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1. What are Bob’s main concerns?

2. How would you respond to these concerns?

3. Discuss some of the reasons why Bob is concerned about using respite care.

4. What concerns does Margaret express to their GP?

5. What other concerns could carers have about caring for a family member at home, or about using respite care?

6. Consider your specific healthcare profession. What options can you provide to support Bob and Margaret at home?

7. Research support services that are available for carers in your local area.

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Bob’s condition is deteriorating and he is finding that most day-to-day activities are becoming increasingly difficult. Margaret admits that “it’s been very hard” and says, “I know I should be stronger but I can’t”. She is visibly upset.

The GP explores the options for care and respite with Bob and Margaret.

Links to PCC4U Core Module 4: Activity 10

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1. How can you use the knowledge from your specific profession to promote physical and social function for the problems Bob has identified? Search relevant literature to identify the evidence to support your answers.

2. What other healthcare professionals will you include within the care plan?

3. What specific assistance will these professionals provide to Bob?

4. What strategies would you use to ensure an effective team approach to managing Bob’s care?

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1. Provide a detailed description of how you would determine Bob’s goals of care?

2. Bob talks about the benefits of the wheelchair and the seat over the bath but doesn’t wish to go ahead with any major house modifications at this stage. Discuss the following:

His reasons for delaying the bathroom modifications.

Healthcare professional responses to situations where a person with a life-limiting illness has different opinions about recommendations for care.

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1. What types of loss does Bob discuss?

2. How did he react to these losses?

3. Refer to the MND Australia publication, Motor neurone disease aspects of care for the primary health care team. What other forms of loss is Bob likely to face as his illness progresses?

4. How did Bob respond to other people’s reactions to his situation?

5. Bob states that he found it hard because ‘everybody seems to be an expert on what you should be doing’. What strategies can healthcare professionals use to:

Understand the experience, preferences and goals of the person with a life-limiting illness

Establish effective partnerships with them and their carers?

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The occupational therapist visits Bob to assess his situation. The therapist explores how Bob’s illness has affected his day-to-day functioning. Bob speaks to the occupational therapist about his physical and social function. Bob identifies the following problems:

Decreased mobility

Difficulty swallowing

Difficulty maintaining social contact.

Links to PCC4U Core Module 4: Activity 8

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Bob’s illness has progressed over the last three months. He has severe weakness in his arms but is still able to walk around.

He has been referred to a physiotherapist and occupational therapist to determine what can be done to improve his physical and social functioning. The occupational therapist visits him at home to discuss potential modifications to his house.

Links to PCC4U Core Module 4: Activity 4

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Bob and his wife Margaret have two children – two girls aged 24 and 27 – who live in the same city as Bob and his wife. Bob was diagnosed with Motor Neurone Disease 12 months ago. He was working as an electrician but was forced to retire when he was diagnosed.

In the following video, Bob talks about how he has adjusted to his diagnosis and the loss that he has experienced.

Links to PCC4U Core Module 4: Activity 2