podcast from cystic fibrosis trust

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‎CForYourself: A podcast from Cystic Fibrosis Trust: CForYourself: Work and cystic fibrosis on Apple Podcasts

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Growing up with CF, it's completely normal to worry about what the future might hold; how CF might affect your working life and if you will still be able to achieve everything you want to. But it's important to remember that more people with cystic fibrosis (CF) are in employment than ever before.

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Visualising non-visible disabilities. Special effects make-up artist Laura Gardner designs a look for Duke Al to help show the world what living with type 1 diabetes feels like for him.

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BBC One - Talk Disability, You Don't Look..., Diabetic

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Visualising non-visible disabilities. Special effects make-up artist Laura Gardner designs a look for Duke Al to help show the world what living with type 1 diabetes feels like for him.

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Save time and money by avoiding the need to print forms, take photos at a photo booth or post anything to us. Apply for your UK ID card using CitizenCard's paperless, online application system to manage your application from any device using your online account.

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Apply for a UK ID card Online - CitizenCard

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Apply for a valid UK ID card and proof of age - the Home Office & Police approved. CitizenCard offers simple first photo ID or replacement card online application. Services: urgent 1-2 working days; standard - up to 21 days.

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Cardiff and Vale University Health Board

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IMPORTANT MESSAGE

**Please remember to drink plenty of fluids in the hot weather**

Cystic Fibrosis (CF) is an inherited condition, where you inherit one faulty gene from each of your parents. If you have two faulty genes, then many surfaces in your body are unable to move salt and water properly in/out of their cells. This causes a build of thick, sticky mucus in various parts of the body, which causes damage and can cause those organs to stop working properly. This can affect almost any part of your body but most commonly affects your:
Nose & Sinuses Lungs Pancreas Stomach & Bowels Liver & Gallbladder Joints
Care for CF has changed over the years, starting from a small number of medications used to help clear mucus, and improve symptoms to a wide array of medications to help prevent disease. Most recently a new group of medicines, CFTR Modulators, which can actually improve salt and water transport in cells have been developed. Combined with team based multi-professional care, this has led to much longer life expectancy, and to a much larger number of adults living with CF.

As CF affects so many parts of your body, it can impact almost any part of your life, including your physical and mental health, wellbeing, work and relationships. Our CF team is set up to help manage all these different issues, which is why we have many people in our team across a number of professions.

CF64 2XX

For more information on the University Hospital Llandough, please see the UHL A-Z Fact Sheet. This document provides details on things from transport to the hospital, to the services the hospital provides.

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IMPORTANT MESSAGE **Please remember to drink plenty of fluids in the hot weather** Cystic Fibrosis (CF) is an inherited condition, where you inherit one faulty gene from each of your parents. If you have two faulty genes, then many surfaces in your body are unable to move salt and water properly in/out of their cells.

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https://www.volunteering-wales.net/

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Apply for your provisional licence here!

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Apply for your provisional licence here!

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Get your first provisional driving licence for a car, motorbike, moped or other vehicle from DVLA online. To apply you must:

It costs £34 when you apply online.

If you applied for a provisional licence before 1 March 1973 you'll need to use this service to get a new licence.

Before you start

You'll need:

an identity document, such as your passport

addresses where you've lived for up to the last 3 years

You might be asked for additional information, such as your National Insurance number if you know it.

You'll get a confirmation email from DVLA after you've applied.

Your licence should arrive within one week if you apply online. It may take longer if DVLA need to make additional checks.

Cost

It costs £34 to apply online. You can pay by MasterCard, Visa, Electron or Delta debit or credit card.

When you can drive with a provisional licence

There are different rules depending on your age and the type of vehicle. Check what vehicles you can drive and when before you start to learn.

If you already have a provisional licence

If you already have a provisional licence you can:

Apply by post

Complete form D1 'Application for a driving licence', available from the DVLA form ordering service or most Post Offices.

Send your application to the address on the form, along with a cheque or postal order for £43.

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Apply for your first provisional driving licence

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Apply for your first provisional driving licence from DVLA online to drive a car, motorbike or moped.

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Transitioning is likely to bring up lots of different feelings - worry, anxiety, sadness about leaving paeds and going to a new service as an "adult" as well as more positive emotions like happiness and excitement about being independent and a "new start". For those more difficult emotions, here are some things that can help when we get stuck and feel overwhelmed by them.

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Useful apps!

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A meditation app that acts as a personal guide to health and happiness

An online cognitive behaviour therapy program for depression and anxiety

​

A free app designed to help teens and young adults cope with anxiety.

Helps build resilience - the ability to stay strong, motivated and optimistic even in the face of difficult obstacles

Turns the latest innovations in the science of happiness into activities and games that help you lead a more fulfilling life.

A meditation program developed by psychologists and educators to help bring mindfulness into your life

Chill Panda helps children better understand their stress and shows them ways to feel better using breathing techniques, yoga, exercise and calming games.

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A meditation app that acts as a personal guide to health and happiness An online cognitive behaviour therapy program for depression and anxiety ​ A free app designed to help teens and young adults cope with anxiety.

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Dr. Russ Harris - Acceptance Commitment Therapy

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5-4-3-2-1 Grounding Exercise: Coping with Panic, Anxiety & Emotions

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How we can avoid getting caught up in the "struggle" with anxiety.

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Dr. Russ Harris - Acceptance Commitment Therapy

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The Struggle Switch - By Dr. Russ Harris

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Make it your year with Headspace

Tough classes, messy roommates, busy schedules - students have a lot on their plates.

Headspace is here for you with hundreds of meditations and resources to help you be kind to your mind, all for a very special student price. Try out a meditation below.

Headspace guided meditation

The Headspace Student plan is currently available for students within the United States, UK, Australia, Canada, France, Germany, India, Portugal, and Spain attending a post-secondary program or university, aged 18+. The subscription price is available for both full and part-time students.

To get started with the Student plan, just follow the steps below:

Visit https://www.headspace.com/studentplan and log in with your current Headspace credentials, or create an account if you don't have one yet. Follow the prompts to instantly verify your student status with a qualifying university, and continue to checkout.

Please note: If you're unable to be instantly verified, you'll be asked to upload a document for manual verification.

Nope! You're not required to use a school email to register for the Headspace Student plan. You're welcome to use any email address you'd like.

You'll get access to Headspace for [$9.99 USD, €8.99, £7.99, ₹214.00, $12.99 AUD, $12.99 CAD, $196.39 MXN] a year while you're a verified college or university student. You'll get an annual notification when we need to re-verify your student status through SheerID.

If your student status isn't verified (e.g., you graduate), we'll let you know via email and automatically enroll you in a 1-year alumni subscription at 40% off of the regularly priced Annual Membership at the end of your billing cycle.

When that 1-year alumni term ends, we'll let you know via email, and automatically enroll you in the regularly priced annual Headspace subscription.

If you weren 't able to instantly verify, please upload a document that clearly shows that you're currently enrolled at a US Title IV degree-granting college or university. Documents must include your first name, last name, university name, and an issue date from the current academic term, or within the last 3 months.

This can be one of the following documents:

Official Enrollment Letter from your academic institution (acceptance letters won't work)

Class schedule for the current academic term

Registration receipt or tuition receipt

Transcript that shows classes currently in progress

Other school-issued documents that display your first/last name and an issue date from the current term or within the last three months.

Please note: We strongly suggest covering up or redacting all sensitive information on documentation before uploading it into the SheerID system.

If you got an email saying that your documentation has been denied, please refer back to that email and click on the "TRY AGAIN" button to resubmit.

Please make sure the document provided covers all the requirements as outlined HERE.

If your document has been denied multiple times, please contact the SheerID support team via customerservice@sheerid.com or https://offers.sheerid.com/sheerid/help-center/.

Be sure to explain which document you used, the reasons listed in your denial email why the document was refused, and the email address you used to verify.

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Tough classes, messy roommates, busy schedules - students have a lot on their plates. Headspace is here for you with hundreds of meditations and resources to help you be kind to your mind, all for a very special student price. Try out a meditation below.

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Calm Harm is a free app to help teenagers manage the urge to self-harm. Available on Google Play & App Store.

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Calm is the #1 app for sleep and meditation. Join the millions experiencing better sleep, lower stress, and less anxiety.

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Learn Breathing Technique Box Breathing: Practice Breathwork for Focus and Anxiety with Dora Kamau

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This is another nice video around living a life you want in spite of difficult feelings ("monsters").

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Dr. Russ Harris - Acceptance Commitment Therapy

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Looking for advice on how to sleep better? Tweak your routine and understand the science behind your sleep patterns.

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What is permitted work?

It's well known that doing some kind of work is generally good for your physical and mental wellbeing and confidence.

Permitted work can help you learn new skills, help build your confidence and help you start thinking about types of work you could do.

You may be able to do some work if you have a disability, illness or health condition and still have the security of keeping any of the following benefits payments and National Insurance credits:

Employment and Support Allowance (ESA)

Incapacity Benefit

Severe Disablement Allowance

Permitted work lets you:

work for less than 16 hours each week

earn up to £152 every week after tax

receive your normal amount of benefit

build up your skills and experience

be supported while you work - we call this supported permitted work

do voluntary work - there is no limit on how many hours a week you can do voluntary work for

There is no limit on the number of weeks you can do permitted work for.

What you must do if you want to work

Before you start any work, whether paid or unpaid, you should fill in a PW1 form. Post it to the address at the top of any ESA letters we have sent you. Please do not take this form into your Jobcentre Plus office.

We will then let you know if the work you want to do meets the permitted work conditions. If you do any kind of work that doesn't meet the conditions, you could lose your benefit.

If you can't tell us before you start work, you should fill in a PW1 form and send it as soon as possible after starting work.

If you don't tell Jobcentre Plus straightaway about any work that you are doing, then you could be paid more ESA than you should. The law states we can take back any money we shouldn't have paid you and you may have to pay a financial penalty on top of this amount.

What is supported permitted work?

Supported permitted work is work that is supervised by someone because you have a disability, illness or health condition which means you can't work for more than a few hours per week over a long period of time.

The supervisor is normally employed by a public or local authority, or a voluntary organisation. This could be work done in the community or in a sheltered workshop. It also includes work as part of a hospital treatment programme. There is no limit on how many hours you can do supported permitted work for.

If you think the work you want to do is supported permitted work your professional support worker must fill in the supported permitted work section on the PW1.

How can permitted work change your other benefits?

If you're getting another benefit because you're not working (for example, Income Support, Housing Benefit or Council Tax Reduction), then your benefit may be reduced or stopped if you do any sort of work. Talk to your Jobcentre Plus work coach before you start any work.

If you get Housing Benefit or Council Tax Reduction and you're thinking of starting permitted work, you must talk to your local council straightaway, as the amount you get could change.

More information

Call 0800 169 0310 If you need this questionnaire in Braille, large print or audio.

Call charges

Calls to 0800 numbers are free from landlines and mobiles.

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It's well known that doing some kind of work is generally good for your physical and mental wellbeing and confidence. Permitted work can help you learn new skills, help build your confidence and help you start thinking about types of work you could do.

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University Hospital Llandough, Penlan Road, Penarth, CF64 2XX

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What's on this page?

Guidance for students with disabilities

If you have a disability, our guide will help you make sure you have all the support you need for your course.

Don't forget to tell the university or college about any impairment or condition on your UCAS application - this helps them to put the support in place ready for your arrival. This information is not used to make a decision on your application and it is only shared with those involved in supporting you, or making the arrangements for your support.

Do your research

Never be put off by any assumptions about your impairment as most courses (and professions) can be made accessible with the appropriate support - the Equality Act 2010 gives employers a duty to make 'reasonable adjustments' to make sure disabled people aren't at a disadvantage. Read more about what the Equality Act 2010 means for disabled students on the Disability Rights UK website.

There are some important differences in the support you get at school or college, and what you might be able to expect in higher education. The National Association of Disability Practitioners (NADP) has created a guide to help you understand more about the differences in the language and terminology used, and the support you may be able to receive.

Guidance for students with disabilities BSL video

If you have a disability, this signed video guide will help you make sure you have all the support you need for your course.

The university website

In most instances, the provider's website will be your starting point. Here, you will be able to easily find information and advice for disabled students, and those with mental health conditions, long-term illnesses, and learning differences (including neurodiversity). This may include information about learning and assessment methods, support provided, and the contact details of the disability, mental health, and/or wellbeing support teams.

If you are cannot find the information you need, contact student support services at the university, who will be able to help.

Advice from disability officers

Find out what disability officers at universities say about the support available, and why it's good to tell the universities you're applying to about any disabilities.

Talk to course providers

To help you reach your full potential, most universities and colleges have disability support teams and mental health and wellbeing advisers. They are always happy to speak to applicants about support and answer any questions you may have - even if you choose not to apply there. This could include advice about funding (including the Disabled Students' Allowance), and about academic and lifestyle support and facilities at that university. You will find the contact details of the student support teams on the university website.

If you're not sure what to ask when speaking to the support team, we've put together a detailed checklist to help you get started - read our advice on speaking to student support services.
What to consider now

What accessible and inclusive online platforms are used to deliver online learning and assessment? Do all departments use the same technology?

How will the university ensure you can access all aspects of blended learning and assessment methods (i.e. face-to-face and virtual elements)?

Check lecture halls, libraries, and living accommodation are all accessible and suited to your requirements - speak to the disability support team if you anticipate any challenges.

It is a huge change and takes a lot of getting used to, but I now love living away from home and my new-found independence.

Catherine Alexander, studying BA (Hons) English at Lancaster University

Open days and visits

Open days are a valuable way to find out about a university or college first-hand - you can tour the facilities, speak to staff and current students, and really get a feel for whether you would like to study there. Lots of universities offer virtual open days too, so if you can't visit in person, you don't have to miss out.

What to consider now:

Is the university running virtual open days this year? If so, do they include information on accessibility and support?

If you do need to see the university facilities in person, check if you can arrange a visit. The disability support team will be able to advise and, if necessary, make arrangements.

Open days are a good opportunity to speak to current students about their experiences, but you don't need to miss out if you can't attend one in person - chat to students online at your university.

Visit the open days page (including virtual events).

Read our checklist for disabled students when preparing for open days and visits.

I think if you are deaf, you are much more in charge of yourself. You have to take the first steps and that can be pretty challenging because deafness no doubt causes a lack of confidence. But if you build the larger part of the bridge towards other students, work closely together with the people who want to help you, then it is worth it and I can absolutely recommend having the courage and taking the step towards university.

Fred Suter, studying BA (Hons) Modern Languages at University of Southampton

The UCAS application

The easiest way to let the university or college know about your support needs is to use the question on the UCAS application - this will ask you to select your impairment(s) or condition(s), and you can give more information in the free text box below if you wish. If you'd like to know more about sharing information about a condition or impairment in the application, read our FAQs page.

The information you give about an impairment or condition is only used by the student services team to arrange the support you may need before you arrive - this can also include help during the application journey (e.g. access for interviews, open days and auditions) - it is never used to make an academic judgement on your application.

We always recommend getting in touch with the university or college once you have accepted an offer to discuss the arrangements for your arrival and they will be happy to give you more information about the services and resources available, and answer any questions you may have.

If you decide not to share this information, that is fine - it is entirely your decision. If you change your mind, you can tell the university or college directly at any time but we recommend doing this sooner rather than later so there are no delays to getting the support ready for you.

It's important to note that you are in full control of your support and if you decide you don't need it, you don't have to use it - but it's a good idea to have it ready in place just in case your circumstances change, or you change your mind later on.

This is what typically happens after you submit your application:

1. The application is sent by secure transfer to the university or college admissions department. All health data is handled confidentially under UK-GDPR legislation.

2. Admissions staff assess the application based only on the applicant's academic aptitude and potential to succeed on the course. Information about an applicant's health is kept confidential and only accessible to those who are responsible for organising support - it's not used to make an academic judgement.

3. If the applicant is made an offer or invited to interview or audition, the information is transferred securely to the student support team where reasonable adjustments are organised as necessary.

4. Once an offer is accepted, the student support team may contact the applicant with information about the available support or to discuss the support available. This may include completing a questionnaire, a visit to the university or college to arrange support, or more information about applying for a DSA.

5. Before the student's arrival, the student support team may draft a support agreement outlining any reasonable adjustments and discuss this with the student - taking account of DSA recommendations where applicable.

6. Prior to starting the course, the student support team will discuss the distribution of any support document with the student. This will be securely shared on a strict 'need to know' basis. This may include academic staff, the personal tutor, the accommodation team, library staff, and exams officers as appropriate.

Disabled Students' Allowance (DSA)

The Disabled Students' Allowance (DSA) scheme aims to ensure everyone has the support and adjustments they need to succeed during their studies.

Find out all you need to know about DSA eligibility, applying, and the support that's available.

More about DSA

Support with transition

A new start can make you feel excited and nervous - there's a lot to think about.

Some universities and colleges offer summer schools and courses to help you manage the change, particularly if you are finding it challenging. For example, some summer schools are specifically designed to help students with anxiety or autistic spectrum conditions settle in.

It's good to be prepared and know what to expect, so the Know Before You Go guide from Student Minds is a great resource to help you get ready for the change. You might also find their Transitions Guide useful to help you navigate university life.

Fitness to practice

In professions where you are responsible for the health and safety of other people, such as medicine or nursing, it is necessary that you meet 'fitness to practise' regulations. This means practitioners must demonstrate the skills and knowledge to carry out their duties safely and effectively. This is usually assessed through a questionnaire about your health, and an occupational health assessment may be required.

An impairment, mental health condition, learning difference or illness, is unlikely to affect your fitness to practise. Universities and employers have a duty to make reasonable adjustments to support disabled people under the Equality Act 2010.

Check the guidance about fitness to practise from your chosen professional course (e.g. social work, teaching, medicine, nursing) - your course provider will be able to help with this.

Support for disabled people taking apprenticeships

Being disabled shouldn't limit your job or study choice, and apprenticeships can be a great route for you to get into your chosen career. Watch a case study, get advice on reasonable adjustments, funding, accessibility of apprenticeships, and more.
More on support for disabled people taking apprenticeships

Further information and support

Helpful blog articles

Hear more from students about their own experiences of going to university with a physical or mental health condition or learning difference, and from organisations offering expert advice.

The National Association of Disability Practitioners (NADP) works with professionals who support disabled students in post-16 education. Read their blog article, Working for a successful student journey for disabled students, which explains who to contact at your university or college, and how a disability adviser can support you through your journey to uni.

For a student's own experience with mental health related conditions at university, read Zoe's story.

Ability Net helps disabled people access and use technology, and offers free advice and resources - how they can help you and what support you may be eligible for.

Student Minds and UMHAN have created three joint blogs: Disclosing a mental health difficulty on your UCAS application, The benefits of disclosing a mental health difficulty, and Disclosing a mental health difficulty: your rights.

Head Up! is a student-led organisation which offers information and advice, and mentoring opportunities to disabled people aged 14-18, which can cover university applications, managing school or social situations, and securing access support.

​

UCAS article

Sponsored by University of Plymouth

UCAS article

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Students with physical or mental health conditions and learning differences

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For students with disabilities, it's important to make sure you've applied for the right funding and that the right people know what you need.

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RES13-2 Youth Ambassador for Research_flyer_A5_v2 (2)

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Introducing our new programme of employment support

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Work can be important for many reasons -financial security, as part of our identity, for our mental health, our social lives, and to give us confidence. This CF Week, we want to empower everyone with CF to live without limits, which means supporting the CF community with their work and career goals.

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Young Person's Digital Group Spring 2023

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Have you contacted your universities Student Services department? 

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Have you contacted your universities Student Services department? 

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They provide information, advice and guidance, and co-ordinate disability-related support.

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Birmingham

Cambridge

Dr Charles Haworth
Dr Helen Barker
Prof Andres Floto
Dr Uta Hill
Dr Chris Johnson
Dr Odiri Eneje
Dr Dorothy Grogono

London (West)

Royal Brompton Hospital
Guy's and St Thomas' NHS Foundation Trust
Sydney Street
London SW3 6NP
020 7352 8121
G.Mahendran@rbht.nhs.uk

Manchester

Prof Kevin Webb
Prof Andrew Jones
Dr Rowland Bright Thomas
Prof Alex Horsley
Dr Amanda Brennan
Dr Peter Barry
Dr Heather Green

North West Midlands

Royal Stoke University Hospital
University Hospitals of North Midlands NHS Trust
Children's Outpatients
Newcastle Road
Stoke-on-Trent ST4 6QG
Main switchboard: 01782 715444
Office number: 01782 675105

Dr Angela McGowan
Dr Giles Fitch

Southampton

York and Hull

York Hospital
York and Scarborough Teaching Hospitals Foundation NHS Trust
Wigginton Road
York YO31 8HE
01904 725601
www.yorkhullcf.org.uk

Dr Rebecca Thomas
Dr Dejene Shiferaw
Prof Alyn Morice

Research we fund

We fund research to tackle some of the most pressing issues in CF today. Find out how your donations are making a difference.

Cystic fibrosis, or CF, affects the lungs, digestive system and other organs. There are over 10,800 people living with it in the UK.

Get in touch with us to speak to someone on our Helpline, find out about an event or speak to our Press Team.

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Birmingham Cambridge Dr Charles Haworth Dr Helen Barker Prof Andres Floto Dr Uta Hill Dr Chris Johnson Dr Odiri Eneje Dr Dorothy Grogono London (West) Royal Brompton Hospital Guy's and St Thomas' NHS Foundation Trust Sydney Street London SW3 6NP 020 7352 8121 G.Mahendran@rbht.nhs.uk Manchester Prof Kevin Webb Prof Andrew

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Are you eligible to apply for Disabled Students Allowance?

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Are you eligible to apply for Disabled Students Allowance?

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Extra help available if you are a full-time undergraduate student with a disability | Student Finance Wales

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Disabled Students' Allowance (DSA) is extra support on top of your other student finance and can be used to pay for study-related costs such as equipment, non-medical help, travel and photocopying and printing.

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PCD Support UK & Cystic Fibrosis Family Camp in the Cloud

The illness of a child can often mean that spending time together as a family can be difficult.

Over The Wall's free Family Camp in the Cloud has been developed to provide families with an opportunity to enjoy quality time together whilst taking part in a fun programme of activities and challenges.

Our wide range of activities allows families to have a weekend of fun, whilst also enjoying those quieter magic moments together and simply taking a break as a family.

This one-day online camp is for families where there is a child or young person aged 0-17 with a diagnosis of Primary Ciliary Dyskinesia, Cystic Fibrosis and all respiratory conditions. One child in the household must be aged 6-17 years.

Over The Wall's Camp in the Cloud

Camp in the Cloud is our innovative, inclusive and engaging online programme, where you and your family can experience the magic of an Over The Wall camp from the comfort of your home!

Campers are given exclusive access to our bespoke Camp in the Cloud platform, where they can engage with a mixture of online and real-life activities. There are opportunities for campers and families to interact in real-time with others who are attending the same Camp in the Cloud, through secure message boards and fun video calls.

You'll be sent your very own 'Seriously Fun Box' in the post, containing every single resource they need to participate.

"Camp has also helped give him the confidence to talk to his friends about his health challenge. Having these activities and learning new things has allowed Evan to say - 'I learnt to do this at Camp in the Cloud - which is something I am able to do because of my illness." - Camper Parent

In partnership with PCD Support UK

This camp has been developed in partnership with PCD Support UK

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Primary Ciliary Dyskinesia & Cystic Fibrosis Camp in the Cloud

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The illness of a child can often mean that spending time together as a family can be difficult. Over The Wall's free Family Camp in the Cloud has been developed to provide families with an opportunity to enjoy quality time together whilst taking part in a fun programme of activities and challenges.

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http://cccymru.co.uk/outlets/find/

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Wales Drug and Alcohol Helpline

Calls made to 0800 or 0808 phone numbers are free for all UK landline and mobile phones.

Dan 24/7 telephone number will NOT appear on your home itemised bill.

Getting help is the first step

Talking to somebody about your drug or alcohol problem is the first step to resolving your problems. You can call DAN 24/7 on 0808 808 2234 anytime day or night and we will give you help and advice.

If you'd rather look for an agency online then you can search through our online database of drug and alcohol agencies where you can find National and Local agencies that will be able to help you.

Remember, anything you tell DAN 24/7 or any agency you contact is confidential and you won't even need to give your real name.
For support with gambling addiction, please visit the Gamcare website

Naloxone Click and Deliver

Naloxone is a lifesaving medication that can temporarily reverse the effects of an opioid overdose. We now offer a click and deliver service to any address in Wales.
Order here

Drugs Meter

Take the drugs meter, objective feedback on your drug use that allows you to compare your use against thousands of people across the globe.
Drugs Meter (opens in a new window)

Hide

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DAN 247 - Wales Drug and Alcohol Helpline

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Dan 24/7 is a free and confidential drugs helpline

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Things to consider:

Access to a fridge for meds

Storage for meds and equipment

En suite facilities for privacy

Enough plug points for your equipment

Ground floor or access to a parking space

Catered or self-catering halls?

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You may be eligible for a small grant to support you with your studies! 

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You may be eligible for a small grant to support you with your studies! 

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Unlock your potential with the Joseph Levy Education Fund

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Do you need to think about changing GP surgeries? What pharmacy will you collect your prescriptions from?

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Young Person's Digital Group Autumn 2022 (1)

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Young Person's Digital Group Meet & Greet

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Cardiff and Vale University Health Board

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If you've just applied, view your application details and upload additional documents if we've asked you to. If you already have a card, let us know if you want to change your card details or report a card lost/stolen.

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Log into Facebook to start sharing and connecting with your friends, family, and people you know.

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TV Licence - anyone in the UK that uses BBC iPlayer - even just for watching catch-up TV - needs a TV licence, as well as anyone watching or recording live TV.

You don't technically need a TV licence if:

Your parents have a TV licence; and

You live with them outside term time; and

When you're at university you only watch on a device that isn't plugged into an aerial or a mains socket at the time. (If your device is plugged into the mains when watching, you need a TV licence.)

If the above does not apply, if you're living in halls of residence you may be covered for communal areas, but not your room - do check. If you live in a shared house and have a joint tenancy agreement, you'll only need one licence for the household. But, if you have separate agreements, you'll need one for your room.
Remember, watching live TV or using iPlayer without being covered by a licence is against the law. Fee dodgers face prosecution and a fine of up to £1,000.
Home insurance - Check your parents' cover if you live with them outside term time. Your parents' home insurance may automatically cover you under the 'temporarily removed from the home' section while you're a student. The cover only applies while in your accommodation and if your parents' home is your main permanent address. If you need cover for any mobiles or laptops, or items you normally wear or carry away from your home, your parents could also add the 'all-risks' or 'unspecified personal possessions' section to their policy, which specifically covers your stuff while it's out of their home. Many policies allow this, so it's worth checking. However, if you carry a lot of valuable gadgets, eg, a laptop, tablet and smartwatch, then a specialist gadget insurance policy could be worth considering.

Register to vote - If you want to rent, get a mobile contract or a credit card, it really helps if you're on the electoral roll, which is a list of everyone who's registered to vote. It can also help reduce insurance premiums too. Plus, you can be a part of big decision-making: voting for new governments.

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Financial support and budgeting at university

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TV Licence - anyone in the UK that uses BBC iPlayer - even just for watching catch-up TV - needs a TV licence, as well as anyone watching or recording live TV.

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Use the Turn2us Benefits Calculator to find out which welfare benefits you may be entitled to.