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Research our programs to show effectiveness 

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Research our programs to show effectiveness 

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Requires time to develop, maintain, and assess 

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Requires time to develop, maintain, and assess 

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What does the parent journey look like?

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Who has oversight of each piece of support? 

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Who has oversight of each piece of support? 

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Write articles for professional journals 

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Write articles for professional journals 

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Connection to Community Resources-Patti 

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Connection to Community Resources-Patti 

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Families connected with community resources as identified needs arise

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Staff provide support to families via IEP updates, notes, ptvs and conferences, newsletters and other communication,

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Individual Counseling with Families-Patti 

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Individual Counseling with Families-Patti 

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Individualized contact initiated by Patti, or referred by another staff member, related to transitions or changes

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Periodic sessions with dual purpose of families meeting other families and families getting information

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Focus on LSL strategies and action steps to provide carryover at home

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Tertiary support offered through cid.edu/parents and CIDFamilies facebook group

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Ready, Set, Go-Patti, Lynda, Amy H, and PD

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Ready, Set, Go-Patti, Lynda, Amy H, and PD

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In past has been focused on information of transitioning into home district.
Currently, working in some emotional support pieces for the transition in addition to the information needed to transitioning.

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Informal family support via conversations at social events for alumni

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6-week cohort (Feb-March)
Families with new diagnosis
Professionally-led support group that is "feelings-based" and emotionally-supportive.
Virtual, N=~7 at most
Assessments (pre-post, likert scale, qualitative interviews)

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Parent to Parent formalized mentoring program 

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Parent to Parent formalized mentoring program 

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In the "likelihood survey", some famlies expressed interest in this type of program.

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Ongoing counseling and emotional support for families as they move through various transitions 

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Ongoing counseling and emotional support for families as they move through various transitions 

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Transition into CID/new diagnosis, transition from FC to ECC, transition from FC to "other", transition from ECC to Primary, transition from ECC to "other", transition from Primary to "other", transition from device to new different device, etc.

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Written protocols and procedures so that all families are consistently offered similar services

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Intentional support to arrange transportation

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Intentional support to arrange transportation

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Through other vendors

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Consider a private youtube channel

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Offer inhouse support for those in need

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For example, in the recruitment interviews Meg did, some families suggested career exploration and planning. Other organizations have programs related to this that we could utilize or build from or perhaps ask them to modify for our population.

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Development of program to share/sell workshop, materials, etc. 

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Development of program to share/sell workshop, materials, etc. 

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Collaborate with other organizations for standard of care model 

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Collaborate with other organizations for standard of care model 

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Intentionality vs. Ad hoc
Systematic Approach
Proactive vs. Reactive
Active vs. Passive
Clarifying Roles/Responsibilities for other staff

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1) Parent-to-Parent formalized mentoring program
2) New Diagnosis Cohort Pilot
3) Structured transition support (emotional) as preventative vs. reactive

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But wouldn't the Transition Coordinator be the quarterback?

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1) Enhance existing resources

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Current need is present and growing
Marketing - does anyone else have this? This makes us special, stronger, stand out.
Will help with Roles/Responsibilities (for parent educators)
A way to provide specificity AND balance

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To provide flexibility in scheduling
(Other role interferes with scheduling)
Tapped out at 75% effort
To allow for more dedicated Discovery Room personnel
Doesn't allow for growth opportunity within "vision" of future CID services

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Parents could be very turned off. Will there be buy-in? (indication of interest from family focus groups)
Diversity of families and does it match with the people administering the program?
FT -- what does that mean?
Staff perception (toes stepped on?)
Who does it cover?
What's a reasonable caseload?
Where does this position sit within the organization? (Supervision)
What are the parameters around "success"?
Financial implications? Hiring another staff to replace 25% - but hiring at 100%(may still be closer to budget-neutral)
Where will she sit?

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Review current job description
Update job description
Determine financial ramifications