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001 Parent Carer Participation Comms 10.06

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Opportunity Newsletter Entry and Feedback on Family Involvement Project

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Opportunity_Newsletter Entry and Feedback on Family Involvement Project

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Opportunity_Newsletter Entry and Feedback on Family Involvement Project

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Opportunity_Newsletter Entry and Feedback on Family Involvement Project

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Participation is involving people in decisions that affect them. NHS England describes 2 types of Participation:

Individual participation: people’s involvement in decisions about their own health

Public participation: people’s involvement in the design and delivery of the health services they use

Involving people and communities is a legal requirement (Health and Care Act 2022), with many local and national policies and guidance, promoting and requiring Participation, including the UN Convention on the Rights of the Child (Article 12).

For more information, please see: NHS England » Working in partnership with people and communities: Statutory guidance

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This Padlet is designed for families to share information about Provider Collaborative, Kent and Sussex CAMHS and ways you can get involved.

Who is the Provider Collaborative?

The Provider Collaborative (PC) is in charge of planning and monitoring specialist mental health services for young people, as well as managing the admission and discharge processes for those young people who live in Sussex, Kent and Medway.

Have a look around and see what you think.

If you would like more information or a chat about how to get involved, we'd love to hear from you, just send us an email :)

Participation Lead - Natalie

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"Hey! I'm Natalie Kinsella and I am the 'Lived Experience Lead' for the Provider Collaborative / Tier 4 CAMHS, we know that meaningful change can only happen when we listen to and involve the people that use our services, I look forward to working alongside some of you"

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The benefits of involving and working in partnership with people and communities include:

Improved health outcomes

Better decisions about service changes and how money is spent

Improved safety

Improved experience

Improved performance

Reduction in health inequalities

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Opportunities for involvement are posted here. If an activity is of interest, contact details should accompany the post, alternatively if you'd like more information, you're always welcome to contact -

Participation Lead - Natalie

Participation Lead - Jess

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Family Transport support opportunity form for families - FINAL

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001 Parent Carer Participation Comms 10.06

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What is and EbE - Ebe stands for 'Expert By Experience', this is a person who has lived experience of accessing our services.

Become and EbE - The first step is already done as you are already and 'EbE' if you have lived experience of using our services, the next step is get in touch so we can sign you up.

How can I get involved?

Participation takes place in different ways, at different levels. Share your experiences of CAMHS and collaborate on

projects for change.

Sign up to our newsletter to receive info/opportunities straight to your mailbox!

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We work closely with our Family Ambassadors. Family Ambassadors offer emotional and practical support to parents/carer of children or young people who have been admitted to one of the following Children and Adolescent Mental Health (CAMHS) inpatient units: Austen House, Bere Clinic, Brighton & Hove Clinic, Leigh House, KMAH and Pebble Lodge. Family Ambassador support is open to all families of children and young people who are admitted to these units, regardless of where the family live.

The Family Ambassador scheme for the South East region is run by Sussex Partnership NHS Foundation Trust, working with NHS trusts and providers in Kent, Sussex, Hampshire and Dorset.

What do Family Ambassadors do?

Family Ambassadors are non-clinical professionals with lived experience of CAMHS services, who can work with you and the clinical teams to help you navigate the inpatient journey.

To find out more visit - Family Ambassadors :: Sussex Partnership NHS Foundation Trust (family-ambassadors-south-east.nhs.uk)

Or to find out more about the support available in your region, please contact Lucy Morley, Regional Family Ambassador, South East region.

Email: lucy.morley@spft.nhs.uk

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Family Ambassadors provide emotional and practical support to parents/carers and families of young people from Sussex, Surrey, Kent, Hampshire and Dorset who are admitted to a Children and Adolescent Mental Health (CAMHS) inpatient service.

The Family Ambassador scheme for the South East region is run by Sussex Partnership NHS Foundation Trust, working with NHS trusts in Kent, Surrey, Hampshire and Dorset.

What do Family Ambassadors do?

Family Ambassadors are non-clinical professionals with lived experience of CAMHS services, who can work with you and the clinical teams to help you navigate the inpatient journey.

We know that it can be a stressful time for families when children are admitted to hospital. Our Family Ambassadors will support you from the point of admission until shortly after discharge, in a way which is flexible and suits your needs.

As a parent or carer, you have a unique perspective on the care needs of your child or young person. Family Ambassadors will ensure your voice is heard and that you feel empowered to become an equal partner in your child or young person's care.

How can Family Ambassadors support your family?

Help to understand the inpatient system and processes and roles of the multidisciplinary team.

Help to support your communication with professionals.

Help to understand any 'jargon' or unfamiliar clinical terms used.

Help to explain the purpose of different meetings and help to prepare you for them, including support and information after meetings.

Help to ensure that you are fully involved in developing a care plan for your child or the young person you care for.

Help to raise any concerns and to take action to escalate your concerns if necessary.

Help to explain any legal processes, such as the Mental Health Act.

Be a source of high-quality information and guidance, for example, eligibility for benefits.

Be a support and source of information during transition to other services.

Be a support with communication with social care, local authority, education or onward providers.

Have knowledge and networks of the local area to support with information and signposting (for example accommodation and travel within the area).

Help to direct you to parent/carer forums, charities and relevant support groups.

Be a friendly face and listening ear to address any worries that you may have.

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Family Ambassadors provide emotional and practical support to parents/carers and families of young people in Sussex, Surrey, Kent, Hampshire and Dorset who are admitted to our inpatient CAMHS units.

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Everyone added to payroll is opted into an NHS pension, if you wish to opt out of this please follow instructions in this form

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Mental Health First Aider - How to become one 

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Mental Health First Aider - How to become one 

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Offered to EbEs through Sussex Partnership NHS Foundation Trust